Hi, my name is Fatt5! My daughter with CP is struggling mentally with wearing an orthotic splint — Scope | Disability forum
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Hi, my name is Fatt5! My daughter with CP is struggling mentally with wearing an orthotic splint

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Fatt5
Fatt5 Community member Posts: 1 Listener
edited December 2020 in Cerebral palsy
Hi I am Fatima, my little girl is called Jemima and she has cerebral palsy. Jemima is 6 years old and wears an orthotic splint on her right leg. More recently, she has been really struggling with this mentally and questioning why she has to have this. Just wanted to find some people I could get to know and talk to about the many ongoing battles which will lay ahead. 

Looking forward to getting more involved with Scope.
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  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi and welcome 

    There are lots of members here with CP who will be able to advise and help and maybe some advice in our CP or parents and carers section 
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    Hi @Fatt5 :) Welcome to the community! I'm glad you've found us.

    As janer1967 said, we have plenty of members here who have CP, so hopefully they'll be able to offer you some advice and support. I'll tag in our CP Specialist Information Officer @Richard_Scope here too, as he might be able to offer you some insight on his return.

    I've moved your post into the cerebral palsy category, and renamed it slightly, so that our members will be able to find your post more easily. I'd encourage you to take a look through this category, as well as the parents and carers category, as janer1967 suggested.

    Additionally, if you live in England or Wales, I'd encourage you to take a look at Scope's Parents Connect service. It's a 6 week programme where you can chat (online at the moment, of course) to other parents, and find out more about the support available to you. 
    National Campaigns Officer, she/her

    Check out our Playground Accessibility Map
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  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
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    Hi @Fatt5 - & welcome to this friendly & supportive community, Fatima. I hope you have found the advice above helpful, & I'm sure Richard_Scope will be able to add to this. :)
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
    edited January 2021
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    Hi @Fatt5
    Really great to meet you!
    I remember the days when I hated wearing my splints too. It's very normal for your daughter to notice and question things about herself. We all compare ourselves to others at one time or another. 
    Scope produced a book called Celine's New Splints (here is the free PDF). It might help you have a conversation about why she needs to wear the splint for now. Your daughter will have lots of questions going forward, the same as all kids and we'll be here to support you.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • WestHam06
    WestHam06 Community member, Scope Volunteer Posts: 1,396 Pioneering
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    Hi @Fatt5, 
                     How are you? Welcome to the community and thank you for joining us, it's great to meet you. I have CP and as @Richard_Scope has said it is only natural for your daughter to have questions when she notices things and it's important to be open and honest with her. As other members have already said, there are many resources which Scope can offer which may be of use to you and please, if you have any questions, do ask as I'm sure someone here on the community will be able to help. Books can be a great way to help children understand things, especially if they see characters they can relate to.  We are here to support you and your family. Thank you. 
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