We won't be forgotten - share your experiences

I think the way the government has treated . Disabled people and unpaid carers. I'm a cancer patient kidney patient asthma. Full time carer. We get no support no help we have been pushed aside. I find this disgusting. Help Disabled ♿ now. UC claimints get extra £100 per month. Unpaid disabled carers get nothing wrong ?. Will x

My wife was/is my carer and has been for years now ....but she turned 65 and a half in January.  The DWP stopped her money as though she was my carer one day and a day later she is still my carer but does not get paid for it . She asked the carers centre for help to fill forms out but she is not now a " carer " according to everyone in officialdom . We managed to get put on the right path and advised what to do by "Poppy123456 " on this very site .
We cannot thank her enough , we were even getting the wrong advice from the local DWP office ....and conflicting advice over the phone from the DWP. 
We were able to claim UC ( not enough to cover our rent ) but it helped us. I have now sent my pension application in ...this must have got others looking at our payments and we now owe the UC money ...in January 2020 my wife turned 65 and a half ,so was entitled to her pension , we told them everything they wanted to know and the UC awarded us so much a month ( just over £230 ) . We got a letter saying we had overclaimed by £129 in January . I was very angry , not at the fact that we owed them money but the fact they said we had overclaimed ....it wasntgeir mistake and they seem to be blaming us . My wife phoned them today and paid them the money "they " overpaid us .
I would love to have had a word with them but my hearing is bad and I struggle to make anyone out on a phone . I hope we are able to get off UC in January when I turn 65 . As for my " carer " ( my wife ) she is still doing an excellent job . ....and I might just keep her as my unpaid carer ??????
Ps I might well have to call on the experts on this site as we were told by the DWP on the phone last January that we could claim pension credits ....but Poppy also kept us right on that as well by telling us we cannot get pension credits until we are both pension age . My wife mentioned to the UC on the phone today that we will be getting in touch with them  when I get my pension on January 9th 2021. ....and when would we best to tell them about my pension ? They told her that it would be best to tell them in December . 
Last year at this time i had just had my home assessment going from DLA to PIP . which thankfully I was awarded PIP or ten years , I know I will not live that long but at least thats one thing we can forget about for now. ( another lot of help from Poppy 123456  to get that organised , then my wifes pension ,then our UC in January at the start of this year. . 
We are just a number and even much more so with this government.... thank you all for your help over the year ?????

Appeal it

Sorry to hijack the thread, newborn here. Cannot find a way to contact scope.  I automatically  log in on the tablet so l have no idea what the password  is.  My tablet sometimes doesn't  work, so l want to log in on another device, but the l forgot my password button doesn't  work and emails dont either

No replies. Nothing in spam.   The tablet is past it's  prime so l really need to get in via laptop.  

I am zure my emails from my usual address dont reach, because  not one has  een replied to. I tried using the reply option as a link,  for an old email from Adrian.  That was the moment  everything went strange on my email as far as scope is concerned,  

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

earthchild23 said:

I have mental health illness and classify my self as having a invisible disability, becaus I am not able to do as many things as normal ‘27 y/o’ could I also am a parent, with my son who has been recently acknowledged to have SEN (social emotional mental health and cognitive and learning difficulties). 

To society I feel we are not accepted as having a disability and have had to fight for support especially for my son. I feel when you have a mental illness you are looked upon as delusional and not accepted as someone with a physical disability as it can be seen. So that has been my main issue being recognised as disabled and now it’s the struggle of awaiting for a proper diagnosis for my son, as we have a lot of trauma issues from abuse with his dad my ex in the past. I also feel as a disabled person we are always made to explain ourselves to justify why we need support why we are entitled to PIP, LCWRA or ESA. I feel there’s still a lot of institutionalised discrimination that the government needs to look at for disabled people and make accessing support easier. And I think more people need to be made aware in society about how it feels to be disabled, the looks and comments you hear are upsetting 

(Sorry for little rant, please remove if I’ve offended but I’m trying to be honest in how I feel about my disability) 

@earthchild23 contact social services. Or try get a welfsre rights officer out. good luck Will x