This Blogging Life
Comments
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Hey @Lucy411 sorry to hear about your current situation. I do think it would be a good idea to either write about it on your blog or on Twitter. I think Twitter is the most popular social media platform to hear about other's experiences. If you do share it on Twitter, please let me know and I will do what I can in sharing to my followers too.0
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lisathomas50 said:I think its a good idea to blog about it because I think alot of people have the same problem with funding I had funding for 40 hrs a week which social services said I needed but didn't need that much I dropped my hours the 2nd year and finished haveing care on the third year
I live in Wales and found when my mum came to stay with me for three months the help they wanted to put in was incredible but my brother is still fighting to get care for her in wolverhampton so is paying for private care
I expect you have already had an occupational therapy assessment to see how many hours of care you need social services try and cut back on care on one of the calls I had as a carer in the community I had 20mins to prepare dinner and fo personal care thats why I did PA work in the end
The only suggestion I have if you need more hours is ask social services for a review of your csre hours which you have a right to fo
Blogging about it is a good idea though
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Ami2301 said:Hey @Lucy411 sorry to hear about your current situation. I do think it would be a good idea to either write about it on your blog or on Twitter. I think Twitter is the most popular social media platform to hear about other's experiences. If you do share it on Twitter, please let me know and I will do what I can in sharing to my followers too.
Thanks, I'll write a blog post and share via Twitter, not sure what angel to write it from to be useful to others though.
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Hmm ? if it was me writing the post, I would start by sharing my experiences with employing a PA, then go on to say about how a PA has/would benefit my independence. Then briefly outline your care needs/aspects you need assistance with and mention youre actively seeking a new PA (or however many you need)
Then you can finish by asking your readers to share their experiences and if they could kindly recommend anyone/company/agency. I'd also use this question on Twitter, at the end of you tweet. My reason is because there may be some people who don't have a spare 5 or so minutes to read your blog post but if you ask a question instead, they would be more likely to answer.
Hope this helps0 -
How many hours do you get now 40 hrs a week was to much for me becsuse I went back to work my pa was still doing my csre and tskeing me to work I told them to give the hours to some one who needed the hours
Social services get it so wrong sometimes and my pa was getting money for hours he hadnt work which I didn't think was fair
Hope you get something sorted out the other thing you could do is complain to the CIW thst you don't think your getting the hours you need you can also get in touch with disability rights
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Ami2301 said:Hmm ? if it was me writing the post, I would start by sharing my experiences with employing a PA, then go on to say about how a PA has/would benefit my independence. Then briefly outline your care needs/aspects you need assistance with and mention youre actively seeking a new PA (or however many you need)
Then you can finish by asking your readers to share their experiences and if they could kindly recommend anyone/company/agency. I'd also use this question on Twitter, at the end of you tweet. My reason is because there may be some people who don't have a spare 5 or so minutes to read your blog post but if you ask a question instead, they would be more likely to answer.
Hope this helps
Good point @Ami2301, thank you for the advice.
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lisathomas50 said:How many hours do you get now 40 hrs a week was to much for me becsuse I went back to work my pa was still doing my csre and tskeing me to work I told them to give the hours to some one who needed the hours
Social services get it so wrong sometimes and my pa was getting money for hours he hadnt work which I didn't think was fair
Hope you get something sorted out the other thing you could do is complain to the CIW thst you don't think your getting the hours you need you can also get in touch with disability rights
I have contacted people and everything is in progress, thanks @lisathomas50. I get more than 40 hours but less then what I need without my parents filling in. I'm pushing for 24hr.
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Sorry I couldn't help and hope you get what you need where I live they have a group of voluntary carers who fill in the hours you cant get from social services
I dont need carers all the time very rarely do I need help now but if I am haveing a bad with my lupus I can phone them and they come and help me I donate to this group because I want to but it was started up three years ago by myself and two other carers becsuse of problems like yourself are haveing
I no longer do care I stopped at the beging of the year because I had corona virus I havent worked since then I dont know if you have got that sort of thing where you live ?0 -
lisathomas50 said:Sorry I couldn't help and hope you get what you need where I live they have a group of voluntary carers who fill in the hours you cant get from social services
I dont need carers all the time very rarely do I need help now but if I am haveing a bad with my lupus I can phone them and they come and help me I donate to this group because I want to but it was started up three years ago by myself and two other carers becsuse of problems like yourself are haveing
I no longer do care I stopped at the beging of the year because I had corona virus I havent worked since then I dont know if you have got that sort of thing where you live ?
@lisathomas50 no problem at all. I appreciate your suggestions. What is the voluntary service called, please?
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@Lucy411 if you go on line and type in voluntary services for your area it should tell you I live in Wales and only know what is in my area of wales
I have four organisations here hoyle and voluntary care services and help u care and community voluntary help I have had to have help today for a few hours your doctor may also know of some where different areas have different things and different types of help your local council may also know
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lisathomas50 said:@Lucy411 if you go on line and type in voluntary services for your area it should tell you I live in Wales and only know what is in my area of wales
I have four organisations here hoyle and voluntary care services and help u care and community voluntary help I have had to have help today for a few hours your doctor may also know of some where different areas have different things and different types of help your local council may also know
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Glad I could help even if its in a small way other than that I don't know my brother lives in the west Midlands and he got in touch with a befriending agency to help him with my mum that is voluntary and they do quite a bit fir my mum but it depends what your needs are
If I think of something else I will let you know you can advertise for voluntary help if uou felt comfortable doing that thats another option0 -
lisathomas50 said:Glad I could help even if its in a small way other than that I don't know my brother lives in the west Midlands and he got in touch with a befriending agency to help him with my mum that is voluntary and they do quite a bit fir my mum but it depends what your needs are
If I think of something else I will let you know you can advertise for voluntary help if uou felt comfortable doing that thats another option
It's personal care so no, but thanks.
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@Lucy411 Thanks for sharing, I'll give that a read How are you doing?
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@Lucy411 I read your blogs you shared they are very good best of luck with everything
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lisathomas50 said:@Lucy411 I read your blogs you shared they are very good best of luck with everything
Thank you, Hope you're well?
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Cher_Scope said:@Lucy411 Thanks for sharing, I'll give that a read How are you doing?
Thanks, hope you like it. Things are tough but I'm putting my best wheel forward. Take care.
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@Lucy411 I am about as good as I can be like most people thanks for asking ?1
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