Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Myasthenia gravis

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littlechef
littlechef Community member Posts: 66 Courageous
edited April 2020 in Coffee lounge
Hello I'm now on hear and was wondering if anyone suffers from myasthenia gravis I would love to have a chat. 

Comments

  • Han_
    Han_ Community member Posts: 151 Pioneering
    edited April 2020
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    Hi @littlechef, I don't have myasthenia gravis but just wanted to say hello and welcome to the forum  :)

    Please feel free to introduce yourself here.

    Han
  • littlechef
    littlechef Community member Posts: 66 Courageous
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    @Hon
    Thank you for your welcome to the forum I'm pleased to meet you hope we can catch up soon .
    Stay safe my friend .
  • littlechef
    littlechef Community member Posts: 66 Courageous
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    @Han_.
    Thank you for your welcome to the forum I'm pleased to meet you hope we can catch up soon.
    Stay safe my friend .
  • Han_
    Han_ Community member Posts: 151 Pioneering
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    @Han_.
    Thank you for your welcome to the forum I'm pleased to meet you hope we can catch up soon.
    Stay safe my friend .
    Hi! Pleased to meet you too and thank you, I hope you stay safe too.
  • littlechef
    littlechef Community member Posts: 66 Courageous
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    @Han_.
    Hello again Myasthenia Gravis is rare conditions it effects your muscles eyes and breathing you could end up in a wheelchair and if breathing gets to bad it's call a crisis and you need hospital treatment urgently . 
    Keep your self safe look forward to chatting soon .Take care 
  • Han_
    Han_ Community member Posts: 151 Pioneering
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    @littlechef thank you for explaining that to me. How are you feeling with the current covid-19 situation? 
  • littlechef
    littlechef Community member Posts: 66 Courageous
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    @Han_
    Been in self  isolation for 5 wks and going for small walks but received a call last week from doctors telling me I'm at a very high risk so can no longer go out only in my back garden, but I'm doing my best to stay safe, how are you feeling and coping with this situation it's not nice will be glad when it's all over. Stay safe. 
  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
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    Hi @littlechef, lovely to meet you. I hope you are doing okay in lockdown. :)
    Scope

  • littlechef
    littlechef Community member Posts: 66 Courageous
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    @Chloe_Scope
    Hello dear friend how are you copping with this lockdown are you in self isolate or have you been put in shielding , it's difficult times for us us all ,the only thing we can do is stay safe .I'm having some breathing problems but told need to see my neurologist who should be calling me next week.fingers crossed .
    Hope you are well please stay safe .
  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
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    I hope your appointment goes okay next week @littlechef! Stay safe. :)

    Scope

  • Han_
    Han_ Community member Posts: 151 Pioneering
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    @Han_
    Been in self  isolation for 5 wks and going for small walks but received a call last week from doctors telling me I'm at a very high risk so can no longer go out only in my back garden, but I'm doing my best to stay safe, how are you feeling and coping with this situation it's not nice will be glad when it's all over. Stay safe. 
    I'm glad you're able to stay safe and that you have a back garden also. I hope your appointment with your neurologist goes well. 

    I am also mainly staying at home, going for walks occassionally. Thanks for asking!
  • Han_
    Han_ Community member Posts: 151 Pioneering
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    Hi @littlechef, how are you doing? 
  • Jo07387
    Jo07387 Scope Member Posts: 2 Listener
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    Hello I’m new here. I wondered if anyone has been admitted urgently for MG swallowing problems.  Thus far my MG has been only occurs.  I’ve had 5 days IVIG treatment and have been an inpatient for 9 days now. I had a minor op under general anaesthetic 11 days ago and have 5 other autoimmune conditions. Any comments/ advice  appreciated. Thanks
  • Tori_Scope
    Tori_Scope Scope Posts: 12,508 Disability Gamechanger
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    Welcome to the community @Jo07387 :) Thank you for joining us! 

    This post is a few years old now, but I hope that someone with a similar experience to you will see and respond to your comment soon.

    I'm sorry to hear that you've been unwell. How are you finding the IVIG treatment? 

    National Campaigns Officer at Scope, she/her

  • Jo07387
    Jo07387 Scope Member Posts: 2 Listener
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    Hi Tori  The ivig worked very quickly for me and I now feel back to normal almost. No side effect from infusions apart from headache.  NHS were fantastic and started treatment as soon as I arrived in A&E. though still waiting to be assessed before discharge. Thanks for forwarding the attached
  • Tori_Scope
    Tori_Scope Scope Posts: 12,508 Disability Gamechanger
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    That's good to hear @Jo07387 :) Do you know how long it might be until you can have the assessment? 

    National Campaigns Officer at Scope, she/her

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