Hi, my name is Pixie51!

Pixie51

Hi there
I thought I would join up as at the end of my tether health wise. I was diagnosed with SB occulta about 20 years ago after a fall from my horse and it showed up in an xray and told it was very common and wouldn't cause me any problems. Fast forward to 10 years ago and after many back leg chronic pain issues and extreme fatigue I was diagnosed with fibro. The last two years I have had 3 bad relapses (I am a real outdoor person and work always on the go when I can) and the last one has floored me. Headaches tingling legs, numbness back pain tight calves and exhausted. I keep tripping and am black and blue!! My gp says I appear to have muscle weakness to legs and has referred me to neuro for an mri they are thinking MS possibly but I have just read an article about rare occulta complications which also appear to mirror mine.
I am obviously not here for Dx just wondered if anyone is in a similar position or experience. It hadn't crossed my mind that my symptoms could be linked to the SB. Sorry for such a huge post! I am a yoga teacher and can't even do much practice at the mo ?

phillycollings29

Hello @Pixie51.  A very warm welcome to you.  

So sorry to hear what a tough time you are having and I do hope your referral comes through soon.

I don't personally know anything about your condition but I have no doubt that someone in this wonderful community may.

I am happy to chat if you would like.  Sending you some good vibes ad wishing you well. 

steve51

Hi@Pixie51

Good Evening & Welcome ??

I am one of the Community Champion’s here at Scope

I have managed to find someone who is in a similar situation as you.

https://community.scope.org.uk/discussion/28224/hi-my-name-is-sarah

Please let me know if you want me to try to find you further members????

@steve51

Pixie51

Thank you so much to you both x

steve51

Hi @Pixie51

No probs it’s my Pleasure ??

@steve51

janer1967

Hi @Pixie51 Just wanted to say hi and welcome, great to have you on board and look forward to seeing you around

Pixie51

Such a welcoming site thank you. Have just been reading up more on sb occulta as at the time I didn't think anymore about it with Doc saying it was nothing to be concerned about. Just reading up on sacral dimples, amazing I never knew what mine was! ?

chiarieds

Hi @Pixie51 - Welcome to the community from me too. SB occulta (or hidden) can be indicated by sacral dimples, etc. Do you have a date for your MRI yet?  Please let us know how you get on

Pixie51

Hi there thank you. No date as yet. Hospital are starting to book in patients again at the end of the month so just need to await them getting to me! I suspect in the current climate it will be a while but I have lived with it this long and there are people far worse off than me x