Charities/Organisations that offer support and advice to those with an undiagnosed or rare condition

RacheleLeahSilvera
RacheleLeahSilvera Scope Member Posts: 77 Contributor
in Rare, invisible, & undiagnosed conditions
I find the following pretty helpful so feel free to have a look.

SWAN UK {Syndromes without a name
Rare Disease UK
Genetic Alliance UK

Comments

  • janer1967
    janer1967 Community Member Posts: 21,921 Championing
    Thanks for sharing this as lots of members come here with undiagnosed conditions for support
  • RacheleLeahSilvera
    RacheleLeahSilvera Scope Member Posts: 77 Contributor
    janer1967 said:
    Thanks for sharing this as lots of members come here with undiagnosed conditions for support
    No problem.

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