Rare brain condition

jayramphal

I have a rare brain condition called leukodystrophy shortened to ALD
This has deteriated since i was diagnosed in 2010. My mobility has been affected drasticlly and need to use a wheelchair. More recently my arms have lost strength to manuver the chair. I was told i can get an electric wheelchair but looking at prices they are expensive and i do not have the money.

janer1967

Hi again, Have you contacted wheelchair services as they will assess you and if they think you need a power chair they will help sometimes even supply.

The other option is if you claim PIP and get enhanced mobility you could get one through the  mobility scheme or use the money to purchase one

You can sometimes find some real bargains on Facebook or gumtree or at dealers who sell second hand 

jayramphal

Yes i get pip but low rate not able to get services from motability
I have an NHS wheelchair which i manual and they can not provide a powerchair because my hall is to narrow and they do not provide powerchairs for outside use only 

janer1967

I dont really know what you can do then 

Do you think you may be worth reporting change in your condition to try and get enhanced pip 

It would be a risk though 

jayramphal

I can try 

woodbine

Always take advice before putting you current PIP award at risk.

jayramphal

Ok

Chloe_Scope

Hi @jayramphal, unfortunately that is common for NHS wheelchair services. Here is an article about ways to fund a wheelchair. It includes finding the right chair for you and grants that you might be able to apply for. I hope this helps.