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Advice needed ASAP PIP

sarahmaccssarahmaccs Member Posts: 25 Connected
Good morning everyone,

hope you are all doing well. my PIP is going to get reviewed August / September time. I contacted PIP about going forward and they stated that I have a xtra 6 months on top of my claim date? does this sound right. despite my claim being for review in August time. just couldn’t see why they would give me a xtra 6 months. if anyone can reply I would appreciate it. 

Replies

  • AlaAla Member Posts: 18 Listener
    Hi,
    Sorry I can't help here, but you gave me some confidence to phone them too. 

    I really thing, we should try to get Scope, other charities and our MP's to advocate that all reassessment are STOPPED until the Tribunal backlog is cleared.  Last time I've waited 2 years for a Tribunal.  After tribunal it took 3 months and over 25 phone calls  to get my PIP and SD premium back.  
    I will not make another 2years or over of hardship and awaiting Tribunal related mental torture...

    My award ends in October.  Have the same question, what now?
    How we obtain any medical evidence, or even for paper/phone assessment contact our disability advisors.  
    I've recently cancelled blood test - too scared to go to surgery.  Blood test was needed to be re-refered to specialist.  It takes months to see them.  I'm worried my 2015 specialist letters could be dismissed - even there is no improvement in my health.

    I am too scared to make over phone reassessment - they twisted all I tell them against me the  last time.   The paper one - I still need help from my Disability Advisor - but how to I go to see them - if I am self-isolating?

  • wilkowilko Member Posts: 2,182 Disability Gamechanger
    @sarahmaccs, hello and welcome, as the whole country is in lock down and no face to face assessments are taking place your review like mine and many others require a F2F assessment to ensure our award is valid and justified. Now knowing you have this six month extended award time I am advising you and any others start preparing information, evidence and putting together a file of the documentation that will support your  continuance of your award after your F2F assessment. These will and should include all up to date diagnosis, medical information, and any reports from health professionals who are or have been treating you during the last 12 to 18 months prior to your F2F assessment. This will save you panicking and stressful situations waiting on others to provide the documents in a short time space. 

  • sarahmaccssarahmaccs Member Posts: 25 Connected
    @wilko thank you for replying to my post I highly appreciate it. 😊 I have spoken to PIP and they have said my letter for ‘review’ won’t come till Sep / October time. my condition has got worse .... and legal advice was given to me that I should be entitled to more than I’m currently getting, is it worth sending more evidence off now ? or would you just suggest wait till I receive the letter? as I’m confused what to do. in respect to F2F assessments I cannot attend any, DWP said my assessment is not needed and they will either do a paper based assessment or extend my award. which is good! as I have my reasons why I cannot attend any assessments. I have got loads of evidence ( all recent ). which is all in a file as we speak. 
  • woodbinewoodbine Member Posts: 2,893 Disability Gamechanger
    Hi @sarahmaccs what rates are you on currently for care and mobility?
  • sarahmaccssarahmaccs Member Posts: 25 Connected
    I’m on higher rate for care. 
  • sarahmaccssarahmaccs Member Posts: 25 Connected
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sarahmaccs Pleased to meet you.

    Please if I can suggest if you have a disability advisor speak to her Email.

    As with any assessments will be by phone please think about asking for support with this.

    If this means a support worker or a health worker.

    If they should be advising you all the time part of their role.

    Text or Email or phone.

    Also one final thing is it always a good idea to have a clear precise report or information to help the assessor.

    If you give a file or long pages assessors may not read it all.

    Make references, points around each descriptor how the tasks and duties effect you.

    Not the disability the illness or condition looking at but how these are causing any of the descriptors the problems.

    As if they might attend with you due to COVID 19 either at an office taking the call on the phone or your home would have to discuss that with them.

    I do not know the criteria for such visits.

    Please if I can help further any questions, please ask happy to help.

    Please wish you a positive outcome.

    Please take care .

    @thespiceman


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  • woodbinewoodbine Member Posts: 2,893 Disability Gamechanger
    @sarahmaccs sorry just come back on, so you don't get any mobility component? I would wait until your review is due if I was you, legal advice that you might get more is subjective, its the assessors and DWP's opinion that counts, if you go for a change of circumstances now you do risk losing what you already get.
    Hope that helps?
  • mikehughescqmikehughescq Member Posts: 5,334 Disability Gamechanger
    edited April 2020
    Can we kill the “you do risk losing what you already get” line please @woodbine? This is dangerously wrong.

    Is there a risk? Yes.

    Is it a higher risk now than it would be at renewal/review? Nope.

    How real is that risk? Nobody on a forum without access to the claimant and their full file can possibly say

    What we can say is next to no-one loses what they already have. DWP stats hear that out repeatedly. It’s paranoid myth making of the worst kind as it puts people off who may legitimately have grounds for challenge right now and who might otherwise miss out on months of money. 

    @sarahmaccs simply needs to get face to face advise in order to assess how small the risk is and they can then make a decision informed by professional judgement rather than speculation. 
  • woodbinewoodbine Member Posts: 2,893 Disability Gamechanger
    I stick by what I said you can agree or disagree and the OP can take my advice or ignore it, there is always an element of risk that is fact, and I don't like being talked down to in that manner, it is not paranoid myth it can and yes does happen. I've been around the benefits system long enough, and its a shame that scope are allowing people with experience to disappear from its forums.@mikehughescq this is the first time in 18 months I have seen you answer a single benefits question.
  • mikehughescqmikehughescq Member Posts: 5,334 Disability Gamechanger
    edited April 2020
    woodbine said:
    I stick by what I said you can agree or disagree and the OP can take my advice or ignore it, there is always an element of risk that is fact, and I don't like being talked down to in that manner, it is not paranoid myth it can and yes does happen. I've been around the benefits system long enough, and its a shame that scope are allowing people with experience to disappear from its forums.@mikehughescq this is the first time in 18 months I have seen you answer a single benefits question.
    I’m more than happy to apologise if that’s how you feel. I’m not sure what your comment about “people with experience” refers to though.

    Nor have I denied there is an element of risk. What I have said very clearly is that the risk you describe is usually close to negligible and no-one on a forum can advise on the actual level of risk. That includes both of us. You explicitly said 
    woodbine said:
    ... if you go for a change of circumstances now you do risk losing what you already get.
    That is a clear assertion of the level of risk rather than a statement there is a level of risk and further advice is needed. It is misleading and scare-mongering for the reason I’ve carefully explained. DWP stats - https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/873332/pip-statistics-to-january-2020.pdf  - and indeed the many many posts in this forum bear that out. I can recall maybe one post in 4 years where someone described that scenario and they described having completely messed up the process rather than some random removal of enhanced rate.

    The DWP stats show (page 11) that only 11% of successful claims go on to do an MR and, 75% of those come out of MR with their award unchanged. I made that 25% with awards which changed so, at best, 2.75% who might have lost something and had to go to appeal. However, as that 2.75% includes people for whom some, but not all, of their award had risen so they still wanted to appeal I think it’s fair to put the risk of losing “anything” at the MR stage at less than 2.75%. The risk of any of them losing “everything” as you suggested is thus considerably less than 2.75% before anyone goes on to assess the risk to that specific individual. 

    Those stats are of course for MR not a change of circs review which is what this case would be about. I’ve seen no evidence to suggest the stats would be any different.

    As regards the sentence “ this is the first time in 18 months I have seen you answer a single benefits question.” I’ve no idea what that actually means. Feel free to clarify.

    I make a point of pointing people in the right direction and maybe correcting inaccuracies when I spot them. I’ll also go out of my way to challenge prejudice etc. One to one advice is something I’m not permitted to do however so it’s a bit weird being critiqued on that specific point.
  • AlaAla Member Posts: 18 Listener
    Hope you well.   After your post, I've decided to give the DWP - PIP call this morning.   Apparently, upcoming review/renew claimants will be given the extra 6 months  - standard extension.   That's what I've been told today, too. 

    They have me too, as others, in a constant panic and mental torture state with all the unnecessary reassessments...

    So hopefully we all have, the extra 6 months to sort things out!
    Good luck!
  • sarahmaccssarahmaccs Member Posts: 25 Connected
    @Ala thank you for getting back to me. They said to me I should get my review letter around September, but the lady on the phone 6 I will get 6 months on top of that so I’m happy. call again to double make sure , and they confirmed it again 😊
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