PIP, DLA and AA
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PIP ends October - no 6 month extension, why?

AlaAla Member Posts: 18 Listener
Hello,
I have a question.  My PIP award ends in October.   In March I was told by PIP-DWP that I should expect 6 months extension.  Yesterday received letter that my awards ends - and I supposed to call the New Claim number. 
Question is:   Would it make sense to call PIP and ask if they would give me the 6 months - or I have no chance with that?
Could anyone advice me?

I'm too unwell to deal with anything in regards to benefits.  They finished me off mentally during previous reassessments.    After that experience I got  a letter from my GP (who just left the surgery) - requesting a paper reassessment in the future. 

Now
Charity which usually helps me is shut due to covid - they doing their best from private homes - so can't assist me with the call.    I do hope they will help me with forms but it takes a month now, for them to even call me back.
Lady, who helps me can't be present during a phone call - her husband surfers from Covid - and I do self - isolate..
In regards to support letters, my GP tells me she doesn't know what to write - I have to tell her what I want in the letter...
I suffer from ME and other issues - my brain just cuts off when I get stressed and anxious.  Talking and breathing the air out tigers tachycardia and I'm in total mess - just not able to make an responsible conversation.   Often when asked questions I answer some nonsense or just agree with the other person... about whatever 

any advice greatly appreciated

Replies

  • laurapeachlaurapeach Member Posts: 68 Courageous
    When you got your award was it from tribunal or did you get it just from your initial assessment? 
    Mum of one, I have M.E/CFS, POTS, Central Sensitization Syndrome and Joint Hypermobility Syndrome.
  • Lulu_1949Lulu_1949 Member Posts: 204 Pioneering
    You will hopefully get help on here but I can offer help on the tachycardia , the best thing I found and I had severe bouts is to drink about 4 glasses of ice water straight off , this seems to shock the heart back into normal rhythm and helps you to feel much better. I was given this advice in an Austrian hospital and it worked for me , good luck x
  • AlaAla Member Posts: 18 Listener
    edited July 2020
    Than you,
    Yes, I went through Tribunal

    Regarding tachycardia, it happens while I'm talking.  Often I'm not even aware the heart is racing, I'm just more and more anxious, and  can't focus my mind - so if I will be on the phone to DWP  - it will be difficult for me to do much.

  • poppy123456poppy123456 Community champion Posts: 22,088 Disability Gamechanger
    HI,

    I'm not sure it's even possible for DWP to extend and award that was given by the Tribunal, which is why you've received the letter to reapply. I'm going to tag someone who i'll guarantee will give you a straight yes or no to this.

    @mikehughescq I'm unsure on this one, could you advise please? Thank in advance, as always :)
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • AlaAla Member Posts: 18 Listener
  • mikehughescqmikehughescq Member Posts: 4,974 Disability Gamechanger
    edited July 2020
    There was an argument earlier in the year where on the one hand ministers were saying that all PIP awards would be extended and then on the ground DWP were rightly refusing to do so where awards had been made by tribunals. That eventually changed. See post #49 onwards on https://www.rightsnet.org.uk/forums/viewthread/15981/P30

    So, yes DWP can and have been extending such awards and the ability to do that (just about) remains in place but I’d move quickly as it’s likely to be withdrawn soon. However, there’s no point in seeking such an extension if you’re not going to use it. You already have 8 weeks to complete the form. If you’re going to need longer then start by seeking help via https://advicelocal.uk/.

    I note you didn’t request medical advice on your tachycardia and would suggest you ignore any offered as medical advice is rightly prohibited on this forum.
  • poppy123456poppy123456 Community champion Posts: 22,088 Disability Gamechanger


    I note you didn’t request medical advice on your tachycardia and would suggest you ignore any offered as medical advice is rightly prohibited on this forum.

    Yes indeed, i would 100% agree with that. We are not medically trained here and can't give any medical advice. Ala should speak to their GP for any medical advice they require.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • AlaAla Member Posts: 18 Listener
    Thank you so much for your such deep reply!  
    You've been most helpful!

    I need more time. I'll be calling them on Monday.  Hopefully I'll get it!
    I need it.   I am so slow when dealing with any forms.  And my GP still needs time to write me a supporting letter, as all my medical evidence is a bit outdated.   After last tribunal I fell apart completely. I was no longer capable to attend medical appointments without causing severe deterioration.  Well, there is no cure anyway...

    I will definitely take it to heart your point about the NO medical advice - makes perfect sense - I'm new here - and got carried away, followed the other person example, despite better judgment..

    all the best to you!
  • mikehughescqmikehughescq Member Posts: 4,974 Disability Gamechanger
    I kind of assumed you would need more time as that’s entirely the norm with ME. However, there are plenty of organisations out there who can assist with form filling. Use them if you can.
  • AlaAla Member Posts: 18 Listener
    I have a local one - but due to covid their office is closed - they work from home - so they are much slower, too
  • mikehughescqmikehughescq Member Posts: 4,974 Disability Gamechanger
    Most advice services are understandably working from home for the time being. It dies indeed slow things down but with a little lateral thinking anything that was done face time face can be done remotely and not much slower than pre lockdown.
  • AlaAla Member Posts: 18 Listener
    Well, I've tried... shame the letter arrived Saturday afternoon...
    Last Friday, I would be given 6 months extension, Monday new rules.  All back to "normal"  no one cares about ill people shielding!   NO EXTENTION
    My Charity told me this morning  - don't worry, you have 3 months to return the form - NOOOO
    back to 1 month deadline too!!

    I've been messed up by the PIP telling me I have the 6 months.
  • poppy123456poppy123456 Community champion Posts: 22,088 Disability Gamechanger
    Reviews for PIP are back on i believe and they restarted sometime this month. I think the reason why you have been given the extentsion to your award right now because it doesn't actually end until October. As reviews are back on then yes you would receive the form or letter to reapply. Once it gets nearer to the end date of your award, if a decision hasn't been made on your new claim then it could be increased.

    You can ask for an extention of time to return your form, they usually have no problems doing that. When filling out the form remember to add as much detail about your conditions as possible and then add a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you.

    Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • AlaAla Member Posts: 18 Listener
    Thank you, I really need lots of luck. After previous reassessment and assessors lies I feel allergic  to all this process.  And feel panicky
    Makes me sick just to think about it.
    I am no longer fit mentally to attend the assessments and face those lairs. 

    I do have a letter from my GP asking for paper review but not sure it will be taken into account?
  • poppy123456poppy123456 Community champion Posts: 22,088 Disability Gamechanger
    face to face assessments are still suspended and i have no idea when they are likely to start back up again. So at the moment it's telephone assessment or paper based, most people are having telephone assessments. I also beleive the success rate of claims has also increased since face to face assessments have been suspended.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • AlaAla Member Posts: 18 Listener
    That's very good news about more positive outcome.
    For the last 4 years every time I go to any doctor I write down all I have to say.
    I am so unwell, I have only few early morning hours when I am reasonably conscious.  As soon I start talking, I struggle with tachycardia which is causing severe anxiety.
    I get dizzy, by brain is deprived of right amount of oxygen, I get panicky - not even comprehending why I struggle with the conversation - then I start saying so much nonsense...
    The doctor gets usually confused...
    total mess
    During assessments, in the end i start to agree to whatever nonsense  the assessor makes up.
    Then I bit myself up for the disaster while awaiting for Tribunals... which becomes a total mental torture for me
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