Condition change with PIP

avakarlsson

This discussion was created from comments split from: Pip telephone consultation times.

avakarlsson

Hi, hope everyone Is doing ok, 

I am on pip daily living and end of April I found out I will have my condition for the rest of my life and doing physiotherapy as well for the rest of my life, when I ring pip to say about the change, what will they do and how does the procedure work?

Thank you 

avakarlsson

Hi I am on daily living pip at the end of April I got told I will be having physiotherapy for the rest of my life and my condition to for the rest of my life. When I phone PIP what will they do?

Hope to hear shortly 

Thank you 

Ami2301

There will be no change in your award unless your condition has worsened over at least a 3 month period. 

avakarlsson

Hi Ami

My condition has worsened as now I have got this for the rest of my life and doing physiotherapy for the rest of my too. As I got told in April about this.

avakarlsson

I have just phoned DWP and they are sending me out a form and I will receive in 5 working days then I fill it in and then send it back to them and If I need an assessment again then I will have it via telephone, as they said it won’t stop your payments go higher or stay the same, they couldn’t give me a time scale how long it would take. I will still recieve my payments during this.

Ami2301

Read the PIP descriptors carefully, if the same descriptors still apply to you, then the award is unlikely to change. If your condition has worsened and other descriptors now apply to you (one's that didn't apply before) then I would seek further advice to double check that a change of circumstances needs to be reported.

Therapy is not necessarily a huge factor in making a decision, I have lifelong conditions and am likely to have physiotherapy for many years, others have lifelong conditions yet do not receive any therapy. 

avakarlsson

The person who I just spoke to on DWP said she’s sending me out a form I have to fill out then send back to them and they will check and I might need an assessment via phone then I could get a higher award or it will just be the same award I am on now and my payments will still carry on while seeing where my circumstances have change 

Ami2301

Do you have any evidence of how your condition has changed? 

avakarlsson

My physiotherapy told me on email which I have got about doing physiotherapy rest of my life and my condition too 

Ami2301

@chiarieds i would gratefully appreciate your opinion, do physiotherapists diagnose lifelong conditions or short-term issues? Thanks in advance

chiarieds

Doctors diagnose, not physiotherapists. A physio might report back to a Dr, who might then take their information into consideration.

Ami2301

Thank you @chiarieds I thought so, but wasn't certain and thought you were the best person to ask

@avakarlsson I would suggest seeking a diagnosis/up-to-date diagnosis from your GP/consultant before sending the form back.

Chloe_Alumni

Hi @avakarlsson, how are you doing? 

Gaining new evidence will be really helpful Do you know what your current award? It can help to look at the PIP descriptors to see how you potentially could get a higher award. I hope this helps.

Chloe_Alumni

Hi @avakarlsson, @Ami2301 and @chiarieds!

Just to let you know that I have split the discussion and merged it with @avakarlsson's new thread. Just to keep things all together.

Ami2301

Thanks @Chloe_Scope it was getting confusing on various different threads.

chiarieds

I fear @avakarlsson is grasping at straws....they try to get more benefits where they have repeatedly been advised no others are available. So currently they're looking at the PIP award they have. They state that a physiotherapist has told them via email they will need physio for the rest of their life, which seems a tad unlikely. Also a physio diagnosed them, which wouldn't happen, as I mentioned above. Sorry you can't see the whole thread(s) @Username_removed tho your info remains relevant.

avakarlsson

Hi thank you for your reply, it was said on FaceTime and email about having this for the rest of my life and doing physiotherapy too for the rest of my life, I was dismissed in May this year due to ill health grounds as I couldn’t do it anymore due to the chronic pain and I struggle lots now, where I have had it years it’s just getting me down and feel frustrated as how long it is taking, I am on daily living pip and universal credit 

poppy123456

@avakarlsson i have been away from the forum for quite a few months and have returned today. I remember you, i also remember giving all the advice there is to give you regarding your benefit situation. I did advise many times that there's no other benefits that you're entitled to.

I must admit, i've never known or heard of anyone have physio for the "rest of their life" Even more so under the NHS. You were dismissed from your job by your employer but that isn't going to help a PIP claim because it's not about being unable to work.

I would take Mike's advice and get some help, support and advice with filling out the PIP form because you could go on to lose your existing award.

poppy123456

@Username_removed thank you very much for those kind words!

Looking at it that way, then i would agree with you. Although put in the way it was here, then i wouldn't agree. Even so, this doesn't mean a condition has got worse and of course you already know that.

Looking back at comments by @avakarlsson they have constantly asked the question "what benefits am i entitled to" going from NS/ESA to NS/JSA and now onto PIP. It does make you wonder.

chiarieds

Just because someone has been told they have a lifelong condition, as many of us here have, doesn't mean they are entitled to some benefits.

Hmmm @Username_removed of course physio also helps, tho I might be a tad biased. A physio might advise appropriate exercises, which often should ideally be continued; this would usually be a short 6 week course to identify the problems, & give guidance. I'll let you off as you're walking a lot, which is often the best form of light exercise to do.

A 'need' for physio may be for an acute problem, or a long-standing one, but doesn't confer an entitlement to a benefit, nor convey any condition has necessarily worsened.

In my own case, I had a bit of a battle with some 'specialists.' I couldn't possibly have Ehlers-Danlos Syndrome as my muscle strength was near normal......without exercising appropriately, it would not have been so. Still I'd rather continue exercising than get worse.