New diagnosis - advice wanted please.

Ria_porter16

Hello, in the last few days I have been diagnosed with absent epilepsy, I am still coming to terms with my new condition and trying to get used to my medication. My best friend has asked me, if I am with her and we’re near a road when I have an episode is she allowed to move me if she thinks I am unsafe? I understand that with some medical conditions there are certain things you can or cannot do, therefore I wanted to see what everyone says. Is it down to my discretion or are there specific things my family and friends can or cannot do if I have an episode? 

janer1967

Hi and welcome to the community, sorry to hear about your diagnosis. I dont know if you are in the right place for this sort of advice it is probably best answered by a medical professional rather than on an internet forum

We do have other members with epilepsy who may be able to help or have a look on the NHS website or you may find somehting on the following link

Epilepsy – Epilepsy Action Website: https://www.epilepsy.org.uk/ Helpline: 0800 800 5050 Email: helpline@epilepsy.org.uk  

Tori_Scope

Hello and welcome to the community @Ria_porter16 Thanks for reaching out to us today.

I can imagine that being given this diagnosis and getting used to the medication could be quite overwhelming so please feel free to vent or ask for advice here on the community any time you need, or just pop on for a natter if you want to be distracted from everything for a while.

It's great that your best friend is asking these questions, and cares so much about your safety. I agree that it'd probably be best to speak to your doctor about this, as they'll be best placed to give you individual advice. 

I did find this free course on what to do if someone is having a seizure (including absence seizures) on the Epilepsy Action website though, so perhaps you could send that to your friend? 

As Jane said, it could be worth getting in touch with Epilepsy Action too, as they might have some resources for you.

Cher_Alumni

Hiya @Ria_porter16 and welcome to our online community.  It's great to meet you.

How are you today?  Are you managing your medication okay?

I've found this 'It's more than just seizures': National Epilepsy Week post that might help you.  I also believe @woodbine has epilepsy and could offer you some words of wisdom

I hope the initial shock is beginning to wear off.  I know it can feel like both a blessing to have an answer for mysterious symptoms, and a curse to get a seemingly 'scary' diagnosis.  The good news is you can access the right treatment now and your health-care team will be on hand to support you.

All the best and please let us know how you get on.

Ross_Alumni

Welcome to the community @Ria_porter16, hope you're managing okay  

chiarieds

Hi @Ria_porter16 - & welcome to the community from me also. I hope you find the above links & advice helpful.