From DLA in definately to PIP

CarolAnn1953

Hi everyone. Ive just been assessed by the PIP person at my home and was sat down the whole time she was there asking questions and tapping away on her laptop. My daughter was there with me for support. I have osteoarthritis in both knees and on a scale of 1-4 and 4 being the worse mine is 4. That was quoted from the doctor who injects them every 6 months.
Also I have a bulging disc in my spine and and am in constant pain 24/7.
And am awaiting going back to pain clinic for 6 facet joint injections and a epidural which gives me some relief for about 6 months or more. 
Because I can't walk far I was put on enhanced rate of mobility so I got a car motorbility. 
They. Have not given me enhanced rate only standard rate as she states I can walk 20 metres but no more than 50.
I can just about walk to my car and I have to stop because of the pain. 
I rang them and queried this and he was a nice man he said he would send a form to me for them to reconsider and get a letter from the doctor to support this which I'm waiting on both. I can't understand is it because I'm 67 and they think I'm passed it. Please has any body else been through this?? I'm finding it so distressing my psoriasis has come back on my scalp terribly. 

OverlyAnxious

Hi Carol, a lot of people do find themselves in the same situation unfortunately, you'll see plenty of similar posts about it on here!  It's nothing to do with age, it's partly to do with the differences between PIP and DLA, but also because each assessor seems to interpret things slightly differently.

All you can do now is continue with the Mandatory Reconsideration - in your case that will hopefully be enough to get back to enhanced.  If that doesn't work, you then have the option to go to tribunal.

It's worth noting that PIP is not about your diagnosis though, it's purely about your reduced ability to do things due to the conditions.  So you will need some specific proof that you are unable to walk more than 20 metres to support your claim.  I'm not sure if a Doctors letter will be enough to do that.  Do you have any sort of Physio that might also be able to confirm your reduced mobility?  Or a partner, friend or relative that knows you well can also write a supporting letter as well.

CarolAnn1953

My gp is writing a letter and I am a cronic deppresion since I was 16. My daughter was there at the assessment and told her I need help with bathing and occupational health have agreed to put in a shower or wet room for me. She didn't see me stand I was sat for the duration

Chloe_Scope

Hi @CarolAnn1953, really sorry to hear the pain you are in and the impact that this has had.

@OverlyAnxious has given some great advice that I hope will help.

Here is some information about the Mandatory Reconsideration.

Please do let us know how you get on and if we can do anything else to help.  

Cressida

@CarolAnn1953. Sometimes if you have an appointment in the future for treatment which might improve your condition they take that into account? Maybe they think the injections will make you more mobile as you stated that it gives you some relief. Good luck with the MR. 

suzannah17

Did you say they came out today? I thought they stopped face to face even scheduled appts and was doing telephone?

Cressida

@suzannah17 maybe they are still doing some home visits in some areas?

suzannah17

Cressida said:

@suzannah17 maybe they are still doing some home visits in some areas?

Not calling her a liar, just curious as online it says DWP have stopped them from 24th or 16th March for 3 months I’d like them to come out to me lol  

CarolAnn1953

They made their decision in April I had Assessment in February and Applied in September 2019!

Cressida

@suzannah17 it may depend on the area you are in. I thought they had all stopped home visits as well but it might be worth phoning them and asking if it's possible. With the lockdown loosening a bit they may have changed this. 

suzannah17

CarolAnn1953 said:

They made their decision in April I had Assessment in February and Applied in September 2019!

I’m a bit confused, (sorry I have autism) post says it was put up today.. did u have ur assessment in April or today lol

CarolAnn1953

February!!! 

CarolAnn1953

ASSESMENT in February 

suzannah17

CarolAnn1953 said:

ASSESMENT in February 

Jesus calm down no need to be rude. I have a processing functioning disability sorry for not understanding !! U witch no wonder u didn’t get what u wanted maybe she see right through you

CarolAnn1953

Please don't leave any more comments. It's not my fault you didn't understand the way I wrote. I wish you well. Oh and I'm not a witch I found that very cruel to say that. Keep well. 

suzannah17

I’m not going to reply no more, but I don’t wish harm on no one so I wish you well to, your just pure arrogant. And a slight tip you may believe your entitled to more but in reality you just got to accept it and take what you get! I’m 18 your 57 and unfortunately it seems like I’m more mature. Goodbye hun x

CarolAnn1953

I've got a crumbling spine dear. And I'm 67.Lets not be disrespecting each other. I thought this Scope was supposed to be a friendly site as we've all got some kind of disability. Oh and I'm a cronic depressant and have bipolar since age of 16.

woodbine

Please keep it friendly, non of us has any right to be unpleasant.  @CarolAnn1953 it is possible they took into account that an upcoming epidural would help with the pain for six months or so. I know they did when my OH used to have them.

Chloe_Scope

Please do remember the community guidelines and be respectful of each other.

Bare in mind it is very easy to misunderstand text which is no ones fault. We strive to have supportive network and you are both very welcome here.

CarolAnn1953

I don't want to be in this any more. My own family and friends have never disrespected me and called me names like Susanah18 did. I thought we were here for each other so how can I leave this app please

CarolAnn1953

Suzannah 17 sorry I got name wrong

suzannah17

CarolAnn1953 said:

I don't want to be in this any more. My own family and friends have never disrespected me and called me names like Susanah18 did. I thought we were here for each other so how can I leave this app please

I never called you a witch . The sentence was meant to say ‘witch, no wonder why’, and arrogant isn’t a hurtful name . I just didn’t like it that you had no consideration for myself not being able to mentally understand you and you brushed it of saying not my fault, well it’s not my fault I was born with health conditions I don’t want to be disabled. As for the crumbling spine and depression I’m 18 and had extremely severe anxiety and depression and psychotic episodes since 15, I have autism, severe level learning disabilities, global development delay, fibromyalgia, CFS/ME, osteoarthritis all over my body and scoliosis and degenerate spine all confirmed in black and white. I’ve been raised to respect my elders but you wouldn’t like it if I started saying I don’t care about your back or depression so don’t disregard my disability like it’s fine to. Sorry if I upset you but that’s the reason, you got no need to leave as you get very good advice on here I personally don’t want you to feel you have to leave - as no one should. I said sorry, just move on and forget about it I’ll be the bigger person. Just in future when you come across a person with such problems don’t speak to them like there stupid then say it’s not my fault .. good luck with your claim and hope you get some peace soon ❤️

Chloe_Scope

CarolAnn1953 said:

I don't want to be in this any more. My own family and friends have never disrespected me and called me names like Susanah18 did. I thought we were here for each other so how can I leave this app please

If there is anything further we can do to support you then please do let us know. 

Please feel free to put the kettle on and have a chat in our coffee lounge with other members. 

If you still would like to remove your account then you can do so by emailing [email protected]

Hope you both have a lovely evening.

mikehughescq

CarolAnn1953 said:

I rang them and queried this and he was a nice man he said he would send a form to me for them to reconsider and get a letter from the doctor to support this which I'm waiting on both. I can't understand is it because I'm 67 and they think I'm passed it. Please has any body else been through this?? I'm finding it so distressing my psoriasis has come back on my scalp terribly. 

Poor advice from DWP. You can start a mandatory reconsideration over the phone and you absolutely don’t need, and likely won’t benefit from, a letter from your GP

chiarieds

Hi @CarolAnn1953 - I just wanted to say that I've just seen this thread, & yes, Scope's online community is both friendly & supportive, & we do care about each other. Having joined, you are a most welcome member of this 'family.'

Unfortunately the meaning of emails/texts can be mis-interpretated, which is not usually the intent. Misunderstandings rarely happen here. Please reconsider, & stay. Everyone is welcome, no matter what their disability, & the Scope team work rigorously to keep this a good & safe place to be. My best wishes.

CarolAnn1953

Thankyou Chiarieds x

chiarieds

You're very welcome @CarolAnn1953

katho31

hi everyone, ive finally got through to the dwp after many days of trying by myself and my case worker  the lady on the phone was a little abrupt but I kept myself calm!!! my pip claim has been passed to the assessors, she wouldn't say when this was passed to them, I am now just waiting for their decision, wish me luck please, hope you are all managing to stay safe as well as you possibly can, ill update as and when I hear anything.

CarolAnn1953

I sincerely hope all goes well for you. I am asking them to re consider my application for PIp (changing over from DLA in definately) as they haven't put the enhanced rate just the standard. It does take a good few weeks for your claim to be assessed but I wish you well and hope you get what you're entitled to. X

katho31

thank you thats very kind, i hope you get good news and that it doesnt take too long