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cobs81 Member Posts: 1 Listener
hi all I have been recently diagnosed with cfs/me as I have all symptoms but o have been struggling to fine people with m.e that  have the same perment vision issues as me. But I have now talked to some one who had Eds and has the same problems as me so just wanted to no if this is common with Eds.  here is how I would explain my vision" (I have trouble focusing between far and close objects, also experiencing a kind of constant mild double vision as if my eyes aren't "synced", same for tracking and reading text. 
Rapid Movement on TV or screen makes me dizzy as well as subtitles.) just instead in any info that could help. 



  • mikehughescq
    mikehughescq Posts: 8,847 Connected
    It wouldn't be appropriate for anyone here to diagnose that. I would recommend an initial conversation with your GP and they may recommend a referral to an eye hospital. Kyphoscoliotic EDS is known to have an impact on eyes but your other symptoms may be indicative of many things so you need medical advice not lay advice and speculation. 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 12,265 Disability Gamechanger
    Hi @cobs81 - Welcome to the community, & thank you for joining. I have the hypermobile type of EDS, which is the most common type. Visual problems are not mentioned much in EDS other than myopia, which is common in the general population, & strabismus, where your eyes focus in different directions, which is more common in EDS than the general population.
    All I can suggest, when this is possible once more, is to see an optician to discuss your concerns.
    We have other members that have the same type of EDS as myself, so perhaps they may mention their personal experiences. I have done a lot of research about EDS, so I'm just saying what I have found. :)


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