Leg problems being ignored by Docs — Scope | Disability forum
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Leg problems being ignored by Docs

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TylaGismo2
TylaGismo2 Community member Posts: 17 Connected
Hi everyone so I've been having leg problems since April this year, and no one had taken me seriously because of that I developed a blood clot in the back of my knee which is being treated but now there's new pain in the same knee and my knee feels bloody awful it's like my bones are all sliding around no painkillers are helping and none of my doctor's seem to care 

I personally feel like it's cartilage damage but I can't get an MRI till mid January and the pain I'm in is unbelievable bad I'd rather someone rip my leg off than deal with this... I can't even get around my house I can't get up or downstairs and can't put any weight on my leg or even lift it but everyone thinks I'm fine 
I just wanna give up 

Anyone with experience with cartilage issues in the knee, what did it feel like to you? 

Thanks for reading All my rambling 

Comments

  • jinnty
    jinnty Community member Posts: 57 Courageous
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    @TylaGismo2
    Im sorry that my experience with cartilage problems was when I was very young, now sadly, I’m old, so can’t remember how it was. But I wanted to reach out to you and say that I’m so sorry that you are not getting anywhere with your drs. Unfortunately, as myself and my family are having the same problem with the dr not being interested. I have heard good and bad things about getting to see a dr, my only advice is to write to the practice manager and put your complaint in that way, and hopefully it will help you. I sincerely hope that you get some relief and help soon. Stay safe and take care. 
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
    edited December 2020
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    @jinnty Thank you lovely I'm not one that likes to complain but it may have to come to that 
    I've cried myself to sleep for the past week cause I've been in so much pain but no one seems to care 
    And because I can't get up or downstairs I may not be able to spend Christmas downstairs with my family ? it's devastating
  • jinnty
    jinnty Community member Posts: 57 Courageous
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    @TylaGismo2
    if the pain is that bad, that you can’t physically put any weight on it, then please call 111, and explain to them that you are unable to weight bare, and about your previous blood clot, and that you’re extremely worried about the fact of the pain and the loss of weight baring. Hope this helps. Best of luck and hope you get some help. 
  • Lou67
    Lou67 Community member Posts: 7,237 Disability Gamechanger
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    Hi @TylaGismo2.  I just wanted to say hello and say how sorry I am to hear off the pain your in, I think you definitely need to push for your doctor to take you more seriously and I hope they do. I suffer from severe osteoarthritis in both knees and my hands and feet, I’m currently waiting on 2 knee replacements and struggling with the pain daily. I take painkillers that only take the edge of my pain, I also put pain patches on both knees for 12 hrs a day, I hope you can get some help soon take care.
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    @jinnty I have called 111 multiple times this week and the most they said was take more painkillers they just don't want anything to do with me anymore ?
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    @Lou67 bless you sweet I can't imagine how painful that must be, I've just weaned myself off of tramadol and I don't wanna touch opiate painkillers anymore the withdrawals are just too intense 
    But nothing is helping my pain now and I'm really concerned that something's happening with my joint because of how much it's grinding and sliding it's agonising ? 
  • Lou67
    Lou67 Community member Posts: 7,237 Disability Gamechanger
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    Oh I’m so sorry your going through this, I also feel the grinding in my knees and feel asif they are going to lock altogether, you could try mentioning the pain patches although I know everyone is different and it would be upto your doctor the ones I get are called Ralvo 700mg medicated plaster. I hope this information will be helpful but as I sd it’s upto your doctor.
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    @Lou67
    My Doc's are bloody useless they refuse to put me on any helpful painkiller I've mentioned patches and they don't care at all won't even try ?
  • Lou67
    Lou67 Community member Posts: 7,237 Disability Gamechanger
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    Only other thing I can think off is to present at A&E and see how that goes, good luck let’s know how it goes. 
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    @Lou67
    I'm trying to leave a&e as a last resort cause I can't actually get up my stairs anymore my leg is that bad 
    But I'm gonna nag my Dr again tomorrow see what they say and I'll update on here! ?
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
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    Hi @TylaGismo2

    I'm so sorry to hear about the pain you're going through and that the health professionals in your life are letting you down. 

    Have you tried requesting a new GP? A fresh pair of eyes and ears might be just what you need. Just a reminder, even though I'm sure you're already doing this, I always find it helps to stay calm when explaining your symptoms and give careful consideration to how you're describing them, this can help those you're talking to gain a better understanding. I'm not saying you don't do this, it's just what I try to do.
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  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi I'm sorry to hear of your pain and lack of support from gp as others have said it may be worth a visit to a,&e not ideal I know but if you cant weight bear then you need to see someone or do you have a out of hours drop in centre 

    Please dont wish to have your leg ripped off as i am an amputee and know too well what this is like 

    Try going up and down stairs on your bottom using your hands for lifting weight 
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    Hey everyone I forgot I'd posted this thread, so um bit of a wild ride this was it turned out my leg pain was a broken femur and bone cancer 😅 
    Thank you though to everyone who'd commented and sympathised with me
    I had to have the leg removed but 3 years no cancer yey me!! 
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    Wow, thank you for the update @TylaGismo2! Welcome back! Congrats are 3 years of no cancer though!

    How are you doing now?
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • Ray212
    Ray212 Community member Posts: 345 Pioneering
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    Hey everyone I forgot I'd posted this thread, so um bit of a wild ride this was it turned out my leg pain was a broken femur and bone cancer 😅 
    Thank you though to everyone who'd commented and sympathised with me
    I had to have the leg removed but 3 years no cancer yey me!! 

    Wow thats incredible. Sorry you lost your leg :/ 

    And it just shows how doctors are just shocking in the way they dismiss people. I won't go into details but it took me two years to get a scan on my back after my doctor telling me they wouldn't do it. And when I got the scan. Cancer.

    So now even if it turns out to be nothing I make sure I get the issues looked at properly and not fobbed off.

    Glad the cancer hasn't come back and wish you well for the future
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    Wow, thank you for the update @TylaGismo2! Welcome back! Congrats are 3 years of no cancer though!

    How are you doing now?

    Hey I'm doing better!! Adjusting to life with one leg has been odd but it's better than living with the pain that I used to be in ❤️
  • TylaGismo2
    TylaGismo2 Community member Posts: 17 Connected
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    Ray212 said:
    Hey everyone I forgot I'd posted this thread, so um bit of a wild ride this was it turned out my leg pain was a broken femur and bone cancer 😅 
    Thank you though to everyone who'd commented and sympathised with me
    I had to have the leg removed but 3 years no cancer yey me!! 

    Wow thats incredible. Sorry you lost your leg :/ 

    And it just shows how doctors are just shocking in the way they dismiss people. I won't go into details but it took me two years to get a scan on my back after my doctor telling me they wouldn't do it. And when I got the scan. Cancer.

    So now even if it turns out to be nothing I make sure I get the issues looked at properly and not fobbed off.

    Glad the cancer hasn't come back and wish you well for the future
    Honestly it was awful for me I had 5 doctors visits and 4 a&e visits and all anyone would tell me is "you just need to lose some weight" 

    So as weird as it is to say I was almost relieved when they said I had a broken femur and cancer, I literally said out loud "okay so I'm not crazy then" 

    How're you doing? 
  • Ray212
    Ray212 Community member Posts: 345 Pioneering
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    I had something similar, being told about weight. It seems their default setting. Where nothing else exists, blame weight.

    It was quite a shock for me when I found out but I do remember thinking in my head "I knew it!"

    I'm ok thanks, 7 years cancer free so far fingers crossed. Well apart from some skin cancer I guess but other than that yeah all ok so far :)
  • Lou67
    Lou67 Community member Posts: 7,237 Disability Gamechanger
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    @TylaGismo2
    Hi nice to see you posting back on here. 
    I’m so sorry you ended up loosing your leg, and had cancer.
    Im so glad you’re cancer free now. But it’a shocking the amount of times you reached out to your doctors and at A&E to be dismissed each time. 

    Take care ❤️

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