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Will the decision maker just go along with the report?

Sdag1973Sdag1973 Member Posts: 11 Connected
edited March 2020 in PIP, DLA and AA
Hi.
Just joined for some advice. I know these things have been asked probably a million times so please forgive me. 

I've had an ileostomy since 2016, an emergency procedure. Since then I've been in and out of hospital, sepsis several times, 18 major operations, full abominable restructuring, proctetomy, critical care coma, etc etc. Still have huge inoperable parastomal hernia, arthralgia which is being treated, PTSD with counseling referral etc. I had a PIP assessment recently and although I've not had a decision yet I have received my copy of the report and as I'm sure you'll all expect, it is full of inaccuracies and not a reflection of what was said at the meeting at all, which was a home assessment. It even says I haven't been in hospital in the last 12 months when I was in hospital in September through to November and had 7 emergency operations including sepsis and being in critical care an hour from death. That is just one of the major errors. It says I was relaxed and in good spirits, I was in tears..... points recommended are 2 overall even though at one paragraph it says I need help getting in and out of the bath but on the tick sheet it says I can wash with an aid so 2 points. When I sent my forms off I sent loads of letters and assesment reports from my hospital stays, my rheumatology specialist, Crohn's nurse etc etc which shows I have all these conditions and all hospital stays. I'm lost basically as to how all the evidence can be ignored and will the decision maker just go along with the report even though they already have reports to the contrary of what was said? 

If you've made it to the end of this post I thank you for your patience 😂😂😂 

Replies

  • chiariedschiarieds Community champion Posts: 6,895 Disability Gamechanger
    edited March 2020
    Hi @Sdag1973 - & welcome to the community. I'm very sorry to read about the assessor's report, & it's inaccuracies.
    The way forward now is to go for a Mandatory Reconsideration (MR) once you receive your decision letter, as usually the DWP Decision Maker goes along with the assessment. You will have one month from the date of your decision letter in which to apply for this MR.
    PIP is about how your disability affects you, & is not based on your medical condition(s), & sometimes less medical information is more. Sending lots of medical info, if it doesn't show how your medical conditions affect you, is unfortunately therefore sometimes unhelpful. Your medical conditions as stated on your initial claim form will not be in doubt, but do they show how your disabilities affect you?
    What may help you, is having a look at the 'descriptors,' & for any that apply, you would would need to write in your MR about the problems you had, giving examples that you had (at the time of your assessment) with a couple of examples illustrating these.
    So, please take the time to look through this lengthy link which will hopefully give you an understanding of the PIP descriptors. See: https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria
    An understanding of this will help you in writing your MR. I hope it does, but if you have any questions, please do say.


  • Sdag1973Sdag1973 Member Posts: 11 Connected
    @chiarieds thank you for your reply. I will look through the links thank you. I think what confused me is that I supplied letters from the specialists explaining how the conditions affect me daily plus the health assessor has written in the notes things like, needs prompting to drink which causes his dehydration and effects his fatigue making activities difficult, but then they've ticked I can take nutrition without prompting. Says on some days I cannot leave the house and if walking 200 metres would need to stop twice to rest due to pain, then ticked I can walk 250 unaided. It's filled with these conflicting points thats thrown me. 

    Thank you
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    Ticked the 250 metres box for moving around? Are you 100% sure of this? There's no box for the distance. box A is "Can stand and then move more than 200 metres, either aided or unaided"

    How much evidence did you send? Did you double check all the evidence for contradictions before you sent it? Sometimes when sending in lots of evidence like this then one piece may contradict another piece and yes a lot of the time, less is often more.

    When requesting the MR then you should put this in writing stating where you think you should have scored those points and your reasons why. Then add a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you.

    Please have a read of the link that my friend @chiarieds has posted above.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Sdag1973Sdag1973 Member Posts: 11 Connected
    @poppy123456 thank you for the information. 

    The report is the assessor copy and I haven't received the actual decision yet although as many people state, this will usually go with the health assessment recommendation. A glaring error is the repeated Statement that I haven't been in hospital in the last 12 months. I was in hospital from September for 3 months and had 6 emergency operations, had sepsis and was in critical care with an hour to live. I sent photos of my abdomen split open through the muscles where it split through pressure and sepsis with explanation of how this alone limits my functions and explained daily limitations, there's also the hospital discharge notes and surgeons notes. I also have my hospital notes and explained how all this has added to my existing PTSD from the numerous surgeries and complications. How can this be omitted? Then when it came to having the short bowel syndrome I explained the daily issues with this that effects nutrition which is more complicated than just grabbing a snack. 

    Maybe I'm rambling but it really has all kicked off my PTSD. 

    Thank you

    Si. 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Sdag1973   Pleased to meet you.

    Sorry to hear of your bad experience.

    Please can I add you mentioned PSTD.

    Have you ever considered looking at mental health charities.

    Reason is first got a support worker or an outreach worker to guide, advise and help you.  Also help with any thing else.

    Including benefits, attending assessments, filling in forms.

    Looking at your mental health, diet, nutrition  welfare, health.

    I used these three .  Might not be in all areas. Take clientele with additional disabilities or conditions.

    Often signpost  any relevant support or speak to those who may help.

    https://www.richmondfellowship.org.uk

    https://www.mind.org.uk

    https://www.rethink.org

    Please if I can help with anything please ask.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
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  • Sdag1973Sdag1973 Member Posts: 11 Connected
    Hi @thespiceman. Thank you. 

    I have been referred to a counselor and received small financial aid from a charity to attend. Just waiting to see the guy recommended by the stoma team. I did see an NHS counselor but didn't quite work out for different reasons, probably because I wasn't in the right mindset. 

    I appreciate your input. 

    Si 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I'm sorry to hear it's caused a worsening of your PTSD.

    Yes the report isn't a decision and i know you haven't had the decision yet but they rely heavily on the recommendations in the report and it's rare they go against but it can happen.

    Your hospital admissions doesn't tell them how your conditions affect you against the all of the PIP activities/descriptors.

    Once the decision's been made, if it's a refusal, which it most likely will be then if you can get some advice/help and support from either welfare rights, a law centre or your local CAB then i'd advise you to do this. Check this link to see what's local to you. https://advicelocal.uk/

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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