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Tiredness and Frustration with CP

Hello!
I am 21 and have mild CP. (that mainly impacts my left side) I find that at around 6pm, no matter if I have had an active or relaxed day my fatigue becomes so bad that I can barely keep my eyes open. I try and maintain an evening routine, but trouble sleeping due to pain in my legs can prevent it. I have also found that as the weather is getting colder, my hands tend to 'freeze' up.
Has anyone got any advice on how to help either of these issues? Many thanks in Advance!
I am 21 and have mild CP. (that mainly impacts my left side) I find that at around 6pm, no matter if I have had an active or relaxed day my fatigue becomes so bad that I can barely keep my eyes open. I try and maintain an evening routine, but trouble sleeping due to pain in my legs can prevent it. I have also found that as the weather is getting colder, my hands tend to 'freeze' up.
Has anyone got any advice on how to help either of these issues? Many thanks in Advance!

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Replies
What you are describing is very familiar to a lot of people living with CP. Because we burn 3 to 5 times more energy than non-CP people this can lead to us burning out quicker.
Recently (within the last 8 months) CP and fatigue have been looked into seriously. I have created some information on CP and Fatigue with some suggestions on how to manage and minimise the effect.
Have you heard of the Spoons Theory?
The Spoons Theory is for you to allocate your energy (or spoons) to your daily tasks, it's also an easy way to get your friends and family to understand your chronic fatigue and how it affects you. Just work out your spoon level and give it a go, if it's too much, reduce your number and try again until you feel well-paced.
I completely get what you are saying about the colder weather. It really affects my knees. I can recommend heat pads for your legs at night and hand warmers for your hands.
There is almost always a way to manage the issues we have to deal with.
Specialist Information Officer - Cerebral Palsy
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