PIP, DLA and AA
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I gave up last time.. Let the fight begin

ToffeeToffee Member Posts: 250 Pioneering
Well they say we learn iam going to write to pip and start all over again this time am not giving up I don't care how long it takes or if I have to Mr or appeal I will. This time I will make sure the form is filled in properly as iam not good with forms my sisters going to help. How are we all? 

Replies

  • OxonladyOxonlady Member Posts: 381 Pioneering
    Hi Toffee, not giving up sounds like a good idea!
    Are you having trouble sleeping or do you like staying up late?

    I keep waking up, several times a night, so I'm constantly tired, day and night... 

    I wish you every success with your new PIP application and I hope you do get the help you need to complete the application form and present your case fairly. Good luck. 
  • ToffeeToffee Member Posts: 250 Pioneering
    Hi oxanlady
    I have trouble sleeping like you I wake up serval times sometimes a wake for hours. 
    I permently tired but when it comes to sleep I need a miracle
    Thank you for your kind words
  • OxonladyOxonlady Member Posts: 381 Pioneering
    You are welcome, Toffee. Sometimes a little understanding and encouragement go a long way. 
    I'm going to try praying, that usually helps me go back to sleep. Though no doubt I'll wake up again in a couple of hours!
    I hope you can get some sleep tonight... 
  • mikehughescqmikehughescq Member Posts: 5,938 Disability Gamechanger
    edited August 2020
    Three things:

    1 - success is not a given. The first thing to do is to get advice on whether you have a likely entitlement. Some people “fight” for years without ever seeing that the real issue is not who they’re fighting against but the fact that they never bothered to find out whether they were entitled in the first place. They just assumed that their disabilities/health issues must equal entitlement. So, if you’re serious, start with https://advicelocal.uk/.

    2 - if you think of it as a fight you are doomed to failure. It’s not a confrontation or a battle. It’s simply about understanding what it is you’re claiming and what they need. An astonishing number of appeal pursue cases all the way to appeal and beyond with a burning sense of injustice but no actual clue as to the rules of PIP and that key phrase “reliably”. If, for example, you don’t know the difference between assertion and evidence or why anecdotal evidence is often more important than medical evidence then you need help.

    3 - does your sister know any of the above? Does she understand the PIP points system? What anecdotal evidence is? The 4 elements of “reliably”. If not, then frankly, she is the last person who should be filling your form in. Professional help is out there. It does not cost and you should consider using it immediately before you go any further.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI,

    Looking back at previous threads of yours, do you currently have a PIP award in payment?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • ToffeeToffee Member Posts: 250 Pioneering
    Yes I seek advice to day thank you so much Mikehugescg much appreciated 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Toffee said:
    Yes I seek advice to day thank you so much Mikehugescg much appreciated 

    Please answer my question. Do you currently have an award of PIP?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • ToffeeToffee Member Posts: 250 Pioneering
    Hi poppy
    Hope you are well
    Yes daily living standard rate
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    edited August 2020
    Thanks. Then you can't start a new claim, you need to report a change of circumstances but do be aware that you could lose everything you already have by doing this. Please get some expert advice before doing anything else. No one on an internet forum can tell you whether there's any risks to your current award.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • ToffeeToffee Member Posts: 250 Pioneering
    Hi oxanlady 
    I managed 3 hours sleep ty
    Hope you did two 
  • ToffeeToffee Member Posts: 250 Pioneering
    Yes thank you poppy I've just been looking to get some professional help am struggling been on shelter turn2us and the one Mikehugescg gave me no joy as yes but iam going to keep looking till I find some advice poppy 
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Hi Toffee, it's great that you are looking for professional advice. Please remember that if you suffer from any specific condition there's bound to be a specific support group or charity that can also help you. 
    Take care. 
  • ToffeeToffee Member Posts: 250 Pioneering
    Yes I have 
    Mixed anexity and depression 
    Fibromyalgia 
    Copd stage 2
    Nerve impingement right shoulder 
    PTSD
    Panic disorder 
    And then there's things that I suffer from them xx
  • mikehughescqmikehughescq Member Posts: 5,938 Disability Gamechanger
    So nothing in there suggests a mobility issue. That leaves you with going for enhanced rate daily living. Where specifically have you identified the extra points? Which activities and why?

    if you can’t answer that then you need professional advice before you do anything with your PIP. You shouldn’t live in fear of losing what you have - the most likely outcome of a request to look again is an unchanged award - but you need to not let your current enthusiasm for a challenge get in the way of sense. Identify your points else you’ve no case.
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Hi Toffee, with having COPD, you Could perhaps speak to someone on the British Lung Foundation helpline. Also, MIND might help with advice on depression anxiety and benefits. 
  • mikehughescqmikehughescq Member Posts: 5,938 Disability Gamechanger
    I feel there’s an air of unreality descending here. Yes, there are charities available for many conditions but overwhelmingly they will point you elsewhere for benefits advice. They simply do not have the resources. Information on a web page is not advice. Information is not personal and tells you something very basic and unchanging. Advice is personal; based on personal circumstances and gives options personal to you. This poster needs advice not information so pointing them to charities related to their conditions may help in relation to the condotions but it’s unlikely to help with the benefits aspect. 
  • ToffeeToffee Member Posts: 250 Pioneering
    Thank you  both so very much much appreciated gave me lots to think on. Iam contacting cab on monday will keep you all upto date thank you once again 
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Mikehughescq, please don't underestimate the importance of having support whilst in the process of obtaining information and making a new application, especially in someone who suffers from anxiety and depression as well as physical ailments. There's nothing "unreal" about emotional support and encouragement when in the process of dealing with hard facts. The two are not mutually exclusive.

    In any case, when I contacted the British Lung Foundation helpline I found them very knowledgable and professional as are many other Charities, such as Age UK. 
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Wishing you all the best, Toffee. 
  • mikehughescqmikehughescq Member Posts: 5,938 Disability Gamechanger
    I fear you may have misunderstood my post. The original poster needs very specific advice. Do I qualify for a higher rate of PIP daily living? Can you help me complete the form if I do? As I have already said, they can get lots of support from charities which support their health conditions. It is very unlikely they will get the two things above. 

    I am not underestimating the support such charities provide at all but that has no relevance to this specific discussion. 
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Mikehughescq, You will find that many charities actually have a dedicated advisor who is very knowledgable about the various benefits available and how to apply. 
    Just to give one example, even the South London ME Support Group, which is only a small, local charity, has a very professional, capable and knowledgeable benefits advisor, who does give excellent information to applicants. Age UK also has a wealth of practical information.
    I have been researching UK Charities for four years and it would do most an injustice if people thought that they didn't offer any services very much based on facts and the real world of benefits for those who need them!

    In any case, I thought it best to offer Toffee a wider view of what might be of both practical and psychological assistance, under the specific circumstances. 
  • ToffeeToffee Member Posts: 250 Pioneering
    Ty so much Mikehugescg 
  • ToffeeToffee Member Posts: 250 Pioneering
  • mikehughescqmikehughescq Member Posts: 5,938 Disability Gamechanger
    As I work in the field I can confirm that without a shadow of a doubt “some” charities indeed do have a dedicated adviser but the number is relatively small and a single practitioner will usually not do casework; will be wholly overwhelmed  and thus absolutely won’t be able to address the issues in this thread. Giving information is not, as I have already said, anything like the same thing as advice. They are unrelated and the original poster here needs advice not information. Age UK information, for example, is detailed and wide ranging. None of that information will help the original poster here. You would essentially be sending them on a wild goose chase. 

    I’m sure the practical and psychological assistance will be welcome but this poster still needs those 2 questions answering and information will not do that. 
  • OxonladyOxonlady Member Posts: 381 Pioneering
    Perhaps I have been extremely fortunate to actually have been provided with a solicitor by a legal charity to challenge my local Social Services. 

    In any case, the CAB is an excellent choice and usually provides tailored information. A very professional, registered charity... 
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