If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
Who has a invisible illness and how do you get through the day?

Any tips would be appreciated?
Replies
Tip? stay positive and smile x
For me, pacing can be really important. I try and break the day into tasks and factor n rest when need be. Also, I have a badge which asks for a seat while on public transport. I found this is a subtle way to get a seat and has worked really well.
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
I have the temporal type of Auditory Processing Disorder, which is a listening disabiliy, the brain not being able to process what the ears hear.
I have problems processing the gaps between sounds which can include the gaps between words in rapid speech, this is also the underlying cause of my dyslexia. other problems are poor auditory memory which can cause word recall problems, problems following and remembering multiple verbal instructions, not being able to follow long conversations, etc the list goes on lol.
Currently due to the lack of understanding by others regarding my communication disability i am almost house bound as i try to avoid the ignorance of others and the lack of understanding of the person i really am. Which is currently why I avoid meeting those i do not know.
Nights are even worse than days though, again I just break it up, max 2 hours at a time as that's how long the radio timer lasts. Eventually it gets through to morning and the day cycle starts again.
I can relate to how ibs can make you feel and I'm sorry you are struggling at night, I tend to struggle at night too.
Have you spoken to a professional about how you are feeling /pain. If you need someone to talk to feel free to message me. Please don't hesitate. There are lots of people here to talk to.
Take care.
I posted that 6 months ago although I do still use the same technique to get through the day. Nights haven't been quite so bad recently so that's a positive, but the days have got more difficult, particularly around food, meal times and going out anywhere.
I was in email contact with a couple of Professionals recently after years of no help at all, but sadly that contact has also dried up. The combination of problems that I have means the treatment of one issue is always stopped by another issue. We've been trying to find a way to break that cycle but not found anything suitable so far.
I don't really benefit from talking about my problems but I know lots of people do so thanks for the offer.