If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
CRPS flare up pain is really intence
Options
gaza324
Community member Posts: 4 Connected
Hi I am in the start of a flare up the pain is intense has anybody got any helpful tips to try and ease pain without adding more pain killers
Comments
-
Hi @gaza324
I don't have personal experience of Complex Regional Pain Syndrome (CRPS) so unfortunately am not in a position to offer advice.
I'm guessing you are under a hospital team and your CRPS is being managed by them? What have they recommended? I'd make sure they are aware exactly just how much pain you are in so they can taper your medication accordingly.
By the way, I'm sorry you are going through this it must feel really rough and draining. How are you today?Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
I’m fine in myself am back to work tonight it’s just I can’t help getting wound up with the pain the disease has already taken so much already and I’m about to be made redundant and maybe the stress of this has also aggregated the pain I have lived with CRPS for a number of years will try watch some rubbish on tv and wait until I’m tired but thank you for getting back to me
-
@gaza324 Stress can definitely be a trigger of flare up's. I have an autoimmune condition and mine does exactly the same. Please let us know if we can help if it does come to you being made redundant.
In the meantime, feet up and get watching some telly. You have to do what your body tells you and it sounds like you need a rest!
Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
thank you I will let you know how I get on it’s a worrying time as I have progressed in the CRPS and now have a mobility issue requiring crutches to walk and have never been disabled looking forward a job the challenge will either make me or break me
-
No problem, also remember that employers have a legal obligation to make reasonable adjustments for your impairment so it should never come to the point where it's aggravating your CRPS more.
Enjoy your Sunday!Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 867 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.