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Hi, my name is Pixie51!
Pixie51
Member Posts: 60 Courageous
Hi there
I thought I would join up as at the end of my tether health wise. I was diagnosed with SB occulta about 20 years ago after a fall from my horse and it showed up in an xray and told it was very common and wouldn't cause me any problems. Fast forward to 10 years ago and after many back leg chronic pain issues and extreme fatigue I was diagnosed with fibro. The last two years I have had 3 bad relapses (I am a real outdoor person and work always on the go when I can) and the last one has floored me. Headaches tingling legs, numbness back pain tight calves and exhausted. I keep tripping and am black and blue!! My gp says I appear to have muscle weakness to legs and has referred me to neuro for an mri they are thinking MS possibly but I have just read an article about rare occulta complications which also appear to mirror mine.
I am obviously not here for Dx just wondered if anyone is in a similar position or experience. It hadn't crossed my mind that my symptoms could be linked to the SB. Sorry for such a huge post! I am a yoga teacher and can't even do much practice at the mo 😞
I thought I would join up as at the end of my tether health wise. I was diagnosed with SB occulta about 20 years ago after a fall from my horse and it showed up in an xray and told it was very common and wouldn't cause me any problems. Fast forward to 10 years ago and after many back leg chronic pain issues and extreme fatigue I was diagnosed with fibro. The last two years I have had 3 bad relapses (I am a real outdoor person and work always on the go when I can) and the last one has floored me. Headaches tingling legs, numbness back pain tight calves and exhausted. I keep tripping and am black and blue!! My gp says I appear to have muscle weakness to legs and has referred me to neuro for an mri they are thinking MS possibly but I have just read an article about rare occulta complications which also appear to mirror mine.
I am obviously not here for Dx just wondered if anyone is in a similar position or experience. It hadn't crossed my mind that my symptoms could be linked to the SB. Sorry for such a huge post! I am a yoga teacher and can't even do much practice at the mo 😞
Yoga heals the soul 🙏💖
Replies
So sorry to hear what a tough time you are having and I do hope your referral comes through soon.
I don't personally know anything about your condition but I have no doubt that someone in this wonderful community may.
I am happy to chat if you would like. Sending you some good vibes ad wishing you well.
Good Evening & Welcome 😃😃
I am one of the Community Champion’s here at Scope
I have managed to find someone who is in a similar situation as you.
https://community.scope.org.uk/discussion/28224/hi-my-name-is-sarah
Please let me know if you want me to try to find you further members????
@steve51
No probs it’s my Pleasure 😃😃
@steve51