Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Do you have any concerns about the coronavirus vaccine?

Tori_ScopeTori_Scope Posts: 4,010

Scope community team

edited December 2020 in Disabled people
I'm sure many of you have heard by now that there are a few different coronavirus vaccine trials going on at the moment. You can read more about them on this BBC webpage.

Although many are celebrating the news of promising trials, others may also have some concerns. 

We're really interested in hearing your views, so we'd like to know:
  • What was your initial reaction to the news about potential coronavirus vaccines, such as those by Pfizer, Moderna, and AstraZeneca?
  • Do you have any worries or concerns about getting a vaccine against coronavirus?
  • Do you think there'd be any barriers to you getting a coronavirus vaccine?
  • Who do you think should be prioritised when the vaccine becomes available? 
@Hannah_Dobbin
Online Community Coordinator, she/her

Want to give us feedback? Complete our feedback form now.

Replies

  • Ami2301Ami2301 Member Posts: 7,418 Disability Gamechanger
    I'm disappointed after reading the article, it appears that disabled people are, yet again, forgotten about. There is no mention of whether the vaccine(s) are safe for those with disabilities, types of conditions, rare diseases, etc. I also don't agree with that age plays a big factor, because COVID has taken many lives of all ages, not just the elderly.

    I'm not getting my hopes up from the results.
    Disability Gamechanger - 2019
  • janer1967janer1967 Member Posts: 9,082 Disability Gamechanger
    I am excited about a vaccine its the only way to control this virus but IU do have a few concerns

    How long will it give you immunity for ? As the virus hasnt been around for that long I cant see how this can have been tested 

    Will it be like the flu jab can be and give you symptoms of the virus which could have drastic consequences 

    I would have the vaccine personally as long as it doesnt have any adverse effects on my current health issues

    As for priority I think those identified as being at risk from dying from the virus should be the priority regardless of age, or disability eg elderly obese, ethnic, diabetic, and so on

    All GPs should be sent a supply for them to prioritise their own patients. After all they are still not doing face to face appointments in lots of places which is something I disagree with. All other people if they cant work from home are going into work, all our teachers are expected to work and our children go to school yet the GP are not seeing patients.

    I agree with telephone consultations where they are all that is required but feel people are going to A&E rather than the GP knowing they will see a doctor, but this is just clogging up our over stretched hospitals

    Sorry I have gone a bit off topic here
  • cat6873cat6873 Member Posts: 36 Courageous
    My brother is mentally disabled because of a vaccine and, for this reason, I won't be queuing for it.
    I know I sound selfish but I saw first hand what my mother went through with zero assistance from the state, my brother got his disability pension long after our parents died and it was a very long battle.
    I've been locked indoors since March, like many others, and, so far, I have managed not to get this virus and I don't care how weak is the virus inside the vaccine - seriously???? - thanks but no thanks!
    And I'm not even going into why they want to give it to the over 80s first...
    Sorry for the rant :blush:
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Disabled people are unfortunately often left out of these discussions @Ami2301, but hopefully this is something that will be considered. 

    Of course people of all ages have unfortunately lost their lives, but there is evidence to suggest that coronavirus is more dangerous for older people (and of course people with long-term health conditions and so on). The majority of deaths involving COVID-19 have been among people aged 65 years and over (54,698 out of 61,136) (Office for National Statistics). 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Lots of good question there @janer1967. I've read a few articles that have raised the question of how long the vaccine might give people immunity for. I've seen a few things saying that we'll probably have to have multiple vaccines, but I suppose we'll just have to wait and see. The vaccines are still in the reasonably early stages of development, so hopefully we'll get some more answers as time goes on. 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    If I had a choice, I'd rather go with the Oxford vaccine, as this has been developed from a common cold in chimpanzees, rather than Pfizer using part of the actual Corona virus' genetic code....so unlike the flu jab, you shouldn't get any symptoms, & it should be safe for all, hoping it's effective rate may later be found to be higher, which is suggested in the elderly (who are most susceptible to the virus).
    I also appreciate @cat6873 's comment. My daughter rang me last week, as she'd received a text from her GP's surgery that their records showed she'd never had the MMR (measles, mumps & rubella) vaccine. My daughter thought this likely incorrect. Our decision however, had been based on the fact that when working in a hospital, I had been asked to see a little 5 year old girl, whom I'll not forget, as she happened to have the same first name as myself. She had sadly been brain-damaged following a MMR vaccination, so our eldest daughter hasn't had this because I saw one of the few who had had a severe adverse effect, which then had a profound effect upon me. I know this can be a controversial issue, but her medical records showed this vaccine had definitely caused brain damage in a previously 'normal' little girl.
    As such a vaccination as MMR also contains weakened forms of these viruses, I would perhaps say again that anyone with concerns about a potential vaccination against this Corona virus, might be more assured if they were able to get the Oxford vaccine in the future.
    The Oxford vaccine also doesn't have to be kept at such low temperatures, so easier to send to GP's surgeries, or wherever else it may be administered from here in the UK. This might also potentially help people in some other countries who may live in remote areas, where it would be logistically very difficult/impossible to keep a vaccine at such very low temperatures as Pfizer's.

  • OverlyAnxiousOverlyAnxious Member Posts: 1,254 Disability Gamechanger
    I'm really worried about it tbh.  I have a severe phobia of needles and any sort of illness or injury.

    Even if I could force myself to have the jab, I couldn't cope with any side effects afterwards.  Last jab I had to have caused me to pass out and injure myself a few minutes later which obviously didn't help the fear!

    Of course, I'm also very anxious about catching the virus, but hope staying away from people keeps my risk level very low.

    I'm just hoping there will be a big enough uptake of the vaccines to mean that those of us that can't have them for whatever reason are eventually safe enough to start doing things again.
  • Sandy_123Sandy_123 Member Posts: 1,040 Pioneering
    No sorry, I've spent all these months trying to avoid the so called virus, so I'm definitely not having it injected into me. I'm high risk because I born with dodgy lungs. I'm not risking it.
    Plus I don't have much faith in scientists and government after watching how they've handled things.
    Also it's been developed too quick usually these things take years and as we've seen in the past, some medications that have took years to developed have had drastic side effects, like the babies that were born with out limbs through a so called sickness tablet. 
    So I'm opting out personally.
  • CressCress Member Posts: 498 Pioneering
    Dont have any concerns about the vaccine for myself but haven't been able to find any info on if my son should have it.
    He was advised against having certain vaccines when a baby because of brain malformation and epilepsy.
    So far, all I can find out on the covid vaccine is they're advising against giving it to pregnant women.
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    edited December 2020
    Hi all! Thank you for continuing to share your thoughts and concerns. It's really useful for us to know what you're all thinking about the latest developments so that we can best represent disabled people in our campaigns and other work.

    I just wanted to share a BBC video I saw, where a few common questions about the vaccine are answered by an expert from King's College. Closed captions are available on the video.

    I also wanted to share with you a copy of the letter our Chair, Robin Millar, wrote to Matt Hancock. The letter asks for two key things:
    1. For disabled people to be prioritised in the roll-out of any coronavirus vaccine
    2. For improved access to non-Covid-19 health screening and treatment for disabled people
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • alex72alex72 Member Posts: 12 Listener
    i dont have a problem  with getting the vaccine by my thinking when it comes to me getting it thousands of people will have had it so  i will know if it's really safe. i am nearly 70 years old and i have heart problems, vertigo, and peripheral arterial disease { blocked arteries } and something i heard on the news that some blood thinners may help protect from the virus i don't know if that is true or not. i don't walk very well but i do have to have a walk every day or i will seize up or lose my mobility. i will never let this virus rule my life if i did i would give up and i do follow the rules but i will not be locked up ever because i am a widower i have no one to worry about but myself life has to go on and to hell with the virus. excuse my language 
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Thank you for sharing @alex72 :) In terms of the blood thinners point, it seems that there is some evidence to show that blood thinners can improve survival rates in those hospitalised whilst seriously ill with coronavirus, but that the studies haven't been conclusive. You can read more on the Cochrane website.
    COVID-19 typically affects the lungs and airways, however, in addition to respiratory problems, about 16% of people hospitalised with COVID-19 experience problems with their blood and blood vessels, leading to blood clots forming in the arteries, veins and lungs. 

    Nearly half of all people with severe COVID-19, in intensive care units, may develop clots in their veins or arteries.
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • alex72alex72 Member Posts: 12 Listener
    thankyou for that Tori what makes me wonder about thinners is i normally after every winter i really get bad colds and within a couple of weeks it goes as quick as it came. this year it taken a month or so to go and i never expierienced it being so long lasting  so i just wonder if i caught the virus i did have problems with breathing and feeling really tired and maybe me being on thinners helped if it was the virus.
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    I'm not sure @alex72! I don't think they seem to have done enough research into it to say for sure.

    I'm glad you're okay now at least :) 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • alex72alex72 Member Posts: 12 Listener
    yes i know they shouldnt really say things like that until they do. yep so far i am thankyou.  :)
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    Hi @alex72 - it's really difficult, as Covid-19 is a new virus, altho it's somewhat like some that are already known. There's just not enough evidence with Covid-19 (yet) to show that a person on blood thinners would necessarily benefit, rather than someone not taking these. More trials need to be done where everyone standardizes their results (so they're comparable), & not enough studies have been done so far.
    I wish we knew more, but hopefully we will, with more time.
    Great to hear you're doing OK, & that's the main thing; stay safe. :)
  • alex72alex72 Member Posts: 12 Listener
    hi CHIARIEDS thankyou for that i'm afraid it will be awhile before we know, that is true but life has to go on i know its difficult we just have to deal with it in our own way i refuse to be a prisoner in my own home  but thats how i deal with it. you stay safe too
  • charlie79charlie79 Member Posts: 198 Pioneering
    Did you know all the pharmaceutical companies who are supplying the vaccine have done a legal form where they cannot be held accountable for any side effects or law suits in the future. That's a big concern and not enough research.
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Do you have a source for that @charlie79? I'd be interested in reading more about it. I've only been able to do a quick search, but I found a little bit of information in this article from The Independent
    The UK government has granted pharmaceutical giant Pfizer a legal indemnity protecting it from being sued, enabling its coronavirus vaccine to be rolled out across the country as early as next week.

    The Department of Health and Social Care has confirmed the company has been given an indemnity protecting it from legal action as a result of any problems with the vaccine.

    Ministers have also changed the law in recent weeks to give new protections to companies such as Pfizer, giving them immunity from being sued by patients in the event of any complications.

    NHS staff providing the vaccine, as well as manufacturers of the drug, are also protected.

    The Pfizer/BioNTech vaccine was authorised by the Medicines and Healthcare products Regulatory Agency on Tuesday under regulation 174 of the Human Medicine Regulations 2012 which allows an unlicensed medication to be used in an emergency such as a pandemic.

    It also has the effect of granting civil immunity to Pfizer after the government changed the regulations following a short three-week consultation in September.

    The chief executive of the Medicines and Healthcare products Regulatory Agency (MHRA), speaking at a separate briefing on Wednesday, said “no corners had been cut” in the safety analysis of the vaccine.

    June Raine said: “This recommendation has only been given by the MHRA, following the most rigorous scientific assessment of every piece of data, so that it meets the required strict standards of safety of effectiveness and of quality."

    The Department of Health and Social Care confirmed an indemnity was in place for Pfizer and added that the government would be adding the coronavirus vaccine to the list of vaccinations covered by the Vaccine Damages Payments Act.

    This pays out a one-off £120,000 payment to people who are permanently disabled or harmed as a result of a listed vaccination.

    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • tommtomm Member Posts: 231 Pioneering
    edited February 7
    My take on this "vaccine" is that it is an EXPERIMENT no one knows what they long term results of having this mRNA in your body will be, they have no clue, how it will interact with medications people take, the jab has only emergency approval ,and is still in TRIAL until 2023 in the USA , there has already been many reports of people dying within days of having the 1st shot, and others suffering from serious adverse events , in the usa they make this public so far the MHRA hasn't published any stats  I will not be having this ,i have an immune system, Also it is not the way out of this , as they have already admitted we will still need to wear masks and socially distance, and it will not prevent infection or stop transmission , which IMO makes it pointless and a risk for NOTHING
  • tommtomm Member Posts: 231 Pioneering
    charlie79 said:
    Did you know all the pharmaceutical companies who are supplying the vaccine have done a legal form where they cannot be held accountable for any side effects or law suits in the future. That's a big concern and not enough research.
    They demanded this before they developed them too, then you have Bill gates involvement  in this push for the jabs , he has also become the biggest land owner in the usa

  • lisathomas50lisathomas50 Member Posts: 3,785 Disability Gamechanger
    I couldnt have the vacine my specialist  decided not to give it to me  the only opinion I have is is to see how it goes  see if the vacinations work against the mutations  and see if the vacines give you imunity  or will people keep having to have them  and see if there are any long term affects  and what they are 
  • Ross_ScopeRoss_Scope Posts: 3,091

    Scope community team

    tomm said:
    My take on this "vaccine" is that it is an EXPERIMENT no one knows what they long term results of having this mRNA in your body will be, they have no clue, how it will interact with medications people take, the jab has only emergency approval ,and is still in TRIAL until 2023 in the USA , there has already been many reports of people dying within days of having the 1st shot, and others suffering from serious adverse events , in the usa they make this public so far the MHRA hasn't published any stats  I will not be having this ,i have an immune system, Also it is not the way out of this , as they have already admitted we will still need to wear masks and socially distance, and it will not prevent infection or stop transmission , which IMO makes it pointless and a risk for NOTHING
    @tomm

    Hope you're well.

    That's an interesting point of view, I was wondering if you have any sources to back up your claims there? 

    The vaccine has been quite a contentious  subject since the programme started and I can't see that changing any time soon. Of course there is some concern there at how quickly it has been developed and approved, but I doubt that the major governing bodies in this country would approve it if they didn't have confidence in it's safety.

    You're right that people have experienced side effects of varying kinds, my partner received her first jab and her limbs ached for a couple of days, but I would stress that's just one person's experience and everybody is different. It's also worth noting that side effects can occur with most vaccinations (see this information from the CDC), not just the Coronavirus ones, it's just being more heavily publicised on this occasion for obvious reasons.

    My thoughts on the subject are that I am willing to trust the vaccines, which have as I say been approved by the major health governing bodies, rather than take my chances with getting the virus.
    Online Community Coordinator

    Find out more about, and apply for, the Community Co-production Group.

    Want to tell us about your experience on the community? Talk to our chatbot and let us know.
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    edited February 7
    When someone says they have an immune system, it's not surprising, as all animals have one. In most invertebrates this is 'innate immunity,' i.e. the animal has a quick response to any foreign microbe, whereas in vertebrates, there is also an 'adaptive immunity,' i.e. one which adapts & changes to defend against specific microbes, which the innate system cannot do. The adaptive immune system also has a memory, so when it encounters the same pathogen (anything that produces a disease such as bacteria or virus) or vaccination again, it 'remembers,' & quickly responds. Please see: https://www.annualreviews.org/doi/abs/10.1146/annurev-animal-031412-103634
    Another good thing, as far as Covid-19 goes, is that mice have therefore been studied before trials on humans ever began.
    Some interesting thoughts here: https://www.bbc.com/future/article/20200716-the-people-with-hidden-protection-from-covid-19    & T cells have been studied for some time.
    Now to debunk the rest, unfortunately there are anti-vaxxers whose take seems to spread, possibly by social media...enough medical jargon to try & convince, but not backed up by medical science, nor statistics. The main concern is anaphylaxis after any vaccination; risks calculated with the flu vaccine were 1.3 times per million administered doses. In the USA, with the 2 different types of vaccine used against Covid-19, between 2.1 & 6.2 cases per million doses were reported less than a month ago. The takeaway point being, 'The risk of contracting Covid-19 outweighs that posed by the vaccines, officials and clinicians say.'
    However, here in the UK, & I quote from the Covid-19 Green book, Chapter 14a - January 2021, 'There are very few individuals who cannot receive the Pfizer-BioNTech or AstraZeneca COVID-19 vaccines. Where there is doubt, rather than withholding vaccination, appropriate advice should be sought from the relevant specialist, or from the local immunisation or health protection team.The vaccine should not be given to those who have had a previous systemic allergic reaction (including immediate-onset anaphylaxis) to:
    - a previous dose of the same COVID-19 vaccine
    - any component (excipient) of the COVID-19 vaccine
    I would therefore conclude that the vaccines offered here in the UK are incredibly safe, as anyone susceptible to such anaphylaxis would be excluded.
  • woodbinewoodbine Member Posts: 3,707 Disability Gamechanger
    Senior management had hers on Friday and so far all is well, same goes for the other 3 people I know well who have had it, as soon as they offer it to me my only question will be "which arm?"
    I'm not sure scope do the cause an awful lot of good by opening it up for debate, almost 13 million have had their first jab and half a million have had two, as far as I'm aware no one has died from the vaccine, whilst 105,000 have died from the virus.
    my advice is given freely and is correct to the best of my knowledge.
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    With you there @woodbine - there have been deaths following a Covid-19 vaccination, but these were unfortunately mainly in frail, elderly people with underlying disorders, Their deaths have not been linked to the vaccine in any country, & believe you me, I have searched in the BMJ, Lancet, & other medical databases.
    I have tried to give reputable links above, & when someone says, 'I have an immune system,' I can only remain skeptical as to their medical understanding.
    Like benefits, I also feel unbiased. & accurate reports should be given on medical info, especially due to Covid-19 & vaccinations. Is this a debating forum, or one that tries to give accurate info, & debunk the rest?
  • lisathomas50lisathomas50 Member Posts: 3,785 Disability Gamechanger
    I think only time will tell they have said  so many different things over the past year  in my own opinion  no one knows enough about anything  doesnt matter how much its debated on here we don't know anything realy 
  • chiariedschiarieds Member Posts: 7,891 Disability Gamechanger
    Yes, we will all certainly know more in the coming months with further research & continuing publication of studies. I'm not sure who 'they' are, & what 'no one knows enough about anything 'really' means.' I'm not saying I do, altho I do have a little medical understanding, but like @woodbine , don't feel like something as important as this should be debated, unless backed up with fact. Some issues are just too important, & people should not be put off the vaccines offered. I don't feel that different people's opinions matter, rather the UK's & the rest of the world's scientists. If you have links to prove this otherwise, of course please do say.
  • lisathomas50lisathomas50 Member Posts: 3,785 Disability Gamechanger
    @chiarieds in my own opinion the government  have made many mistakes  and the people who made the vaccination  aren't 100 per cent sure  in my opinion only time will tell 

    I do agree that it shouldn't be debated  on here  because even with information given things could change 
  • scotleagscotleag Member Posts: 88 Courageous
    tomm said:
    My take on this "vaccine" is that it is an EXPERIMENT no one knows what they long term results of having this mRNA in your body will be, they have no clue, how it will interact with medications people take, the jab has only emergency approval ,and is still in TRIAL until 2023 in the USA , there has already been many reports of people dying within days of having the 1st shot, and others suffering from serious adverse events , in the usa they make this public so far the MHRA hasn't published any stats  I will not be having this ,i have an immune system, Also it is not the way out of this , as they have already admitted we will still need to wear masks and socially distance, and it will not prevent infection or stop transmission , which IMO makes it pointless and a risk for NOTHING
    It's not a "vaccine," it's a vaccine
  • IchikaIchika Member Posts: 10 Listener
    Yes, I do, I have a concern that it won't work, I had the Pfizer vaccine on Thursday, can someone help me to feel reassured about this, please. 
  • tommtomm Member Posts: 231 Pioneering
    tomm said:
    My take on this "vaccine" is that it is an EXPERIMENT no one knows what they long term results of having this mRNA in your body will be, they have no clue, how it will interact with medications people take, the jab has only emergency approval ,and is still in TRIAL until 2023 in the USA , there has already been many reports of people dying within days of having the 1st shot, and others suffering from serious adverse events , in the usa they make this public so far the MHRA hasn't published any stats  I will not be having this ,i have an immune system, Also it is not the way out of this , as they have already admitted we will still need to wear masks and socially distance, and it will not prevent infection or stop transmission , which IMO makes it pointless and a risk for NOTHING
    @tomm

    Hope you're well.

    That's an interesting point of view, I was wondering if you have any sources to back up your claims there? 

    The vaccine has been quite a contentious  subject since the programme started and I can't see that changing any time soon. Of course there is some concern there at how quickly it has been developed and approved, but I doubt that the major governing bodies in this country would approve it if they didn't have confidence in it's safety.

    You're right that people have experienced side effects of varying kinds, my partner received her first jab and her limbs ached for a couple of days, but I would stress that's just one person's experience and everybody is different. It's also worth noting that side effects can occur with most vaccinations (see this information from the CDC), not just the Coronavirus ones, it's just being more heavily publicised on this occasion for obvious reasons.

    My thoughts on the subject are that I am willing to trust the vaccines, which have as I say been approved by the major health governing bodies, rather than take my chances with getting the virus.

    They  have never injected MRNA in humans before SARS 1, 18 years ago NO vaccine,The Last time they tried to create a mRNA jab all the animals died in the animal trials , when exposed (injected with the virus) PATHOGENIC PRIMING , Sars-Cov-2  the virus Has not even been proven to exist , they hold NO fully isolated sample anywhere , So what ever this jab is it's been synthetically done using Computer software, like what Ferguson (imperial collage )  who has been continually wrong with every pandemic, The tests (RT PCR) cannot detect viruses, and due to the CT  of above 30 cycles ,it's detecting part of the human genome most of us have and other junk, It is also more concerning it's not a Diagnostic test, and they do not need to put a swap up your nose risking injury, the lateral flow test, although is said to detect viral load , isn't a specific test  in that any virus will cause it to deliver a positive result,
    Research the Great barrington declaration, many great professionals included virologists and epidemiologists in the thousands from around the world, but UKGOVT refuses to listen to them, it would sooner listen to it's behavioral psychologists (sage) there are many other DR's speaking out  to try and stop this tyranny we have
  • mikehughescqmikehughescq Member Posts: 5,916 Disability Gamechanger
    We're really interested in hearing your views, so we'd like to know:
    • What was your initial reaction to the news about potential coronavirus vaccines, such as those by Pfizer, Moderna, and AstraZeneca?
    • Do you have any worries or concerns about getting a vaccine against coronavirus?
    • Do you think there'd be any barriers to you getting a coronavirus vaccine?
    • Who do you think should be prioritised when the vaccine becomes available? 
    • Efficacy claims have been clearly exaggerated. The rush means there’s no evidence of effectiveness behind 8 months too. AZ made claims for over 55s without trials. Several of these firms are under investigation for fraud. Although I’m a key worker I calculated I’m more at risk from travelling and queueing than if I just carried on working from home. I can wait. 
    • See above. 
    • Travel and the lower than stated efficacy levels. 
    • A question which needs to be addressed firstly on an international level. You can vaccinate the whole of the UK but it’s fairly useless to then open up borders to travellers from countries with variants or who can’t afford or obtain vaccines. Only ends one way. As you were.

  • scotleagscotleag Member Posts: 88 Courageous
    FAO anyone tempted to be taken in by the claims made by the "Great Barrington Declaration" https://bylinetimes.com/2020/10/09/climate-science-denial-network-behind-great-barrington-declaration/

    Please do as suggested and research it. Plenty more out there.  These are dangerous people, proven wrong at every turn and drawing support from every crank covid denialist, anti-vaxxer & anti-mask activist out there.  
Sign in or join us to comment.