DLA for a child not sleeping

Jeanie_Zz

I hope it’s ok to jump right in and ask questions.
My question is about DLA for a child. I tried speaking to cab but they weren’t very helpful and basically said not to apply because we’ll get turned down because she isn’t “disabled”. They’re probably right but I wondered if anyone here has experience of toddlers and DLA? 

A bit of history; I have 4 kids so this isn’t exactly my first rodeo. I know all kids are different but as a parent you get a feel for what’s normal and what isn’t.

My youngest daughter just turned 2. While she isn’t disabled as such I’m wondering if I can apply for DLA based on her extra care needs. 

She’s still yet to sleep through the night which I know in itself isn’t too abnormal. But the longest period of sleep she’s ever had is an hour. Then takes an hour of comforting and resettling before she finally naps for another 20or so minutes and start again. The reason for this is because of her allergies and reflux. She’s under a paediatric dietician and has a lot of food allergies and foods she can’t tolerate. We’re still having to eliminate things as although we’ve determined the key causes she’s still not right, often in a lot of discomfort and we’re also are working with an allergist to determine the environmental allergies that also are affecting her. 
All night every night she’s writing in pain with her stomach and reflux. To to mention (and sorry for too much info) her horrendous toilet habits. She poops around 10 times a day, diarrhoea. Sometimes with blood sometimes without. She needs so much extra reassurance with food, toileting and extra comfort generally, and obviously someone awake with her pretty much 24/7 comforting and massaging her tummy etc. 
We also have to be so careful with food and ingredients, and when we’re out as she’s contact allergic. For example we went to child’s play centre about 6 months back and she came up in hives in the ball pond, possibly to food or something someone else had brought in their or eaten before playing.

Cab said because she’s not disabled she won’t get DLA but I wondered if they take any of this stuff into account? Or would it be a case of “well all toddlers require extra supervision and don’t sleep well”.

I know in my heart she has care needs above and beyond what any of my other kids had/have but I don’t know how DLA works. All advice welcome! 

janer1967

Hi and welcome to the community, Im no expert on DLA for children but as a starting point I would look up what the descriptors are that they score against and see where you think your daughter would score points before deciding to apply. You should be able to find these on the gov website or through google.

I hope someone else may have more information for you

steve51

Hi @Jeanie_Zz

Good Afternoon & Welcome it’s great to meet you today?

I’m one off the Community Champion’s here at Scope.

We are all here to help & assist any new members.

Currently DLA is being fazed out & it will be replaced with a new benefit called PIP.

We have got a “Benefit Calculator” on our site where we can put your child’s details in & it will let us know what Benefits are available for your child.

Please please let me know how you feel???

@steve51

steve51

Hi @Jeanie_Zz @woodbine

I am very very sorry but I was under the impression that dla was eventually going to be fazed out sorry again.

@steve51

chiarieds

Hi @Jeanie_Zz - Welcome to the community from me too. Of course it's fine to ask questions straight away, & we'll all do our best to answer them. I'm sorry to read about your little girl's problems. A child doesn't need to be considered 'disabled' to get DLA. It certainly sounds like she needs more care than a child without her problems. To be eligible your daughter would need to be expected to have these problems for a further 6 months. It would be helpful if you could get some input from her dietician to corroborate if this is the case.

You can have a look at the claim form here: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/788242/dla1a-child-interactive.pdf

& also use the helpful link woodbine has given, especially about filling in the form. The CAB might not have been helpful, but their website is!

Kindly keep in touch, & let us all know how you get on. If you have any further questions at any time, please just say. Also do use this forum to just chat, as there's usually someone about.

steve51

Hi @woodbine

Many Thanks.

Yes they don’t get any easier.

Sorry again ?

thejollyroger

Hi, your child sounds ill to me.
can you let your doctor have a look at her? The doctor will be able to tell you if you stand a good chance of receiving DLA or not. To get your doctors backing for claim is vital, so get it in writing what her ailments are and how they affect her and you.
hope this helps.

chiarieds

Apologies @Username_removed , I was trying to be diplomatic here. I saw no need to say DLA for children wasn't due to be phased out, nor that it wasn't based on descriptors. I hoped by giving a link to the form this would of itself be self explanatory. I nearly mentioned only the care component could be claimed for a child under 3, but again, the form detailed this.

I must admit I didn't read all the way through the CAB's website link, but did note it gave a link to Contact's info on DLA, which incidentally is just slightly more recent than the link you gave.

I was in touch with Contact a Family/Contact a long time ago about my youngest daughter, hence why I noticed their link.

I take onboard your advice as always, & that representation is needed in 'probably' most cases. Playing Devil's advocate here, but my youngest daughter had such severe breathing problems from birth that she needed a tracheotomy at 1 week old. I didn't claim DLA later however, as with my training I coped.

Chloe_Alumni

Hi @Jeanie_Zz, welcome to the community!

I just wanted to check in to see how you were doing.

Jeanie_Zz

Sorry if I caused some tension, I’m really grateful for all the responses as I know everyone is trying to help. 

Where you guys say about representation being needed is that for help filling in the forms or because it’s likely to go to tribunal? Sorry if it’s a stupid question! 

I must admit I do feel bad thinking about claiming DLA because while she has extra care needs and I’ve had to give up work because not only was she reacting non-stop at the childminder I just couldn’t manage it on so little sleep as I have health conditions myself too.

@chiarieds your daughter needing a tracheotomy at 1 week old must have been a terrifying experience. Thank you for your warm welcome!

janer1967

Hi again 

I think you should seek representation first to see if it is advisable for you to claim and also to complete forms. 

You are not at a tribunal stage just thinking of applying 

Jeanie_Zz

Thank you I knew that I’m not at the tribunal stage (I haven’t even got forms to fill in haha) but wasn’t sure if they meant representation to help fill in the forms or representation ready because it’s most likely going to be declined and I will end up at tribunal. 
I have looked through the forms online and I really don’t think I can go through with it anyway. They don’t seem to apply to our situation and most of the questions are probably meant for older children because of course a 2 year old needs help with most these things. 
I’m sorry to have wasted everyone’s time but I’m glad I found this place.