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Rare brain condition
jayramphal
Member Posts: 10 Listener
I have a rare brain condition called leukodystrophy shortened to ALD
This has deteriated since i was diagnosed in 2010. My mobility has been affected drasticlly and need to use a wheelchair. More recently my arms have lost strength to manuver the chair. I was told i can get an electric wheelchair but looking at prices they are expensive and i do not have the money.
This has deteriated since i was diagnosed in 2010. My mobility has been affected drasticlly and need to use a wheelchair. More recently my arms have lost strength to manuver the chair. I was told i can get an electric wheelchair but looking at prices they are expensive and i do not have the money.
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Replies
The other option is if you claim PIP and get enhanced mobility you could get one through the mobility scheme or use the money to purchase one
You can sometimes find some real bargains on Facebook or gumtree or at dealers who sell second hand
I have an NHS wheelchair which i manual and they can not provide a powerchair because my hall is to narrow and they do not provide powerchairs for outside use only
Do you think you may be worth reporting change in your condition to try and get enhanced pip
It would be a risk though
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