Cerebral Palsy
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Hi, my name is Daisy_olive_mummy! Any advice on being accepted for self-funded SDR?

Daisy_olive_mummyDaisy_olive_mummy Member Posts: 1 Listener
edited December 2020 in Cerebral Palsy
Hi. Daisy has just been accepted for self funded SDR. She’s level 4... any advice greatly received x

Replies

  • janer1967janer1967 Community champion Posts: 6,175 Disability Gamechanger
    Hi and welcome sorry I dont have any advice just wanted to welcome you and hope other members can help 

    Maybe look in our parents and carers section 
  • chiariedschiarieds Community champion Posts: 6,292 Disability Gamechanger
    Hi @Daisy_olive_mummy - & welcome to the community. I'll ask @Richard_Scope who may be able to answer your query about SDR, as he's this community's CP Specialist Officer.
  • Cher_ScopeCher_Scope Community Team Posts: 2,424 Disability Gamechanger
    Hello @Daisy_olive_mummy and welcome to our community.  I hope you and Daisy are good this Friday. 

    Until other more knowledgeable CP folk come along, I just wanted to signpost you to Scope's Selective Dorsal Rhizotomy webpage which has lots of helpful info on.

    If you have any particular questions don't be afraid to ask them.  We've love to support you though this.  
    Online Community Co-ordinator

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Tori_ScopeTori_Scope Community Team Posts: 2,747 Disability Gamechanger
    Welcome to the community @Daisy_olive_mummy :) 

    I've moved your post into the CP category for now, and changed the title slightly so that it'll be easier for other members to find.
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • Richard_ScopeRichard_Scope Community Team Posts: 2,489 Scope community team
    Hi @Daisy_olive_mummy
    Great to meet you. Have the medical team gone through all of the implications of SDR surgery? From speaking to other families whose children have undergone this procedure and from my experiences of corrective surgeries, the key thing is physio, physio and more physio! It is also very important to manage Daisy's expectations of what the surgery can help her to achieve. By that I mean it is not a cure for her CP but it will with hard work, will allow her more mobility.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
Sign in or join us to comment.