Hi, my name is yozza!

yozza

Hi everyone
I have enteropathic and psoriatic arthritis and my husband has FSH muscular dystrophy ( diagnosed 2016) with real deterioration in last few months.
looking forward to gaining possible solutions to some of our issues 

Ross_Scope

Hello @yozza and welcome to the community  

How are you today? 

Are there any particular issues you are looking for support with?

janer1967

Hi and welcome you both have a lot to deal with 

I am sure someone will be able to help if you tell us what you need help with 

Feel free to join in or ask any questions o look forward to seeing you around 

chiarieds

Hi @yozza - & welcome to this friendly community. I'm sorry you both have medical problems, & hope you will let us know in what way we may be able to help. Do have a look around the forum, as there are different groups for many disabilities, as well as talk here any time. Thank you for joining this supportive group.

Cher_Scope

Hello @yozza How are you and your husband today?  Are you coping with care needs ok?

If you can let us know some of the issues you are facing, we can do our best to help and support you through this difficult time.

In the meantime, this post about Beker muscular dystrophy has links to some organisations that you might find useful.  Plus our Disabled People discussion category covers a lot of different topics, including some posts about psoriatic arthritis.  

I hope you are good and have had a nice Monday.  Hopefully talk soon

yozza

hi
thank you for your warm welcome and information on other groups .

We are bobbing along 😊
Have just asked for a reconsideration for blue badge for my husband and awaiting PIP decision.
He’s also redundant as of last Friday 😦
so just starting to try and get our heads around the benefits system.
Hope  everyone is keeping safe in these strange times.

Cher_Scope

@yozza I'm sorry to hear about your husband's redundancy   Scope have a benefits calculator that can help you work out any entitlement. 

Also, good luck with your PIP decision.  Please let us know how you get on, and if you experience any difficulties make sure to ask our PIP savvy members about it on the PIP, DLA and AA discussion board.

poppy123456

Hi and welcome,

Regarding the PIP claim, if he's already had a telephone assessment then he can ring DWP to request a copy of the assessment report to be sent to him. This will give him some idea what the decision is likely to be because they mostly go with the report. If he hasn't yet had the assessment, most people have them and once an appointment becomes available they will contact him with a date and time.

If he's awarded the mobility part and scored at least 8 points in the moving around part of mobility then this will automatically entitle him to a blue badge. If he's scored the points in following and planning a journey only then it will depend on what descriptor he scored the points in. Of course people do have a blue badge without having a mobility award.

If you need any further advice regarding benefits as he's now been made redundant then please do ask, i'm sure someone will give further advice.

yozza

Thank you 👍