Hi, my name is jameelk!
jameelk
Community member Posts: 4 Listener
Hi, I’m Jameel, I’m a 42 Y/O man with stage 3 severe HS. It started around 3 years ago. I’m all the way up using weekly imraldi injections. After 4 months it’s not really helping. I’m now lost, feeling like I’m going to be in pain for the rest of my life. This also really impacts my mental health (Bipolar) any tips or tricks are welcome
0
Comments
-
HS is Hidrenditus Suprativa0
-
Hello @jameelk Pleased to meet you.
Thank you for joining and sharing. Sorry to hear your in pain.
I am one of the team of Community Champions. We support members help advise and give information.
This is some information and support I can give you.
Hidradenitis Suppurativa Support Group UK.
https://www.hstrust.org
Helpline 0300 123 0870
Please if I can suggest also the following mental health charities.
https://www.richmondfellowship.org.uk.
https://www.mind.org.uk.
https://www.rethink.org.
All offer advice floating support on mental health. Plus health, benefits, welfare and anything else.
Might not be in all areas.
Please if you have any questions please ask me happy to be supportive.
Offer compassion, empathy and sensitivity.
Please take care.
@thespiceman
1 -
Thank you0
-
@jameelk Hello and welcome to the community I am a community champion here at scop. I see Spiceman has given you some advice and other places you may get more advice. I just wanted to welcome you to the community I hope you can get the answers you need here1
-
Hi @janer1967
Good Afternoon & Welcome it’s great to meet you today.
I am also one of the Community Champion’s here at Scope.
I can see that my good friend @thespiceman has given you some great info/advice.
Please please let me know if there’s anything else that I can help you with!!!!
@steve51
1 -
Hi @jameelk - Welcome to the community from me too. I'm sorry to read you're suffering from such a painful disorder. I do hope thespiceman's link s prove helpful to you. I was also wondering if you've told your GP how badly this is affecting you, & if you've ever been referred to a dermatologist?
1 -
Thank you, yes I’ve been with the Dermatologist for a couple of years now. Along with the injections she just tried me on Metfomin (a diabetic drug, that can be used for HS) but that gave me lactic acidosis lol. It’s all not going very well haha. That’s why I thought I’d try talking about it. Next step will be to surgically remove the skin, but I have to get through the dreaded UC and PIP medicals ? Thank you so much for replying, I really appreciate it!1
Categories
- All Categories
- 13.6K Start here and say hello!
- 6.7K Coffee lounge
- 50 Games den
- 1.6K People power
- 30 Community noticeboard
- 20.9K Talk about life
- 4.8K Everyday life
- 2.2K Families and carers
- 794 Education and skills
- 1.7K Work
- 382 Money and bills
- 3.2K Housing and independent living
- 805 Transport and travel
- 626 Relationships
- 1.2K Mental health and wellbeing
- 2.2K Talk about your impairment
- 834 Rare, invisible, and undiagnosed conditions
- 885 Neurological impairments and pain
- 1.8K Cerebral Palsy Network
- 1.1K Autism and neurodiversity
- 33.5K Talk about your benefits
- 5.4K Employment and Support Allowance (ESA)
- 17.8K PIP, DLA, and AA
- 5.6K Universal Credit (UC)
- 4.7K Benefits and income