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Spinal Cord Stimulator

Stuntman1965Stuntman1965 Member Posts: 3 Listener
edited December 2020 in Disabled people
Hi,
I have been reading that some of you are possibly waiting for a Spinal Cord Stimulator, and as yet don't know of anyone who has one fitted,well hope  I can help as I had one fitted in October 2020 just 9 weeks ago

Replies

  • janer1967janer1967 Member Posts: 9,104 Disability Gamechanger
    Hi and welcome I am sure other members will be interested in your experience 
  • chiariedschiarieds Member Posts: 7,907 Disability Gamechanger
    Hi @Stuntman1965 - & welcome to the community. Thank you for joining & offering to share your personal experience with a Spinal Cord Stimulator. How have you found it? Has it helped reduce your chronic pain? I know it's comparatively early days, but hope it's working well for you. Have you found any negatives? May I ask what condition you have, if that's OK? Again, thank you for sharing, & I look forward to hearing more from you. :)
  • woodbinewoodbine Member Posts: 3,715 Disability Gamechanger
    Hi @Stuntman1965 good evening and welcome to scope, hope you had the best possible Christmas (all things considered).
    my advice is given freely and is correct to the best of my knowledge.
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Welcome to the community @Stuntman1965 :) Thanks for offering to share your experience of Spinal Cord Stimulators. How have you found it so far? 
    Online Community Coordinator, she/her

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  • Stuntman1965Stuntman1965 Member Posts: 3 Listener
    Hi everyone , Yes I has a stimulator fitted middle of October 19 after suffering a broken neck back in 2009 from a workplace accident,then 2 failed operations having a neck fusion & titanium cage fitted. Let me be honest with you getting a spinal cord stimulator fitted is not straight forward, you have to go through a lengthy process of assessments before it happens, then depending which you have (I had the Abbott system) you have a trial initially to see if it helps before going onto the real thing.
    When you do have the operation be prepared for a lot of pain & discomfort for around 6 to 8 weeks as a minimum could even be longer, I still have a lot of discomfort 11 weeks on from the op & it does stick out of your body if like me you are of slim builds.
    I might have scared some of you but i'm just being truthful, it is worth all the hassle in the long run. Any questions i'm only to happy to help if I can 

    Dave
  • sara05sara05 Member Posts: 6 Listener
    Hi, I have been listed for a scs but have been told it might be a year or 2 away due to covid 🥺
    when you say a lengthy process, is it the amount Of appts or the time in between? How long did you wait between being told you would be listed to you getting the surgery? Thanks in advance 😊
  • Stuntman1965Stuntman1965 Member Posts: 3 Listener
    Hi Sara, the process of appointments is very slow you have a suitability appt then go for interview with the consultant then the pain clinic nurse specialist and a psychological therapist. Don't be put off by all this I had mine done in Leeds n I live in North lincs, the benefits outweigh the negatives but it did take almost a year to finally get done mainly due to the covid situation, hope this helps

    Dave 
  • sara05sara05 Member Posts: 6 Listener
    Hi, yes that’s all very helpful thank you! Mine will be in Leeds too and I’ve been struggling to find much info that isn’t from a London hospital or USA. I was told in October I would be listed but with covid seemingly getting worse I can’t see it happening for ages 😔 I feel like there’s a carrot dangling and I’m desperately trying to stay positive but my god it’s exhausting! I’m terrified that they will say no at one of the appts 🙁
    How did you find the trial? 
    really appreciate you sharing your experience and it’s good to hear the truthful side as it’s hard to imagine the recovery involved. 
    thank you 😊

    Sara 
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