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Hi, my name is yellow786flower! Can EHCP documents be changed when you have an annual review?

yellow786floweryellow786flower Member Posts: 13 Listener
edited December 2020 in Education and learning
Hello,
I have a question, if your child who’s autistic, has emotional, anxiety, sensory and has laxity joint problems plus communication, does his EHCP legal documentation stay the same or can you have it change when you have a annual review has our son has changed and just turned 11 a few days ago, he’s in a primary school and does his EHCP come to us first 
help and advise needed
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Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    The EHCP itself won't state a list of your child conditions. It will have in full detail, all details of their strengths, weaknesses, abilities, likes, dislikes, support they need and goals they need to reach throughout the year.

    It will also state the professionals views, your views and your child views. It will have the name of your child school as well.

    Once the review has taken place you will recieve the draft copy of the EHCP, once you have this you need to read through it carefully and if you don't agree with anything that's in there you need to contact your local council and tell them what you disagree with. If you agree there's no need to do anything. You will then recieve the final amended EHCP. They will ask you who you would like them to send a copy to.

    Hope this helps.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chiariedschiarieds Community champion Posts: 7,401 Disability Gamechanger
    Hi @yellow786flower - & welcome to the community. I'm pleased Poppy has answered your query, & if you have any others please let us know. I hope you & your son are keeping well. :)
  • Tori_ScopeTori_Scope Scope community team Posts: 3,661 Disability Gamechanger
    Hi @yellow786flower :) Welcome to the community! I'm glad you've found us. 

    Just to let you know, I've moved your post into our education category and changed the title slightly so that our members will be able to find your post more easily.

    I hope the above advice has helped.
  • janer1967janer1967 Community champion Posts: 8,417 Disability Gamechanger
    Hi and welcome from me too
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Hi Poppy,
    this is our son’s second EHCP, I had a annual review with the current SENCO who’s only been in her training for a year she however was a class, and she has been in the primary school for 10 years but she recently told me in a telephone conversation that she has deferred her course?
    and to top it all up she has not filled in the EHCP nor the one plan she has so many mistakes that the new specialist teacher and a educational facilitator had to go into school, to tell her that we weren’t happy with the one plan and the EHCP? Has for a start she didn’t have our son there and he never gave a input.so the 1 plan has been recalled again so we can see and put our input has our son has grown up dramatically.
    but the SENCO, the headteacher has said the 1-1 support (LSA) is a floater and not our sons LSA.
    we feel our views and voice isn’t heard, from the current staff, but when our son Was in yr 4 the year he started they listen received the EHCP and now not bothering, the school aren’t excepting that he has autism with the other needs,but keep on saying he academically bright ? This we know has he’s has high functioning autism.
    But our objection is they shout in the class and not addressing his needs, has this is his crucial year 6

    We have been told that we can’t just put 1 secondary school and are told by the EF to look for another school, that we are after Christmas.

    hope somebody could help us.

    has the one plan has just been copied and paced by the previous SENCO notes..

    off to bed now 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Why have you been told you can't just name one school? The reason you name one school only is so that the extra funding can be put in place, to support his needs.

    You say the school don't acknowledge his Autism? has he had an official diagnosis?

    When the review is done and the draft EHCP is produced, if you're not happy then you need to disagree with it and tell them what you disagree with. I'm not sure what else to advise you with here.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Hi Poppy 123456,
    our son was diagnosed in September 2018.
    we changed schools mid term in another borough, he was doing really well has everything was put in place, but he had a few hiccups along the way has in the school where we currently reside (Essex) he was put in a exclusion class with lower level children with different needs, and wasn’t in with his peers for roughly 1 year, however before he got diagnosed we were looking for another school, this is when we came across the current school he’s in which is further away, when he was appointed the EHCP originally in his current school, the school had a autistic specialist teacher working at the school 3 days a week, and the two MDA had been trained to be LSA that worked with our son / 1st one I the morning and the other LSA after lunch, I was dropping him off and the taxi fares were expensive, but eventually we fought to get him the transportation.
    From September 3rd he got transportation a mini bus picks him up from our driveway (home) and takes him to school to pick up the other children and on the way back he’s the last drop off. It is taking the driver a hour..

    but now the issue we have is the current new SENCO held a meeting with her, the new class teacher, the support worker who’s   met to be our sons new LSA but hasn’t received any training, until I complained to Send and then a new specialist teacher and a send facilitator when in and discuss our concerns to the school, and the facilitator had got back to me and said she saw the head and the SENCO and they told her that our son was thriving.
    i informed the facilitator that the issue we are having with the school is they school hasn’t throughly looked at his diagnostic but over look firstly he has a disability, has you may not able to see it. For example he’s not in a wheelchair? 
    I we right  has to say the school needs to see his disability first like he’s autistic the look at his academically he maybe thriving but most foremost to look at his disabilities first then look at hid what he learning achievements??
    but the school doesn’t get him 
    need advice ?? 

    Nasima 


  • yellow786floweryellow786flower Member Posts: 13 Listener
    We have called a relook of his one plan that the school SENCO made a blunder of our son EHCP and his one plan 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I'm not understanding what exactly you're asking because some of what you're saying isn't making any sense.

    Some people that have Autism thrive in a lot of things and they cope very well with their disability, whilst other people struggle and need more support.

    If you think the school are treating him unfairly then you need to speak to the school about this. They should be giving him the support that's laid out in his EHCP.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    He isn’t getting the support what was agreed coz the school keeps saying it’s Covid and thee are limited 


    I have another question 
    when you have a annual review for his EHCP do you have to get the child's input and views after all it is there education? 
  • yellow786floweryellow786flower Member Posts: 13 Listener
    He has a EHCP but been told by current SENCO we can’t change anything coz it already been sent and we can’t change anything now 
  • yellow786floweryellow786flower Member Posts: 13 Listener
    We have spoken to the school but they are not helping,

    look the other day, our son was unwell he had a COVID-19 home test and went he back to school Thursday gone, he was in his class then taken out and the SENCO, support worker and the school senior receptionist telephoned my partner and said they will not let our son go into the class until we give them proof? Although my GP knows 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    When a review takes place the person that's doing the review will gather all the information that's needed ready for when you have the appointment to discuss all the details. My daughter has always given her views too, as well as my views and the schools views, which would be the professionals view.

    I'm starting to get quite confused here because you're asking so many questions and not much makes a lot of sense.

    Your Covid question, your son should not have returned to school until the test results have come back. If the result is negative then he can return and yes i would fully expect the school to ask for proof that the test was negative, if you've sent him in. It doesn't really matter whether your GP knows, the school have a responsibility to keep everyone safe.

    I can totally understand if the school are unable to give full support, as they would have done before Covid. Everyone is working under the most extreme conditions so you really have to give some leeway.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    We did give the school the relevant information about his Covid test we gave them the evidence that it was negative.

    thank you for all your input 
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Sorry to bother, but we have a dilemma, my partners father pass away a day after our son’s birthday but we’ve not told our son has of yet, is there any one that can advice us how to go about this has, our son knew he was in a care home and his grandfather had Alzheimer’s.
    we were due to visit my partners father just before Christmas..but tragically which lost him..


  • Ross_ScopeRoss_Scope Scope community team Posts: 2,861 Disability Gamechanger
    So sorry to hear about your loss @yellow786flower :( 
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  • Tori_ScopeTori_Scope Scope community team Posts: 3,661 Disability Gamechanger
    edited December 2020
    Hi @yellow786flower :) I'm very sorry to hear of your loss. I'm sure this must be extremely difficult, so please don't worry about being a bother! We're all here to help and support you where we can. Are you and your partner coping okay? 

    The National Autistic Society have some advice for parents and carers on bereavement and autism, which you might like to read. I've copied and pasted some of the information below:
    How can I help my child through a bereavement?  

    Your child’s grief will need to be recognised and understood. They will need time and space to express their feelings in a way that works for them.  
    There is a limited amount of research, information or guidance on how to help autistic children deal with death and bereavement, but it might be helpful to think about:  
    • including your child in rituals around bereavement and explaining them, for example vigils and wakes  
    • supporting your child to understand, express, and cope with their grief  
    • talking therapies – your child may find these helpful in dealing with their grief or other emotions, but make sure they are adapted or suitable for autistic people.
    Talk to your child and prepare them 

    You’re likely to be going through a difficult time yourself but if you can put in place some of these supportive techniques, you can make the situation easier for your child.  
    • Talk about the situation rather than avoiding it.  
    • Prepare your child should someone they know be terminally ill.  
    • Use simple, direct and unambiguous language, avoiding euphemisms that might be taken literally, ie don’t tell your child that someone has gone to a better place, or gone to sleep rather than telling them they have died.  
    • Tailor the information to the needs of your child and their level of understanding.  
    • Recognise that everyone expresses grief differently - your child will need support to express their grief in a way that is right for them.  
    • Explain to your child that they may see family members crying or acting unusually.  
    • Provide as much information as possible about what to expect when attending hospitals, funerals and wakes, including visiting places in advance if this is possible or looking at pictures.  
    Autistic people have said that they felt they needed more support with the grieving process.  
    There are many types of counselling and therapy including cognitive behavioural therapy (CBT) which has been shown to be effective for some autistic people. All talking therapies should be adapted to be effective for autistic people. If you would like to access therapy for your child, you can do this through your GP or privately.  
     
    Your next steps  

    Useful links and online resources  
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Good afternoon Tori,
    my partner hasn’t cried out loud has of yet. But now we have a date for his funeral ( my partners father will be cremated) 

    Tori thank you for your kind words and bereavement information..


  • Tori_ScopeTori_Scope Scope community team Posts: 3,661 Disability Gamechanger
    It can take people some time to process what's happened, and everyone deals with it in their own way @yellow786flower. I think as long as your partner knows that you're there for them when they need you, that's enough.

    No problem. I hope it's helped? Let me know if you want me to do a bit more digging for more information.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Tori do you know of any training courses on EHCP; or special needs education that we can go on in helping our son get the best help and us to understand the terminology that the professional use in terms of his education 
    has our son has sensory, Emtional and has higher functioning autism 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    we have a question?? Is it illegal to discriminate autistic child, who has emotional, anxiety and sensory needs and is prone to loud and shouting in classroom, to be sent to the clock room to quieten down ?
    this I ask because we were told he is taken in the SENCO’s office or in a quite library etc or they gave him ear defenders? 
    We were reassured regarding this in our meeting with outside professionals 

    hope someone could help ?

  • Tori_ScopeTori_Scope Scope community team Posts: 3,661 Disability Gamechanger
    What is the clock room @yellow786flower

    Regarding the EHCP training, I found the same resources as Poppy when Googling. I did find some videos, which I've linked below:
  • chiariedschiarieds Community champion Posts: 7,401 Disability Gamechanger
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    we have a question?? Is it illegal to discriminate autistic child, who has emotional, anxiety and sensory needs and is prone to loud and shouting in classroom, to be sent to the clock room to quieten down ?
    this I ask because we were told he is taken in the SENCO’s office or in a quite library etc or they gave him ear defenders? 
    We were reassured regarding this in our meeting with outside professionals 

    hope someone could help ?


    I don't think they are discriminating him at all. Even though he's autistic, he still needs to learn right from wrong. He could be disrupting the rest of the class so maybe a good thing that they are removing him from class to give him time to quieten down.

    Ear defenders can help him to cope with any loud noises around him. Some people with Autism are affected by sudden loud noises.

    It maybe a good idea to have a read through some of the links that have already been posted. Having some understanding of what Autism is will definitely help you.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • yellow786floweryellow786flower Member Posts: 13 Listener
    Thank you for the information 

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