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New member, 27 with Nemaline Myopathy

Hi guys, havent looked at any posts yet so not sure what others have written. I'm 27 from Somerset and have Nemaline Myopathy, a rare form of disability. Currently struggling mentally a bit with being able to do less and less. And battling mentally between liking working, but being so physically exhausted and sore.
Replies
Hi Jooles, had to google your condition, as I hadn`t heard of it.
I see it can cause a lot of unpleasant problems for you.
Have you got much support?
Has your work helped with adjustments for you?
Take care.
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