Charities/Organisations that offer support and advice to those with an undiagnosed or rare condition
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RacheleLeahSilvera
Scope Member Posts: 77 Courageous
I find the following pretty helpful so feel free to have a look.
SWAN UK {Syndromes without a name
Rare Disease UK
Genetic Alliance UK
SWAN UK {Syndromes without a name
Rare Disease UK
Genetic Alliance UK
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Thanks for sharing this as lots of members come here with undiagnosed conditions for support
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No problem.janer1967 said:Thanks for sharing this as lots of members come here with undiagnosed conditions for support
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