Non Hodgkin's lymphoma

Boyden1964

Has anybody here been diagnosed with non Hodgkin's lymphoma? Not yet been diagnosed just waiting for appointment to have a biopsy. Had ultrasound done it showed several large abnormal lymph nodes in groin and neck the largest one measuring 24x13x19mm if so how long did it take to get a diagnosis?

Chloe_Alumni

Hi @Boyden1964, I'm afraid I haven't experienced this. I hope someone else is able to offer some guidance.

Have you heard back from your doctor?

Boyden1964

Had biopsy done on the 19th June. Had phone call from haematologist this morning got to have biopsy done again as not enough sample was taken. Will probably be another 2-3 weeks before diagnosis.

Chloe_Alumni

This must be frustrating @Boyden1964! I hope you don't have to wait much longer.  

janer1967

Hi and welcome to the community, have you had any further news yet.

My ex husband was diagnosed with this over 15 years ago and after referral from GP was seen very quickly and was in for removal of the tumour in his groin within 3 weeks of seeing his doctor. After treatment and regular check ups he is now discharged and in full remission 

I wish you luck and hopes are with you 

Boyden1964

Slight delay in having second biopsy done as have developed an infection where I had first biopsy done. 

janer1967

Sorry to hear about the delay must be worrying time for you 

Take care 

Parrot123

sorry as an ex nurse this is now curable. I had Hodgkins Lymphoma stage 4 b. Now 3 years in remission. I hope this gives you hope stay strong.. Will

KingKongsFinger

I know someone who had this 3 or 4 times and survived each time, died of old age in the end, hope this helps