What benefits am I entitled to?
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, my name is samfits99!

samfits99samfits99 Member Posts: 155 Courageous
Hi everyone. 

I just would like some advice please. I’m Sammie. I got awarded PIP for 5 years, my claim runs out on March 25th 2021. I called up to see when I will get the forms they said it would be September/ October time and said I have a bit of time left so don’t need to keep calling up. Stupid question but what do they mean? Sorry I am a bit slow people. they just say I have a bit of time left ( I had a paper based assessment), as I am aggressive and have a lot of issues so can’t attend them. when the forms come again will I have to write it all out again? someone said it won’t be as big this time when I get the form is this correct? thank you everyone that gets back to my big post I really do appreciate it. 

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @samfits99   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the team Community Champions.  We guide and advise support members of our community.

    Please can I ask have you received any support regarding aggression?

    Counselling or therapy.

    I would suggest these mental health may help worth considering.

    Dealing with anger, aggression I know is a difficult problems to deal with.

    Every one is entitled to good mental health and any issues.

    Own personal circumstances.

    https://www.richmondfellowship.org.uk.

    https://www.mind.org.uk.

    https://www.rethink.org.

    All offer floating support, benefit advice and well being and health.

    Would help be supportive here especially your benefits and health.

    Might not be in all areas and self refer through website or speak to your GP.

    I know have a member of our team who is exceptional and has expertise, lots of knowledge.

    @poppy123456 .  Been in touch to advise you here.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome.

    Thanks @thespiceman for the tag.

    PIP reviews now take place 6 months before the award is due to end and this is why they told you it would be September/October. You'll be sent PIP review forms (shorter version)

    However, all claims by claimants should be treated as a new claim and you should write as much information as possible on the forms and give a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you. Do not be fooled by the shorter version forms.

    Send relevant evidence to support your claim because they rarely contact anyone for this. Most people have face to face assessments. If there's enough of evidence to do a paper based assessment then this will be done. As you say you don't do face to face assessments then it's even more important that you write as much information as possible.

    Hope this helps.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    Thank you so much for your replies I appreciate it from you all. the health provider contacted my doctor and my doctor have advised the Health Provider & DWP to do a paper based assessment and they have said it’s not going to go a head with information they have received about my anger and aggression. and that’s why they did a paper based assessment ( last time ). I’ve also been told don’t be fooled by the short version. so thanks for that. I did ask them would I get a letter before September/ October they said no you won’t. does that seem normal? I thought they would want to get me in ASAP? my award is till March 25 2021. I have more evidence. my psychiatrist said if nothing has changed and they still have the same information with more then more than likely they will just award it again as you can’t go to the assessments because there is a high risk you could explode. Your reply would be highly appreciated! 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome. Being sent the review forms 6 months before is perfectly normal yes because that's when forms are sent for all reviews.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    Thank you, Poppy. they said they have received information from my doctors and when an assessment date is due it wouldn't go ahead. and they will be doing a paper-based assessment which is great! the health provider said because of the aggression we wouldn't allow it to go ahead with information we have received. where can i find the review or renewal form ? as people said it will be a shorter version. im trying to find it on google but can't. just so i can have a nosey. once again appreciate your replies excellent service! :) 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    Thank you very much for the link. it’s not as big as the other one. PIP said I have a long way off yet is that correct? they said you don’t need to think about it now as you have some time off. I asked would I be assessed soon and they said NO. ?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    It's because it's a review form (shorter version of the PIP2 form) you will be sent that form 6 months before the award is due to end (which will be September) It's about 7 months before you receive this so relax for a little while because there's nothing you can do in the meantime, other than make sure you have evidence ready.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    Thank you poppy. 😊 7 months away that’s probably why they said I have some time left. the evidence I sent them I will be sending the ( same evidence ) as previous , with more additional evidence, would you still send the same evidence in? obviously I will be sending more evidence in. also once they have received it does it take weeks for them to get back to you? once again thank you for the super speedy replies. star! 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome.

    If you've previously sent the evidence then there's no need to send it again. Sending huge amounts of evidence is not needed because it won't be read. You also need to be very careful doing this just in case there's any contradictions between 1 evidence and the other. Less is often more and if it's not relevant don't send it at all.

    There's never any times scales for any decisions, backlogs are just part of the reason a decision can be delayed. Your form and evidence will be sent to the health assessment providers because a report will be written, whether you have a paper based or a face to face assessment.

    There's really no other advice i can give right now. Once you receive the forms. if you have any questions then please post back here and i'm sure someone with advise you further.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • janer1967janer1967 Member Posts: 9,359 Disability Gamechanger
    @samfits99 Hello and welcome to the community as per th advice given you don't need to worry about the reassessment for now other than gathering any relevant evidence. As said they state not to send in any evidence that they already have you just need o send any additional since your last review. Sit back and relax for now but please get in touch for any advice once you start the process again
  • samfits99samfits99 Member Posts: 155 Courageous
    @janer1967 thank you for your message I really do appreciate it. I suffer from severe paranoia and have a lot of other issues that affects me day 2 day. but won’t go into it all. they said to me from reading the notes and information they have received they are going to do another paper based assessment or just renew it. I was made up when they said that! 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I know it's easier said than done but try not to worry too much about it right now because you have 6 months before you receive the review forms.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 I no what your saying. I have some time left yet. How are you so clued up? do you work for PIP or have done. as you seem to no a lot. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    No, i don't work for DWP and never have done. My knowledge comes from my own personal experience (i claim PIP and ESA) and further extensive research into the benefit system.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • janer1967janer1967 Member Posts: 9,359 Disability Gamechanger
    I had paper based last review and yes was very relieved especially as I didnt request it or expect it. Thought I would have another f2f
     As been said b4 try put it out of your mind for a while 
  • samfits99samfits99 Member Posts: 155 Courageous
    @janer1967 I will do thank you. Hopefully they will grant me another 5 years. tbh I have that much evidence even if they didn’t I would go to tribunal. I would never give up what’s legally and rightfully mine. 
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 your knowledge is fantastic. and will help loads of people out as well. I’m not going to think about it anymore , I no it will be another paper based because of my anger and aggression with other factors which I won’t get into. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Thanks for the kind words. :) I've already helped thousands of people here and i'll continue to do that for as long as i can.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 you seem like a nice human being. I take my hat off to people like you. I have ADHD and many other things which I won’t go into. I have all the signs off autism. similar traits. would I need to get a referral from my doctors ? as it’s affecting my life. I no your not a doctor so might not be able to answer it but thought I would ask regardless. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Thank you very much for that! You made me smile. I just love helping other people as much as possible. I'm unable to go out much so if i can help people this way, i will.

    For the Autism assessment then speak to your GP and tell them your thoughts. There's some information here but be warned it's long https://www.autism.org.uk/about/diagnosis/adults.aspx


    My daughter was actually diagnosed with ASD when she was 17. She had a referral from her college she attended at the time. She's 19 now.

    Although some people think that a diagnosis doesn't really help, i would have to completely disagree with that because it helps you to understand what's going on. Gives answers to all those questions you've had. At least it did for me when my daughter was diagnosed. She was also diagnosed with a learning disability just before the ASD so with those 2 alone, it definitely helped me to understand everything that she went through over the years. It took me 14 years of fighting to get it but i did in the end because i wasn't ever going to just "give up" on her.

    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 glad I made you smile. your very clued up and I like how you help others with advice. I have written my doctor a letter explaining why I think I have it. I have already been on that link to see if I have similar symptoms and I have most of them. I’m waiting to hear back from CCG to get funded to see a psychiatrist for my ADHD as I’ve been on a waiting list for ages. there just stretched on funds. I have a mental health telephone consultation on weds at 3pm. hope they will listen to me as the last time I went to see them in person they was ****!! I have done extensive research so I no what I have so they can’t say I don’t as they don’t no what goes on in my day to day life and what I’m thinking in my head. 
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 I was awarded PIP enchanted rate for Care. didn’t get anything for mobility. hopefully I will have a nice lady that calls me on Wednesday. and treatment can get sorted. I was made up I got awarded 5 years. could they renew it again? obviously would need to send XYZ off ect ect. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Once you've filled out the review forms and you've been assessed then there's no reasons why you won't be awarded again but i'm not a HCP or a decision maker and i won't be able to tell you for sure if you'll be awarded again. All you can do when the time comes is fill out the forms with as much information as possible.

    Please try to forget about it now otherwise the stress caused isn't going to help you, you have about 6 months until you receive the form. Relax for now, at least :)
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 just to make it clear. I won’t be having a assessment at home or at the place they choose full stop. because of my explosive aggression and overwhelming anxiety it causes me I don’t go to them. because my aggression and temper they said based on that and the dangers they don’t allow it to get a head. so it’s all done as a paper based assessment. I’m just going to relax. as I have 6 months left. I am certain I will get it anyway :) so many people have won at tribunal. some women for 11.5K backdated pay!!! mad.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @samfits99   Please can I ask did you look at any of the links I provided for you.

    One of the reason you mentioned having a lot of problems. Sometimes not getting heard or being responsive.

    I do understand have had similar and many knock backs so use the links I suggested totally different.

    For three years used Richmond Fellowship.  Many staff have mental illness themselves, offered a lot of support.

    I know the help and support around benefits outstanding and very much compassion.

    All charities offer a recovery programme looking at health and sleep and medications. Also offer a plan tailored for you . Discussed with you not ordered or told what to do.

    Some services do, these do not. Some are very much have in house advisors and can sign post you to anything specific you need.

    I have a lot of knowledge, experience and use a lot of this to educate and support members of the Community.

    Empathy and sensitivity if you have any questions or wish to ask me any thing please do.

    I had my issues thirty years on going been involved in mental health charities as volunteering as well being a clientele.

    Know the problems especially Council services  and many others aspects of lacking of care.

    Why use mental health charities 

    Including one essential important aspect of mental health diet and nutrition, of which you should be aware of especially anxiety or aggression or anger.

    Which can beneficial to your wellbeing.

    With any of the conditions you have is a sensible practical healthy diet and nutrition you would need to look at.

    With plenty of fruit, vegetables whole grains and Pasta, Rice.

    Lean Meat, Eggs and Nuts have food intolerances or allergies.   Do not consume. 

    Avoid Caffeine, Coffee, Tea, Cola, Chocolate.  A stimulant consume more effects anxiety as it would aggression.

    Avoid Alcohol, Cakes, Biscuits, White Bread, Sugar. All cause problems with Aggression. 

    Alcohol anxiety avoid also.

    I would advise speak to any of the links provided can and could help with a lot of the diet, nutrition.  Plus anything else anxiety or concerns.

    I am aware you could use your Community Health Unit wellbeing service offer the same..

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yes, i remember you've said a few times that you won't have the assessment BUT like i've also advised a few times an assessment still needs to to take place because a report needs to be written but paper assessments are possible.

    There's nothing more that i can advise you on right now, so i'll leave it at that. When the times comes if you need or want further advice then please do ask and i'm sure someone will advise you further.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 a paper based assessment will happen again as previous. then the health care provider will send recommendations to PIP decision maker and for them to decide what to give me. so I’m happy. as I no it won’t go a head and it will be paper based but thanks.
  • samfits99samfits99 Member Posts: 155 Courageous
    @thespiceman thank you for your big message. I appreciate that. I disagree with @poppy123456 paper based assessments can be done. as I had one before due to being very aggressive and violet it put in a uncomfortable position. my anger has gone worse so I’ve spoken to the health care provider regardless it it’s 6 months away and they have stated ‘already’ it would be a paper based assessment as we would want harm to yourself or staff if there is a risk of danger. I have ADHD, Autism, went to a special needs school. have anger issues, dad died in front of me when I was young. I was abused, bullied in high school, have a personality disorder and suffer from severe paranoia and anxiety. I have had my driving license taken off me and cannot attend any appointments for PIP or any other form of benefit. they no the risk if I come to the assessment what I will do, as I can’t control myself. they have been made aware of the risk so they send it back to DWP - PIP and cancel the appointment and do a paper based assessment. so it’s all good :) and I will just get awarded hopefully another 5 years, if not I challenge it and if I have no luck I take it to the tribunal job done 👌
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 the health provider for PIP in question received a report from my doctor and mental health team stating I will loose my tempter if I go and it could end up bad. so they have made notes on the system and said it will be done paper based assessment so I’m happy. as my condition with other factors has gone on a decline. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    edited February 2020
    @samfits99 i have no idea what you disagree with or why you're disagreeing because i never said that paper based assessments aren't possible. My daughter had a paper based assessment for her PIP review last year.

    You are the one that keeps mentioning a paper based assessment. I did state they are possible and people do have them but they are rare because most people have face to face assessments. I didn't say that you wouldn't have a paper based assessment next time.

    What i said was is that I'm not the decision maker or the health assessment provider and it's not my decision to tell you what you will or won't have.


    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 we will leave it as that. least I no I will be having another one so I’m happy. won’t mention ‘assessments anymore’ fingers crossed closer to the time I get another 5 years. I won’t stop until I do anyway so makes no odds to me. but thanks anyway for all your advice. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    No problem.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 thanks for all your advice. I want to get my report from ATOS or the other health provider that had recommendations on it for PIP that was 3 years ago, Is it worth seeing if I can get a copy of it? can’t see them still having it but worth a try. Who is the other health provider for PIP apart from ATOS? thanks again for your replies.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You need to ring DWP for a copy of the report and not the health assessment providers.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 they gave me a reward letter only. I just had a paper based assessment. they accepted me on pip with evidence provided, so what do I need to say to them? also I’m hoping my doctor can give me a letter as I’m struggling with reading and writing and work want to fill a form in. making me very on edge.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    edited February 2020
    An assessment report will still have been written and you'll need to ring DWP to request the assessment report, known as the PA3 report in this case because it was a paper based assessment. I have no idea whether you'll still be able to receive a copy now but they will tell you if they still have it, most likely they will.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 hi. hope your having a nice Easter weekend, I’m due to get paid my pip on Tuesday 14th April 2020. I looked at my account as I thought it could of gone in yesterday but looks like nothing is showing as pending. guessing it will just go in on the Tuesday? just thought with it being a bank holiday it might go in early. If you can let me no that will be great thank you 
  • samfits99samfits99 Member Posts: 155 Courageous
    @thespiceman hope your having a great Easter weekend. Just a quick one if you can or can’t answer it. I’m due to get paid my pip on Tuesday 14th April 2020, I was hoping it would go in on Friday with it being a bank holiday Monday ect. Guessing it will just be Tuesday then? still not clued up with how it all works as I have learning difficulties. If you can get back to me that would be snacking :) 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @samfits99   Pleased to meet you thank you for message .

    Best wishes to you Happy Easter.

    If you having problems with getting PIP it be due to the situation COVID19.

    Please may I suggest hang on and wait just be tolerant and patient it will arrive, in your bank account.

    If your having any problems money or with food please get in touch can offer support.

    Understand the need for PIP there are going to be some problems with staff and issues surrounding the DWP.

    One thing I learnt a long time ago was a standby cupboard stores.

    If money is delayed will have enough to make meals with.

    Also put some money away just enough reserved in a safe place to use for emergencies.

    I have done this since being on benefits to my own personal circumstances.

    Being practical and sensible sometimes no benefit for three weeks certain problems, issues.

    I meant to ask scrolling looking at your recent posts.  Did you ever contact any of the charities mental health, mentioned this.

    Because the support workers would have mentioned reminders to you about Easter Holidays and anything to do with Pip Payments.

    Send you a text saying so, just an idea to consider.

    Please if I can help with anything else please ask.

    Please take care and safe.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • samfits99samfits99 Member Posts: 155 Courageous
    @poppy123456 still waiting on your reply ? thanks. 
  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    @samfits99
    Hi I'm not an expert in the  benifits side of things but I can imagine if you take alook at the gov. Uk it may have some information to help you. I've tried to copy the link below for you. 
     https://www.gov.uk/topic/benefits-credits
    I hope this is of some help. 
    Tammy 
  • davenichdavenich Member Posts: 7 Listener
    I am lucky my wifes mother deals with our esa and pip paperwork it can no wait is daunting

    Dave
  • samfits99samfits99 Member Posts: 155 Courageous
    @janer1967 hope your having a good Easter. I’m due to get paid my PIP on Tuesday 14th April 2020, I was hoping it would go in on Friday but looks like it’s going in on Tuesday as it’s not due in my bank till then. I thought with it being a bank holiday weekend it might go in early , does that seem right? if you can get back to me that would be great thank you 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @samfits99   Please can I add you seem to asking the same question to every one, I have replied as every one on this post.

    Same answer we have given you, is any point asking any one.

    Please if you can remember to try to plan ahead for any thing like this.

    I have given you links before on mental health charities and any thing else.

    The information is there to apply for and to use. If you chose to ignore this then problems like this could occur again.

    I am aware my own issues and problems regarding mental health no intent to be critical and harsh .

    I do have a heart but if you had applied got support and advice this would have meant support teams help you a lot more.

    Including suggestions ideas coping methods.  Send a text to you mentioning payments may be delayed and so one anything relevant.

    Not only that my suggestions get a diary make notes think and plan. Use it to organise shopping go around make a list of stock items food you have.

    Make a list of store cupboard standby and essential items groceries always in stores in your fridge or freezer.

    Include Milk, Eggs, Bread Products Muffins, Crumpets, all freezer friendly and useful.  Tins Beans any Baked or any ones mixed Beans.

    Porridge yoghurt alternative to milk stir in heated Porridge with water a touch then add yoghurt.

    Pasta Rice and Tin Tomatoes Pasta Sauces.

    Tinned Vegetables frozen Vegetables . Sausages or any cheap Chicken frozen Drumsticks fine.

    All these are meals to use and long time lasting if short of money or need to have to wait for benefits.

    I actually went on my banking website found my benefits been paid in later.

    Please try not to worry but obviously you are and understanding we are , need to try to cope right now.

    Please is there anything you need to cope or deal with. Offer a lots of food strategies mental health coping methods. 

    I know you mentioned anxiety panic attacks paranoia please if you continue to think of getting the symptoms of these attacks.

    By thinking negative anxious thoughts they become harmful and instead make you ill.

    Ear worms annoy me too I had similar to you but used the links to cope and the charities do a wonderful role.

    Please if you can look at what is available coping with mental health is a struggle it is all a problem, you can do this.

    Please if you can also look at every one links and information if you do think you going to be debt or have any other financial worries please ask.

    There are organisations I can supply the information, guidance to help you.

    Please take care and keep safe.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,489 Disability Gamechanger
    Hi @samfits99 as your payment is due on a tuesday, it will be paid in after the bank holiday, unfortunately not before :)
    Disability Gamechanger - 2019
Sign in or join us to comment.