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What is PIP meant to be spent on

I'm 16 and get pip I think I get £400 a month but I'm not sure because my mum is my appointee so she looks at the letters.. she says that the reason they give me £400 is because some of it is meant to go to her and is meant to be for her and her rent is this true? She takes £160 a month so does £160 belong to my mum like she says and if some of it should go to her how much exactly? Thanks for any help I dont mind giving her some but don't want her to lie and take more than she's allowed as it makes me ocd and i don't even think she needs it I'm trying to save and buy essentials at the same time and I pay for a friends petrol when they take me places too
Replies
Disability Gamechanger - 2019
I wont comment much more then that, because I dont know the legalities of how appointees, work, but just be aware, living on your own is incredibly difficult in care needs and financially as well. My living costs vastly outweigh £160 a month.
I'm sorry to hear your mum has been withholding some of your PIP money. Legally the money is yours and you should be paid the full amount.
If your mum was to need the money to cover extra disability related expenses, this must be an agreement between you both, rather than something that is done without you knowing.
You are not selfish and are entitled to that money.
If we can support you to have these conversations or where to seek advice then please do let us know.
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Sorry but sounds to me like she is Blackmailing you. My son is nearly 16 and we've just transfered him onto PIP - he's been getting DLA since 4 basically. However we've also be getting the following added to the Universal Credit since we switched over to it.
Disabled element - £126.11
Carer's element £160.21
Getting £286 deducted a month but that's because we claim Carers which is £264 a month - he's also been getting £234 DLA since he was 4.
If we didn't claim carers - That £286 would go back on - so it's horses for courses
However - everything is going up and this extra £80 is only for a year (the 1.7% is seperate and permenant.
Anyway long story short - your mum can be and should be claiming carers etc and if she already is that's good - but in any case, even as your appointee she has no right to control your money to the extent she is, as I said she is virtually blackmailing you.