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Hi, my name is adamskis!
adamskis
Member Posts: 64 Pioneering
I am constantly bothered by Ehlers-Danlos syndrome, which seem to have shared many of its fun traits with me.
as a male in his 50s I am finding that it is affecting me more and more. I know it isn’t degenerative as such, but various elements seem to be moving to the fore as tears tick on.
five years ago I was competing in triathlon, now I can hardly walk without a stick, and , distressingly, recently have had days when walking just wasn’t happening.
I was blessed with various of the heart conditions...pacemaker installed... but they are not healing any time soon, but the big ones for me (other than hugejoint and bowel issues) has having cerebral fluid leak and a bunch of TIAs that left me with some fairly reduced cognitive ability, focal epilepsy, and severely restricted peripheral vision and almost no colour vision. These resulted in losing my driving license, job, and almost all confidence.
i am learning to make guitars, clocks, and various other wood projects...as I can do these when I am okish, and they will be there waiting to be finished.
i would like to use this group to have somewhere to feel normal for once.
Good to be here, and thank you for listening.
as a male in his 50s I am finding that it is affecting me more and more. I know it isn’t degenerative as such, but various elements seem to be moving to the fore as tears tick on.
five years ago I was competing in triathlon, now I can hardly walk without a stick, and , distressingly, recently have had days when walking just wasn’t happening.
I was blessed with various of the heart conditions...pacemaker installed... but they are not healing any time soon, but the big ones for me (other than hugejoint and bowel issues) has having cerebral fluid leak and a bunch of TIAs that left me with some fairly reduced cognitive ability, focal epilepsy, and severely restricted peripheral vision and almost no colour vision. These resulted in losing my driving license, job, and almost all confidence.
i am learning to make guitars, clocks, and various other wood projects...as I can do these when I am okish, and they will be there waiting to be finished.
i would like to use this group to have somewhere to feel normal for once.
Good to be here, and thank you for listening.
Replies
The fact that you make guitars and clocks is fascinating! I'm sure you enjoy it. My husband enjoys making wooden objects also and has made some coasters and plaques. I look forward to seeing your works of art in the future if you would like to share your pics of them.
I'm sure you will make a very valuable contribution to the Community and I look forward to seeing you on here. If we can be of any help/support to you at all then please just let us know. All the best.