Cerebral Palsy
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Hi, my name is OnMyLastNerve! I'm unable to visit my husband in hospital due to Coronavirus

OnMyLastNerveOnMyLastNerve Member Posts: 3 Listener
edited December 2020 in Cerebral Palsy
I am a carer to my husband born with CP.

He is currently being held captive (!) in hospital following a bout of Sepsis, and I am terrified!

I know he is in the best place but oh Lordy do I feel useless, I can’t visit currently as they have had positive COVID tests on his ward in the last 7 days. He is clear currently but at 64 with COPD CP and recent Sepsis I’m on edge the whole time.

I just wanted to say Hi, and I look forward to chatting with you and I promise I’m not normally quite so dramatic 😉

cheers!

OMLN


Replies

  • janer1967janer1967 Community champion Posts: 6,413 Disability Gamechanger
    Hi and welcome glad you have joined 

    Sorry your husband is in hospital and you are not able to see him . Hope he gets home soon 
  • chiariedschiarieds Community champion Posts: 6,434 Disability Gamechanger
    Hi @OnMyLastNerve - welcome to this great community. It must be a difficult time for you, especially not being able to visit. Does he phone you? Do you know if he'll get home for Christmas yet?
    You should come & join us in our virtual 'Coffee lounge' for some light-hearted chat as a bit of a distraction. There's a link to this at the top of this page. You are also most welcome to chat here at any time as there's usually someone about. Thank you for joining, & be sure to let us all know how you both get on. :)
  • Tori_ScopeTori_Scope Community Team Posts: 2,754 Disability Gamechanger
    Hello and welcome to the community @OnMyLastNerve :) It's nice to meet you!

    I'm sorry to hear about your husband. I'm sure that must be an extremely difficult situation for you both, so you're not being dramatic at all. How is he getting on? 

    I've moved your post into the CP category, but you might also like to visit our parents and carers category to find other carers who might be able to relate to your experience. 
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • OnMyLastNerveOnMyLastNerve Member Posts: 3 Listener
    Thank you ☺️
    I hang on to the fact that he is a fighter, but I have had some very difficult conversations while he has been in there and getting more and more furious at the way people are making assumptions about him based on his CP which as you will all know is such a tiny part of who he is.... I feel very naive that I genuinely didn’t realise that people behave that way. 

    He probably won’t be home for Xmas, but that’s ok we can do that another time, I just want to scoop him up and make him better .... he would hate that, he detests being fussed over 😂

  • Tori_ScopeTori_Scope Community Team Posts: 2,754 Disability Gamechanger
    I'm sorry that you've found people have been making assumptions @OnMyLastNerve. There certainly is a long way to go in changing people's attitudes towards disabled people. 

    Absolutely, you'll be able to celebrate properly once he's home and well. Fussing over someone who doesn't want to be fussed over is part of the fun :D 

    I'm sending my very best wishes to you both. Jump on here to vent or seek some advice and support any time you need to!
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • Richard_ScopeRichard_Scope Community Team Posts: 2,506 Scope community team
    Hi @OnMyLastNerve
    Great to meet you. How are you and your husband doing?
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • OnMyLastNerveOnMyLastNerve Member Posts: 3 Listener
    Hi Richard, we are well thank you 😊  just waiting for a care package to be put in place then he can come home. 
    Then I guess the hard work begins, for him at least. 
    I’ve no doubt one of both of us will be regular visitors to the support pages very soon ☺️
  • janer1967janer1967 Community champion Posts: 6,413 Disability Gamechanger
    Hi I'm glad yo hear your husband will be coming home soon and with a care package fingers crossed for you both 
  • chiariedschiarieds Community champion Posts: 6,434 Disability Gamechanger
    Hi @OnMyLastNerve - thank you for sharing the good news that you'll get your husband back home shortly once his care needs are sorted. You're allowed to 'fuss' him just a little once he's home. Please do kindly keep us updated as to how you both get on, thank you. Take care of yourself too. :)
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