Non Hodgkin's lymphoma

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Boyden1964
Boyden1964 Online Community Member Posts: 39 Contributor
edited August 2020 in Everyday life
Has anybody here been diagnosed with non Hodgkin's lymphoma? Not yet been diagnosed just waiting for appointment to have a biopsy. Had ultrasound done it showed several large abnormal lymph nodes in groin and neck the largest one measuring 24x13x19mm if so how long did it take to get a diagnosis?

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  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Boyden1964, I'm afraid I haven't experienced this. I hope someone else is able to offer some guidance.

    Have you heard back from your doctor?
  • Boyden1964
    Boyden1964 Online Community Member Posts: 39 Contributor
    Had biopsy done on the 19th June. Had phone call from haematologist this morning got to have biopsy done again as not enough sample was taken. Will probably be another 2-3 weeks before diagnosis.
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    This must be frustrating @Boyden1964! I hope you don't have to wait much longer. :) 
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community, have you had any further news yet.

    My ex husband was diagnosed with this over 15 years ago and after referral from GP was seen very quickly and was in for removal of the tumour in his groin within 3 weeks of seeing his doctor. After treatment and regular check ups he is now discharged and in full remission 

    I wish you luck and hopes are with you 
  • Boyden1964
    Boyden1964 Online Community Member Posts: 39 Contributor
    Slight delay in having second biopsy done as have developed an infection where I had first biopsy done. 
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Sorry to hear about the delay must be worrying time for you 

    Take care 
  • Parrot123
    Parrot123 Online Community Member Posts: 137 Empowering
    sorry as an ex nurse this is now curable. I had Hodgkins Lymphoma stage 4 b. Now 3 years in remission. I hope this gives you hope stay strong.. Will
  • KingKongsFinger
    KingKongsFinger Online Community Member Posts: 62 Empowering
    I know someone who had this 3 or 4 times and survived each time, died of old age in the end, hope this helps :)

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