Rare brain condition
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jayramphal
Community member Posts: 10 Listener
I have a rare brain condition called leukodystrophy shortened to ALD
This has deteriated since i was diagnosed in 2010. My mobility has been affected drasticlly and need to use a wheelchair. More recently my arms have lost strength to manuver the chair. I was told i can get an electric wheelchair but looking at prices they are expensive and i do not have the money.
This has deteriated since i was diagnosed in 2010. My mobility has been affected drasticlly and need to use a wheelchair. More recently my arms have lost strength to manuver the chair. I was told i can get an electric wheelchair but looking at prices they are expensive and i do not have the money.
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Comments
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Hi again, Have you contacted wheelchair services as they will assess you and if they think you need a power chair they will help sometimes even supply.
The other option is if you claim PIP and get enhanced mobility you could get one through the mobility scheme or use the money to purchase one
You can sometimes find some real bargains on Facebook or gumtree or at dealers who sell second hand -
Yes i get pip but low rate not able to get services from motability
I have an NHS wheelchair which i manual and they can not provide a powerchair because my hall is to narrow and they do not provide powerchairs for outside use only -
I dont really know what you can do then
Do you think you may be worth reporting change in your condition to try and get enhanced pip
It would be a risk though -
I can try
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Always take advice before putting you current PIP award at risk.2024 The year of the general election...the time for change is coming 💡
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Hi @jayramphal, unfortunately that is common for NHS wheelchair services. Here is an article about ways to fund a wheelchair. It includes finding the right chair for you and grants that you might be able to apply for. I hope this helps.
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