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hoping to get support and advice from others in a similar situation

rainbowstarrainbowstar Member Posts: 1 Listener
in Disabled people
Hi 
I’ve just joined and hoping to get support and advice from others in a similar situation... I’m in my 40s but have lower back and hip issues which affect my mobility and day to day life. 
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Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    Could you be a little more specific about what advice and support you would like please? I'm sure others will be happy to give advice if you give some more information.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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  • rainbowstarrainbowstar Member Posts: 3 Listener
    Thanks for your reply! I’ve got bilateral Coxa Valga and excruciating pain in my lower back., travelling across my pelvis and down through hip. Sometimes everything ‘jams’. I’m taking a lot of high dose pain medication which helps to a point but not enough to get me through the night pain free. 
    I would love to know if anyone has similar, any ideas as to what I could do to help myself or any potential treatment. Will be getting MRI at start of year. 

    Hope this helps!! 
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  • Ross_ScopeRoss_Scope Posts: 3,105

    Scope community team
    Hello @rainbowstar

    Welcome to the community, glad you've joined us. Sorry to hear you're struggling so much with your pain. 

    Is your GP helping you to come up with ways to ease it? Have you discussed the possibility of a pain clinic?
    Online Community Coordinator

    Find out more about, and apply for, the Community Co-production Group.

    Want to tell us about your experience on the community? Talk to our chatbot and let us know.
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  • rainbowstarrainbowstar Member Posts: 3 Listener
    Not really - physio won’t touch me due to pain I’m in. I see a fab osteopath which helps to an extent. 

    I just feel my GP continues to give me drugs (anti inflammatory/and 3 pain relievers including morphine/ as well as diazepam for any spasms.
     Going private for MRI to speed things up which is expensive but I can’t go on like this. 
    I think I’ll try to speak to someone about how to space meds out more to get more relief? 
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