Cerebral Palsy and Coronavirus (COVID-19) — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Cerebral Palsy and Coronavirus (COVID-19)

Richard_Scope
Richard_Scope Posts: 3,178 Scope online community team
edited March 2020 in Cerebral palsy
Cerebral Palsy affects every individual differently that is why it is difficult to create a one size fits all guidance about the impairment and coronavirus.

If you have respiratory issues, like getting chest infections quite a lot. O
r are invited to have the yearly flu jab, you have swallowing difficulties normally, as some people with CP do, due little to no mobility, then you will be classed as having an underlying health condition. It is not the CP itself. 

Here are the latest Government Guidelines on Social Distancing and who should be doing it.

If you are still worried please contact your G.P. or 111

Scope
Specialist Information Officer and Cerebral Palsy Programme Lead

'Concerned about another member's safety or wellbeing? Flag your concerns with us.

Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
«1

Comments

  • tristan
    tristan Member Posts: 3 Listener
    Hi 

    Just looking for some advice on this really please
    Our 2-year-old daughter was recently diagnosed with mild CP (only last week) so this is all a bit new to us
    Should we be on full lockdown then?

    thanks

    Tristan 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi @tristan, welcome to the community.
    Without knowing your daughter or her history it's impossible for me to advise you of that.

    Please contact her G.P. or Paediatrician.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • tristan
    tristan Member Posts: 3 Listener
    Hi Richard - Many thanks for your reply - We are trying to get hold of him now - tristan 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    I hope you are able to get in contact with him soon, @tristan.


    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • tristan
    tristan Member Posts: 3 Listener
    Hi Richard - We managed to speak to the Paediatrician and due to her having such a mild case she would not be on the "vulnerable" list so good news there - thanks for you help its very much appreciated 

    Tristan 
  • Adrian_Scope
    Adrian_Scope Posts: 8,577 Scope online community team
    That's good news @tristan and must come as a bit of a relief. I'm glad you were able to get in touch with her paediatrician and that they were able to reassure you. 
    Community Manager
    Scope

    Tell us how to make the community better for you. Complete our feedback form.
  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @Richard_Scope
                                       Thank you for sharing this advice with us, it is greatly appreciated. Please take care and look after yourself. Thank you. 
  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @tristan
                       Thank you for getting in touch. I am so pleased to hear that you were able to get in touch with the paediatrician who was able to advise you. Please let us know if there is anything else we can help you with. Please take care and look after yourself and your family. Thank you.
  • Katy7
    Katy7 Member Posts: 1 Listener
    Hi,

    I hope you are all keeping well in these troubling times. I just wanted to know if I need to isolate for 12 weeks or not? I'm currently isolating as a relative has symptoms, and I think I may be starting to show symptoms. So obviously I will be isolating for the time being anyway. But is there a way to know if the recommended extended period of isolation is necessary for me?

    Thank you, Stay safe x
  • buffster72
    buffster72 Member Posts: 3 Listener
    Hi
    My son is 25 and has mild CP. He's also offered the flu jab every year - he also has hydrocephalus which is a medical condition so possibly the reason for him being offered the flu jab - or a combination of the two.

    At first I was really worried and upset when they extended the at risk list to include those with CP.
    The thing is, he's never suffered with any colds, flu etc any more than most people. Doesn't have weakened immune system, respiratory problems, is pretty robust etc. He works part time.
    My question is: should he take the precautions and social distance? He works in a shop *rolls eyes* so not ideal. But he/they are taking all the precautions. 
    Should he be telling his boss that he will be unable to work now?  
    He has various issues with his conditions but they are physical and mental as opposed to respiratory, weak immune system etc.
    Thanks in advance.
    Angie x


  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @buffster72
                      How are you? On the forum, we are not in a position to offer medical advice but would suggest speaking with your son's GP and asking for their advice regarding social distancing.  I hope this helps, take care and look after yourself. Thank you. 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Katy7 said:
    Hi,

    I hope you are all keeping well in these troubling times. I just wanted to know if I need to isolate for 12 weeks or not? I'm currently isolating as a relative has symptoms, and I think I may be starting to show symptoms. So obviously I will be isolating for the time being anyway. But is there a way to know if the recommended extended period of isolation is necessary for me?

    Thank you, Stay safe x
    Hi @katy7
    As you and a relative are showing symptoms it is vital that you self-isolate for 14 days. 
    The extended period of isolation, 12 weeks, is recommended for people at high risk and the NHS will contact these people by letter. More information about this can be found on the NHS COVID-19 Conditions page.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi
    My son is 25 and has mild CP. He's also offered the flu jab every year - he also has hydrocephalus which is a medical condition so possibly the reason for him being offered the flu jab - or a combination of the two.

    At first I was really worried and upset when they extended the at risk list to include those with CP.
    The thing is, he's never suffered with any colds, flu etc any more than most people. Doesn't have weakened immune system, respiratory problems, is pretty robust etc. He works part time.
    My question is: should he take the precautions and social distance? He works in a shop *rolls eyes* so not ideal. But he/they are taking all the precautions. 
    Should he be telling his boss that he will be unable to work now?  
    He has various issues with his conditions but they are physical and mental as opposed to respiratory, weak immune system etc.
    Thanks in advance.
    Angie x


    Hi @buffster72
    People who are in the at-risk group and need to isolate for 12 weeks should be contacted by the NHS. More information about this can be found on the NHS COVID-19 Conditions page. 
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Julianos1969
    Julianos1969 Member Posts: 1 Listener
    Hi
    I am 50 years old I have Mild CP, but due to back pain, club feet, wear and tear on my spine, I use a Manual Wheelchair. I also have High Blood Pressure and Cholesterol issues, but it is controlled by medication.
    Do I have to self- isolate
    thanks

    Julian  
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi @Julianos1969,  People who are in the at-risk group and need to isolate for 12 weeks should be contacted by the NHS. More information about this can be found on the NHS COVID-19 Conditions page. 

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Bazalad
    Bazalad Member Posts: 21 Connected
    People are saying 12 weeks, but I personal think it might be longer but I am hoping to be wrong
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    @Bazalad, I hope you are wrong too. How are you?  

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • AlexW_Scope
    AlexW_Scope Scope Posts: 220 Pioneering
  • Welli
    Welli Member Posts: 6 Listener
    Hi Everyone on the Scope help team. 

    I am living with CP and have done so since birth.  Whilst I understand that you are not able to provide medical information for individuals I am wondering how you can help me go forward with what I feel is now becoming a major issue.  Not only am I living with CP I am now a full time wheelchair user also living with asthma.  Each year I am invited for a flu jab despite knowing that I am not able to have them due to having an egg allergy.   I also have several chest infections throughout the year. 

    My concern is, that whilst I received the txt msg regarding the lock down, I have not officially been classed in the shielding group.  As advised on the NHS website, people who feel that they have been missed off the list for shielding, should ring their surgeries.   I did, to only receive an unhelpful response.

    I self isolated 4 weeks ago today and still no letter.  Not being on that list of shielding has caused me problems in accessing shopping.  All the charities and organisations are rightly so, requesting proof as it were of their eligibility to assistance, I have none.  I have written to my local newspaper with regards to how probably millions of other people have been inadvertently been missed from the list of shielding, this has today come to light to be the case.

    If there are any further steps you feel I could take, I would be most appreciated to hear them.  I am still fighting this and will continue to do so because unfortunately,  it has been said that this situation will unfortunately get heaps worse before it gets better.

    Thank you so much for being here :) you are all heroes. 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi @Welli, it's really good to meet you! 
    From the information you have given in your post It does appear that you should have received a shielding letter. It's my understanding that a second mail drop of letters is imminent, in an attempt to include the people that were missed when the letters first went out.
    In terms of further steps, we have some useful information about Food and Essentials during Coronavirus
    You are not alone in this, please keep in touch.

     
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 

Brightness

Complete our feedback form and tell us how we can make the community better.