If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.


sue2468sue2468 Member Posts: 1 Listener
hi, i recently applied for pip and was turned down , i sent a mandatory reconsideration notice , which was also turned down , the reason for claim was i use a cpap machine at night , and also have lymphedema, i must use this machine daily , i have a habit of pulling it off during the night , which then causes me to stop breathing , my hubby wakes me several times a night to tell me to replace the mask , pip have said i have nothing wrong with my arms and i can do the adjustments myself lol , even though im asleep and dont know ive removed it , is it worth going to appeal


  • janer1967janer1967 Member Posts: 11,118 Disability Gamechanger
    Hi and welcome sorry to hear your claim wasnt successful 

    From what I understand PIP doesn't take into account your night time use of CPAP it only looks at your daily living activities against the set descriptors which doesn't include this 

    I am sure others will advise also but it is up to you if you appeal 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    Janer is correct, PIP isn't about the night time. It's how you're affected against the PIP descriptors for at least 50% of the time over a 12 month period. Whether you're entitled to anything will totally depend on how your conditions affect you and no one on an internet forum can tell you this.

    If you can put the CPAP machine on yourself and take it off then you won't score any points for this in any of the activities.

    If you think you'll score enough of points in the descriptors for an award then yes take it to Tribunal, otherwise no because there will be no point at all.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Tori_ScopeTori_Scope Posts: 4,973

    Scope community team

    Welcome to the community @sue2468 :) I hope the above advice has been helpful?
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • chiariedschiarieds Community Co-Production Group Posts: 9,100 Disability Gamechanger
    Hi @sue2468 - & welcome to the community from me too. As mentioned above, PIP is about activities of daily living (not including night time) &/mobility. If you haven't looked at the activities/descriptors that PIP is about, it might be worth having a look at the following link. Please see: https://www.cambridgeshire.gov.uk/asset-library/Scores-for-PIP-Descriptors-2020.pdf
    Having a good read through this may help you decide whether or not it's worth pursuing taking this to a tribunal. Hope this also may help, & let us know if you have any questions. :)
Sign in or join us to comment.