Worried bout my future — Scope | Disability forum
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Worried bout my future

cupcake88
cupcake88 Member Posts: 1,009 Pioneering
Hi every one I’m in my early 30s me and my partner rent our flat we have just extended our tenancy for another year so we are staying in the same area  . I do worry bout the future me and my partner want to own property but there’s only one income comming in as I can’t work . 

I do worry that I will never be able to work again I don’t think il ever be able to work full time again maybe part time in the future . I do worry that I will never be able to work again and it scares me . I don’t feel like I’ll ever get better . Does any one else share the same Thoughts as me?


I find it very hard socialising and being outside my home so I just don’t see how I can ever work.  

Comments

  • janer1967
    janer1967 Member Posts: 12,876 Disability Gamechanger
    It may not seem like it at present but with the support you are now getting will help you to recover 

    Give yourself the time and make your recovery your full time job

    Just because you may not be able to work doesn't mean you have no future lots of people including myself can no longer work you just have to find other outlets to focus on 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • woodbine
    woodbine Community Co-Production Group Posts: 5,659 Disability Gamechanger
    I had to give up work  at the age of 38 due to my condition, I am now almost 62, true its hard but what must be is, @cupcake88 I wouldn't worry too much about not being able to buy a property more and more people are being pushed into the rental market or chosing rental over buying, it does have its advantages, have you considered putting your names on the councils waiting list or housing associations? both of who usually offer much lower rental cost? And before anybody jumps in I do realise these list can be long but being disabled can often give you a push up that ladder.
    I am a person with epilepsy not an epileptic, my illness doesn't define me.
  • cupcake88
    cupcake88 Member Posts: 1,009 Pioneering
    Hi @janer1967 thanks so much for your reply you are such a nice person and always support me and check in with me it’s always appreciated . 

    @woodbine thank you for your reply I knew some one who waited 3 years For housing and spent times in hostels with her kids there seem to be very few available now because people buy them and they don’t replace .

    I do really worry bout the future .
  • woodbine
    woodbine Community Co-Production Group Posts: 5,659 Disability Gamechanger
    My maxim throughout my life (the good bits and the bad) has been "look after today let tomorrow take care of itself"   :D
    I am a person with epilepsy not an epileptic, my illness doesn't define me.
  • cupcake88
    cupcake88 Member Posts: 1,009 Pioneering
    Every one I know has a house a steady job and I struggle to Leave the front door of the door bell goes I’m fearful some is going to kill me . @janer1967 as you mentioned I’m getting support  all tho I don’t like my mental health nurse I don’t think she likes me either even tho I have been with a nurse for nearly a year she told me on the phone yesterday that I haven’t been Under them that long and my treatment has barely started yet . I have also reading quite a few articles and reviews where people under the care of the same team I under had committed suicide while in there care so that doesn’t give me much hope x 
  • janer1967
    janer1967 Member Posts: 12,876 Disability Gamechanger
    @cupcake88 your thoughts are all a symptom of your condition 

    The fears the worries like I said b4 your full time job is your recovery and that's the most important job you will ever have 

    I wouldn't stress about not owning a home tbh I did and it was just a noose round my neck . Costs of repairs and trying to sell you are very tied to a mortgage 

    As mentioned the council waiting lists may be long but getting on them is the start 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • poppy123456
    poppy123456 Member Posts: 24,776 Disability Gamechanger
    I wouldn't worry about everyone else, we are all different. It's not easy owning your own home either.

    I can tell from all your other threads and comments that you worry about everything, which doesn't help you. My only advice is not to think about tomorrow, concentrate on now because in reality tomorrow never comes.
  • Tori_Scope
    Tori_Scope Posts: 6,632

    Scope community team

    As the others have said, try not to worry too much @cupcake88. Working on your health should be your priority. And try not to think too much about what previous patients have done under the care of your team. I'm sure many others have had much better outcomes.

    Thinking ahead to a time where you might feel more able to work, have you considered a role where you might be able to work from home? More and more employers are moving towards home working due to the changes they've been forced to make during the coronavirus pandemic. 
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  • cupcake88
    cupcake88 Member Posts: 1,009 Pioneering
    @poppy123456 @janer1967 you both know me so well ha you know I panic a lot can you imagine what I’m like with no medication still pretty bad . I worry all day  every day I also live with the fear of just not feeling normal I want all my anxiety and pychosis to go . Thank you both for caring and being so nice I appreciate it . You always both check on me and thank you xxx

    @Tori_Scope thanks to you also tori for also checking on me and your kinds words mean a lot , 

    its means so much that I have friends on this forum as I find it hard to make friends thanks for all your support xxxx 
  • janer1967
    janer1967 Member Posts: 12,876 Disability Gamechanger
    Your welcome anytime 
    I have professional experience in HR within public,  private, and charity sectors.  If I can help I will 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,063 Disability Gamechanger
    Hi @cupcake88 - I'm so sorry you are not so good, & I'm sure you would wish things different. All I can say as an older person is that 'things' such as owning your own home, or anything else, just don't matter. Yes, we all need to feel some financial security, but, if that's OK, what matters are people; your relationships. You're fortunate in having a loving partner; I'm fortunate because of my children.....there's not a price that can be put on that. That's why it's also difficult to compare things with others you may know. Perhaps you actually have more than they will ever have, or know.
    What you've gone through makes you the strong person you are. We all have our weaknesses, but also our strengths, because of what we've gone through.
    I wonder if in the future you might consider volunteer work with people that have mental health problems. You would have so much insight with this which would be so very helpful.
    For now please do take very good care of yourself; look around you, & see what you have. :)

  • Ross_Scope
    Ross_Scope Posts: 5,461

    Scope community team

    I can't really add anything to the fabulous words from other members @cupcake88, but the community will always be here to support you as best as we can. 

    Have you considered volunteering? That can be a fun, pressure free way to build up skills and confidence, with the eventual aim of finding a job. But like the others have said, I wouldn't worry too much about others and if they do or don't have a house, or if they do or don't have a job, everyone is different. 

    What matters is that you look after yourself and both you and your partner are happy :) 
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