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Sensation in hemiplegic hand

Hi Richard.
My daughter has hemiplegia and more recently developed epilepsy.
At the same time as the epilpesy started she began rubbing and shaking her hand as if she was experiencing uncomfortable sensations.
Unfortunately she also has severe communication difficulties, so is unable to tell us what the problem is, so l'm wondering if you could throw any light on this and, more importantly, suggest any ways we could deal with this problem to help make things more comfortable for her.
She is also very sensitive to sudden noises which make her bad arm jerk. Do you have any insights on that?
Very thankful for any help you can give.
Fede
Replies
Scope
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I have peripheral neuropathy which causes tingling, numbness, hot feeling and lack of sensation in the hands and feet. I find I constantly rub and massage my hands
Hopefully other members may help. Have you looked in the CP group on here
Thanks for posting and it's great to be able to talk with you.
I am not medically trained so that is the first thing I will say. The tingling and pins and needles you describe in your daughter's affected hand does sound very much like Carpal Tunnel. This will need medical intervention to treat. There are things that you can do to make it more comfortable for her. Keep the hand warm and try to encourage her to move the fingers and hand as much as is possible, this will promote better blood circulation.
Peripheral Neuropathy is not overly common in CP.
Your daughter's sensitivity to a sudden noise is something called Moro or Startle reflex. Some people that live with CP have this overly pronounced reaction to sudden noise or movement. The reflex is found in babies but people with CP do not lose it as the majority of people do.
Specialist Information Officer - Cerebral Palsy
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Ive only just come across this thread. I’m an adult with Hemiplegia. From my experience two things are common when I experience P&N
1. Nerve entrapments are common in CP
2. If muscle tone gets too high joints can be forced to pop out of position - so this might be why she is rubbing it. When your daughter hangs her wrist down is there like a dent at the top? As that how I know a joint in my wrist is out of alignment (aside from pain)
Is is it possible that your daughter might have injured her wrist during a seizure?
I’d recommend (under normal circumstances) seeking advice from an osteopath or physio - some are doing online consultations at the moment which obviously might help to alleviate concerns offer advice etc until you see the neurologist in June
Best
S