Cerebral Palsy
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Hi, my name is Fatt5! My daughter with CP is struggling mentally with wearing an orthotic splint

Fatt5Fatt5 Member Posts: 1 Listener
edited December 2020 in Cerebral Palsy
Hi I am Fatima, my little girl is called Jemima and she has cerebral palsy. Jemima is 6 years old and wears an orthotic splint on her right leg. More recently, she has been really struggling with this mentally and questioning why she has to have this. Just wanted to find some people I could get to know and talk to about the many ongoing battles which will lay ahead. 

Looking forward to getting more involved with Scope.

Replies

  • janer1967janer1967 Member Posts: 9,104 Disability Gamechanger
    Hi and welcome 

    There are lots of members here with CP who will be able to advise and help and maybe some advice in our CP or parents and carers section 
  • Tori_ScopeTori_Scope Posts: 4,010

    Scope community team

    Hi @Fatt5 :) Welcome to the community! I'm glad you've found us.

    As janer1967 said, we have plenty of members here who have CP, so hopefully they'll be able to offer you some advice and support. I'll tag in our CP Specialist Information Officer @Richard_Scope here too, as he might be able to offer you some insight on his return.

    I've moved your post into the cerebral palsy category, and renamed it slightly, so that our members will be able to find your post more easily. I'd encourage you to take a look through this category, as well as the parents and carers category, as janer1967 suggested.

    Additionally, if you live in England or Wales, I'd encourage you to take a look at Scope's Parents Connect service. It's a 6 week programme where you can chat (online at the moment, of course) to other parents, and find out more about the support available to you. 
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  • chiariedschiarieds Member Posts: 7,907 Disability Gamechanger
    Hi @Fatt5 - & welcome to this friendly & supportive community, Fatima. I hope you have found the advice above helpful, & I'm sure Richard_Scope will be able to add to this. :)
  • Richard_ScopeRichard_Scope Posts: 2,725

    Scope community team

    edited January 4
    Hi @Fatt5
    Really great to meet you!
    I remember the days when I hated wearing my splints too. It's very normal for your daughter to notice and question things about herself. We all compare ourselves to others at one time or another. 
    Scope produced a book called Celine's New Splints (here is the free PDF). It might help you have a conversation about why she needs to wear the splint for now. Your daughter will have lots of questions going forward, the same as all kids and we'll be here to support you.
    Scope
    Specialist Information Officer - Cerebral Palsy

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  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,258 Pioneering
    Hi @Fatt5
                     How are you? Welcome to the community and thank you for joining us, it's great to meet you. I have CP and as @Richard_Scope has said it is only natural for your daughter to have questions when she notices things and it's important to be open and honest with her. As other members have already said, there are many resources which Scope can offer which may be of use to you and please, if you have any questions, do ask as I'm sure someone here on the community will be able to help. Books can be a great way to help children understand things, especially if they see characters they can relate to.  We are here to support you and your family. Thank you. 
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