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Non existant support
I will try to make this as short as I can.
Nearly 3 years ago (Jan 2018) at the age of 55 I was diagnosed with ASD (potentially vulnerable, learning difficulties, communication difficulties etc).
I was "Assessed" by a "health and social care" company (2018) and had a letter confirming I am on the waiting list for a support worker (mid 2018) and during the "assessment" I was told by one of the chaps he didnt see ASD as a disability, the other one said he will rush my assessment through because he could see I need help asap (his words).
I then heard nothing for a couple of years and I eventually contacted them (mid 2020) and they had never heard of me, I was told they would look into it and get back to me within a week (didnt happen).
I went to see my GP after the diagnosis (2018) as instructed by my GP if I got a positive diagnosis, the doctor told me to just
"get on with it", "everyone struggles" and "do what I have done for the previous 55 years" I have not been back and stopped collecting all medications (diabetes, blood pressure, cholesterol and preventative medications because of my family history).
To this day I have had no contact and none of this has been questioned.
I contacted social services for help (2017), was hung up on first time, phoned them back, they took my details and I never heard back.
Contacted them again (2020), was "assessed" and the report was not factually correct.
The upshot of the "assessment" was I have to wait for a support worker from the other "health and social care" company..
I eventually emailed one of the people who was part of the diagnosis team (early to mid 2020), she put me onto a specialist adult autism team who sent me a form, I filled it in, sent it back, was told they accept my referral and to this day nothing.
I wont even start with the "benefits" agencies.
I have tried to explain to all of the above but either I am not explaining well enough (communication issues as diagnosed), they are not listening, they dont know what they are doing, they think they know better than a consultant pstchiatrist (and me) or they are blatantly denying me help because they know I can do nothing about it (personally I think its a mixture of them all).
The "assessments" by the social services and the other "health and social care" company contradict the diagnostic report done by a consultant psychiatrist and I know for a fact she is right, I live it.
What I see is I need support to get support (you get the idea Im sure) so Im still in limbo as I am sure many others are.
I am starting to see this as discrimination, ablism, disablism etc but I cant work it out either way and I was hoping a discussion on this topic would help me see some sense in it as it is not a pleasant position to be in to put it mildly.
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