16p11.2 microdeletion in a child under 6. What proof will i need to claim DLA? — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

16p11.2 microdeletion in a child under 6. What proof will i need to claim DLA?

DaddyDoo
DaddyDoo Member Posts: 2 Listener
Hello. Im gonna say how i think it is and then hopefully someone will tell me how it really is. My daughter has a genetic disorder. The deletion itself could in future manifest in many different ways. 25 % chance of being on the spectrum, delayed speech, obsesity, seizures , schitzophrenia you name it it may all still show up or not. She was born with a 9m hole in her little heart and some very weird artery structures that somehow countered the hole and kept her alive. the veins were wrapped arounfd her left lung restricting 90%. The surgery was totally sucessful. But now Shes  behind with speech very agressive with other kids , doesnt share, almost always shouts  worrying tendancy to hit herself and giggle... stuff like that. My real question is..Does anyone feel Id need actual psyche reports and neurodevelopmental i dunno observations and stuff? Or will it be enough to show the diagnosis and support my claim with expert analysis of what this could very well mean for her? If i understand the Equalities act right, then children under six are treated differently? Anyone who can help will be so welcome. if your child has 16p11.2 and youve been through the claims process, id really appreciate ur help. Thank you. 

Comments

Brightness

Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.