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My daughter suddenly became ill last year, feeling very overwhelmed.

Hello all,
My daughter (24 years old) has now sort-of been diagnosed. She suddenly became 'ill' in February last year and we eventually found words for what is wrong with her at the end of Dec 2019. She became 'disabled' overnight with chronic severe pain that limits her movement to the extent of having to use a mobility scooter.
Today I feel overwhelmed.
My daughter (24 years old) has now sort-of been diagnosed. She suddenly became 'ill' in February last year and we eventually found words for what is wrong with her at the end of Dec 2019. She became 'disabled' overnight with chronic severe pain that limits her movement to the extent of having to use a mobility scooter.
Today I feel overwhelmed.
Replies
I am trying to get my daughter to join groups as she is incredibly down and isolated since becoming whatever-it-is-she-is. Life is a bit of a struggle at the moment and getting around an issue. Even getting into the GP surgery is a challenge as we have to phone ahead to get the (very flimsy) ramp put out. Someone also has to hold the ramp down so it does not move while she uses it. Never realised how difficult it is for disabled people to get around.
I'm sorry you are feeling overwhelmed, it sounds like things have been really tough. Is there anything we can do to help?
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So far, may daughter has had no support. We are in the process of applying for PIP and hoping that a blue badge will follow. Poor sausage had to drop out of uni in her final year as she could not attend due to the severity of the pain.
Eventually took the plunge and invested in a mobility scooter and that helps as she can get out of the house.
Can we help? - Just knowing the site is there is a help at the moment. I am urging her to join as I think she will find it very beneficial. We have to start making plans for her future but she does not seem ready yet.
How long does it take to adjust to this new way of life?
My own road to diagnosis has taken 22 years! I finally got it last month.
It`s been a helluva roller coaster.
Hoppe you and your`s are coping. Take care.
Polls xxx
Please do let us know how you get on.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
We have a ‘I think it is’ small fibre neuropathy diagnosis. Does not seem to be a cause or a cure. Hey-ho.
Having a diagnosis does however help, as it is better than not knowing.
Hope your diagnosis leads to an improvement in your health.
My son is disabled. It took me several weeks to embrace and make peace with my new normal. In the beginning of our journey back in the summer of 2016, I fought it. I even considered briefly a termination but eventually decided not to. Keeping a diary certainly helped to some extent too. His diagnosis was overwhelming at the time and I also struggled to see the positive aspects of our situation. Now I can read the words spina bifida and smile not frown like I used to.
You can do this! Find a support group. It definitely helps. What about a therapist? I started seeing one approximately three years ago when my son was a baby and I was on maternity leave. My therapist was my high school friend. She would come out to my flat and we would sit at the kitchen table and chat for a good hour each time. Maybe try asking your doctor about local therapists?
Also has she had a needs assessment yet?
We are waiting for PIP, needs assessment, blue badge, help in general.
The waiting and paperwork is overwhelming, not to speak of the cost of getting to appointments. At the moment I find it overwhelming - felling a bit Sorry-Susan!
I don’t know where to turn for a there-there.
How long does it take before you started feeling in control of life again?