We won't be forgotten - share your experiences — Scope | Disability forum
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We won't be forgotten - share your experiences

Adrian_Scope
Adrian_Scope Posts: 8,578 Scope online community team

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Comments

  • Parrot123
    Parrot123 Member Posts: 137 Pioneering
    I think the way the government has treated . Disabled people and unpaid carers. I'm a cancer patient kidney patient asthma. Full time carer. We get no support no help we have been pushed aside. I find this disgusting. Help Disabled ♿ now. UC claimints get extra £100 per month. Unpaid disabled carers get nothing wrong ?. Will x
  • janer1967
    janer1967 Member Posts: 16,405 Disability Gamechanger
    I had a real battle getting LCWRA ended up at tribunal, at the tier I had become an amputee and no prosthesis and was housebound .

    In order to get out of the house I needed 2 people to carry me out due to access issues, yet I was found fit for work mainly because I vould self propel a wheelchair in the house.

    Have you ever tried self propelling outside up and down kerbs, hills tamps etc  maybe ok for someone young and fit 

    I canr believe that in the criteria there is no section for actually being able yo get out of the house or een if you can get out what do you do then, maybe get taxi but who is going to help you then get into your place of work etc 

    Was awarded at tribunal but this took over 12  months of stress being made to feel like a fraud, and at the same time coming to terms with tr disability and almost being homeless with my young son to look after too

    What they put the disabled through is barbaric, however I understand they need to ensure it is all genuine. Which does amaze me as I know several people who have claimed these benefits for years for conditions that dont really affect their daily life 

    Anyway rant over
  • Seanchai
    Seanchai Member Posts: 411 Pioneering
    edited October 2020
    My wife was/is my carer and has been for years now ....but she turned 65 and a half in January.  The DWP stopped her money as though she was my carer one day and a day later she is still my carer but does not get paid for it . She asked the carers centre for help to fill forms out but she is not now a " carer " according to everyone in officialdom . We managed to get put on the right path and advised what to do by "Poppy123456 " on this very site .
    We cannot thank her enough , we were even getting the wrong advice from the local DWP office ....and conflicting advice over the phone from the DWP. 
    We were able to claim UC ( not enough to cover our rent ) but it helped us. I have now sent my pension application in ...this must have got others looking at our payments and we now owe the UC money ...in January 2020 my wife turned 65 and a half ,so was entitled to her pension , we told them everything they wanted to know and the UC awarded us so much a month ( just over £230 ) . We got a letter saying we had overclaimed by £129 in January . I was very angry , not at the fact that we owed them money but the fact they said we had overclaimed ....it wasntgeir mistake and they seem to be blaming us . My wife phoned them today and paid them the money "they " overpaid us .
    I would love to have had a word with them but my hearing is bad and I struggle to make anyone out on a phone . I hope we are able to get off UC in January when I turn 65 . As for my " carer " ( my wife ) she is still doing an excellent job . ....and I might just keep her as my unpaid carer ??????
    Ps I might well have to call on the experts on this site as we were told by the DWP on the phone last January that we could claim pension credits ....but Poppy also kept us right on that as well by telling us we cannot get pension credits until we are both pension age . My wife mentioned to the UC on the phone today that we will be getting in touch with them  when I get my pension on January 9th 2021. ....and when would we best to tell them about my pension ? They told her that it would be best to tell them in December . 
    Last year at this time i had just had my home assessment going from DLA to PIP . which thankfully I was awarded PIP or ten years , I know I will not live that long but at least thats one thing we can forget about for now. ( another lot of help from Poppy 123456  to get that organised , then my wifes pension ,then our UC in January at the start of this year. . 
    We are just a number and even much more so with this government.... thank you all for your help over the year ?????
  • Seanchai
    Seanchai Member Posts: 411 Pioneering
    I was so glad to see that Poppy 123456. got an award from the site for her stalwart work in helping so many people . She certainly took a lot of pressure of us by telling us the correct path to go down on my DLA to PIP then onto UC ....you never know Polly , we might need your help when I go onto my pension and if I would be able to claim pension credit ....or attendance allowance. These are things that are not automatically spoke about as far as I,m aware
  • poppy123456
    poppy123456 Member Posts: 31,235 Disability Gamechanger
    @Seanchai aww bless you my friend! Thank you for those wonderful and kind words! They really do mean a lot!

    Regarding the UC overpayment. Sadly, all overpayments are recoverable on UC, even if it was their error... sad yes but unfortunately, that's the UC regulations.

    When you start claiming your pension your PIP will continue and you will remain on that for as long as you remain entitled to it, you definitely won't need to claim attendance allowance.

    Anyway, i won't take over the thread anymore, if you need further advice anytime, you know where i am, always happy to help! :)
  • Seanchai
    Seanchai Member Posts: 411 Pioneering
    Thank you Poppy ,  I hope the change over to pension is smooth in January. 
    I don,t mind paying back any over payment ,to UC. it was just the way the letter was worded tyat annoyed me , it looked like they were putting the blame on my wife and myself for the overpayment . On saying that , the lady on the phone ( from DWP) to my wife was very understanding and offered to allow us to pay it back in installments .Of course I will not be on UC from January ( I don,t think anyway ) .
    It's good to know we have someone with your knowledge on Scope that we can call on for help.
    Thank you for all your help ....and the understanding of the other experts ( and members) on Scope ??
  • Parrot123
    Parrot123 Member Posts: 137 Pioneering
  • Parrot123
    Parrot123 Member Posts: 137 Pioneering
    I really feel as if disabled people have been pushed aside during this virus. Matt Hancock help us please.
  • WilliamEC
    WilliamEC Member Posts: 5 Connected
    I feel being disabled it is not just the government during this time but society also pushes us aside. I live in one town and socialise in another town which is 20 miles away or 30 minutes on the train as the town I live in do not seem to accept disability. It is a very eldery town and the school kids are the main ones who talk to me if they see me in town as they seem more open minded.

  • [Deleted User]
    [Deleted User] Posts: 144 Pioneering
    Yes I don't understand why people on u/c get a £100 a month extra and disabled people get nothing extra? Disabled being ignored by government yet again!
  • newborn
    newborn Member Posts: 746 Pioneering
    Sorry to hijack the thread, newborn here. Cannot find a way to contact scope.  I automatically  log in on the tablet so l have no idea what the password  is.  My tablet sometimes doesn't  work, so l want to log in on another device, but the l forgot my password button doesn't  work and emails dont either
  • Tori_Scope
    Tori_Scope Posts: 9,644 Scope online community team
    edited October 2020
    Hi @newborn! I've seen your emails, and have sent a couple of replies. Have they not come through? Have you checked your spam folder?

    I'm sorry that you're still having trouble logging in. I'll try and manually reset your password now. Please check your emails, as I'll be emailing you the new password, and let me know whether you receive it :)
    Online Community Coordinator, she/her

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  • newborn
    newborn Member Posts: 746 Pioneering
    No replies. Nothing in spam.   The tablet is past it's  prime so l really need to get in via laptop.  
  • newborn
    newborn Member Posts: 746 Pioneering
    It seems somehow my e ail and scope wont speak to each other.  I could give you an alternative email address but not on public forum.  If i merely send in to you from it, your system won't know it's me.  
  • newborn
    newborn Member Posts: 746 Pioneering
    I am zure my emails from my usual address dont reach, because  not one has  een replied to. I tried using the reply option as a link,  for an old email from Adrian.  That was the moment  everything went strange on my email as far as scope is concerned,  
  • Tori_Scope
    Tori_Scope Posts: 9,644 Scope online community team
    Thank you for sharing @earthchild23 :) It's not offensive, honest experiences are exactly what we want to hear about, whether they're positive or negative. Did you click on the link in the post to write about your experience on there? 
    Online Community Coordinator, she/her

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    Want to tell us how we're doing? Complete our feedback form now.
  • Parrot123
    Parrot123 Member Posts: 137 Pioneering
    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 
    To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 
    (Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

    @earthchild23 contact social services. Or try get a welfsre rights officer out. good luck Will x
  • Parrot123
    Parrot123 Member Posts: 137 Pioneering
    givingup said:
    Yes I don't understand why people on u/c get a £100 a month extra and disabled people get nothing extra? Disabled being ignored by government yet again!
    @givingup
    It's a disgrace i live in a village do you have a support worker? Aye u r spot on we have been ignored this pandemic has had a financial impact on my savings. Having to shop in Spar NO MSP's care about us. Boris telling people shielding to go back out. I don't think so i will stay in doors until i am convinced it is safe for me out there.
  • [Deleted User]
    [Deleted User] Posts: 1,651 Connected
    I have Asperger's syndrome and various physical disabilties including Dyspraxia and spinal stenosis, the main problem IMO is lack of awareness of ASDs (Autism Spectrum Disorders) outside of those who need to know, for instance if I declare my AS on a job application, my application gets insta-binned.

    Completely illegal but as I said in the coffee lounge last week, I've been saying for years that the Equality Act isn't worth a dime because the government don't enforce it and probably never will.

  • feir
    feir Member Posts: 395 Pioneering
    edited December 2020
    To the people wanting the extra £20 a week UC claimants get you can claim UC yourself to get it.
    You won't get paid for the first 6 weeks though and you won't get back pay for those 6 weeks.

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