Boris Johnson televised Coronavirus update (04/01/2021)

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cupcake88 said:

Hi every one I’m not coping with this news at all . This again is going to set back health care for a lot of people it’s like covid has taken over and nothing else exists . I’m so paranoid that at some point there going to make it that every one has the vaccine which I hope not I personally will not be having the vaccine mainly because I’m on so much medication this is a new vaccine and no one knows what medication will react to it it’s a new thing . Personally the last lock Down back in March I nearly ended up sectioned I was under the home based treatment had round the clock visits to my home my mental health was so bad.

as you all know I can’t wear a mask I don’t go any where any way but if I do I always wear my lanyard but I feel like I have to always explain to why I don’t wear one . 

I know every one really has had there lives affected because of covid but the last lock down really set me over the edge mentally . I have been so panicked today I’m scared I’ll get sick again really bad that scares me more than getting covid if I’m honest the thought of loosing my mind again is scary . 

I have the green Lanyard which signifys I have a problem, waste of time IMO, for one thing until I brought it up with the local Labour MP, the local Plod aren't trained to recognise it, I found this out the day I got stuck in the middle of Town when Wednesday were at Home around last May playing Millwall FC, the Millwall fans were all on the Hillsborough bound Tram and causing havoc, I didn't feel safe so I removed myself from the Tram at the bottom of West St, this problem was further compounded by the fact my carer didn't see me get off a full Tram, and also my mobile died so I couldn't phone Home for Dad to come and get me! I went up to a local Policeman and explained my problem, and like I said he was no help!

By this point I was rather upset and panicking and in fear of my safety in Town with rowdy football fans.

However, because I don't follow football in general, I didn't know the Owls were at Home that day, had I known I'd have stopped in.

cupcake88

This is the thing @MrAllen1976 no one even knows what the lanyard means  they prod do now tho as more people have them now . This virus has changed things . 

@woodbine
im not doing too good at the moment . Yes I do understand that but to me I panicked about every thing the door bell goes it scares me the weather is bad it scares me to death , so any thing like a vaccine will have me over thinking loads I think once I have heard of people I know getting it and sharing there experiences with it it will make me feel better bout it . 

cupcake88

That’s really good I’m glad 

cupcake88

How is this lock down supposed to be for 

Ross_Alumni

Hi @cupcake88

We've just dropped you an email from community@scope.org.uk. 

I'm sorry to read that you are really worried about the new lockdown. I believe it's due to last until the middle of February, or until cases come under control. 

I understand your concern about getting the vaccine, hopefully as you say once people you know have safely received it that might ease your worries. Just to offer my experience in that regard, my 80 year old nana recently had the vaccine and she takes a lot of medication daily, and she said it went completely fine for her and there were no adverse reactions. I appreciate that's just one example, but I believe that getting the vaccine will go down without a hitch for most people.

I hope that you are able to keep your loved ones close over the coming weeks, and please remember that the community is always here for you. Alternatively, if you have concerns about your mental health or any of your treatments, you could raise these with your GP. You could also:

• contact Samaritans on 116 123
• text Shout to 85258 to be put through to a trained volunteer

Kindest regards

cupcake88

@Ross_Scope thank you I just saw that thank you for sharing your experiences of it I’m glad your Nanna is ok . My partner looks after me so I’m really lucky and my dog of course and of course I have the forum for support thank you for your kind words thank you to you @woodbine also . 

@Cressida hi there I do not work so I’ll be in . Thank you for your message you stay safe as well 

Lisatho11987777

I have been told I cant have the vacine because of my fragmin injections 

Cher_Alumni

@lisathomas50 Did that come from your GP or medical specialist?  I believe we will all be getting contacted when it's 'our turn' in order of priority.  Fingers crossed for us all keeping safe in the meanwhile 

Lisatho11987777

I had a confirmation from my gp and from my consultant who looks after my condition  I have had corona virus twice  and the vacine is a live  vacine and because I take 5000 units of fragmin a day 

I worry about haveing the new strain  so I stopped going out the first time I had corona virus I was poorly for 8 weeks the second time I havent fully  recovered todays I tried to committ suicide 6 weeks ago 

I came on here because I thought it could help 

Cher_Alumni

Hi @lisathomas50 - I'm really sorry to hear that and we can certainly help you so please don't worry.

If ever you feel like your wellbeing is in danger again then please seek emergency support immediately by ringing 999 and asking for an ambulance.  Suicidal thoughts can be extremely challenging to deal with and MIND offer this support on how to deal with them now and in the long term.

Should you feel like you need someone to speak to, other than your friends here on the community, then you can always:

• text 'SHOUT' to 85258 to speak to one of SHOUT's trained crisis volunteers
• call 116123 to speak to someone at The Samaritans or email jo@samaritans.org.uk if you prefer 

We'll be sending you an email shortly, but I just want to reiterate that we realise times are hard but this will pass.  Take it one day at a time and keep talking     

Lisatho11987777

I dont want to hurt myself now I am ok  well I was ok on here I thought  I have made a wonderful friend in ibleive 2020  and I made a friend with warrior now she gone off here 

I came on here to make friends and chat to people  best stop speaking now 

chiarieds

Obviously you need to discuss this with your Drs, who will weigh up the pros & cons, but the following from the Covid-19 Green Book; 27 November 2020 Chapter 14a p14 may be helpful: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/948757/Greenbook_chapter_14a_v4.pdf

'There are very few individuals who cannot receive the Pfizer-BioNTech or AstraZeneca COVID-19 vaccines. Where there is doubt, rather than withholding vaccination, appropriate advice should be sought from the relevant specialist, or from the local immunisation or health protection team.'   

Also from the APS Support UK: http://aps-support.org.uk/self-help/covid-19-information

'A COVID vaccine developed by Pfizer/BioNtech has recently been approved for use in the UK by the Medicines and Healthcare products Regulatory Agency (MHRA), and the first doses have now been given to patients.APS Support UK contacted the MHRA and was told on 11th December 2020 that the Pfzier/BioNTech COVID vaccine is suitable for anyone with antiphospholipid syndrome (APS).The MHRA has published information for healthcare professionals and for recipients of the vaccine, which would include any specific information/instructions on persons with APS. Links to this information are provided below, please note that there is no specific information/instructions in these documents for persons with APS:

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/941452/Information_for_healthcare_professionals.pdf

https://www.gov.uk/government/publications/regulatory-approval-of-pfizer-biontech-vaccine-for-covid-19/information-for-uk-recipients-on-pfizerbiontech-covid-19-vaccine

Additionally, Dr June Raine, chief executive of the MHRA, appeared on the Andrew Marr Show on 6th December 2020 and highlighted that there is a "special piece of advice for anyone on a blood thinner or an anticoagulant, but that simply means you can have the vaccine if the benefits outweigh the risks".

Lisatho11987777

I have had an email snd I have explained ed why I cant have the risk of havring it is higher than if I do  have it it has also been confirmed by my consultant  I csnt have either of the vacines but its because of my personal circumstances  it doesn't stop other people having it  I have also had confirmation from my gp 

I cant have the flu vsvi e either but I keep myself safe  and I wouldn't put anyone e else at risk 

Thank you for your advice 

chiarieds

You're welcome, Lisa. I spent some time researching the latest medical info to try & find out more for you. Whilst unfortunately those with an immunocompromised system may not produce as many antibodies as someone without those problems following vaccination, it did seem to offer hope. Some of the info was from 31 December 2020, & altho  there's obviously no published research papers, it was the latest medical opinions I could find.

Lisatho11987777

Thank you I have trued looking since I was told i couldn't have it my dr did say to me that because I am still suffering from the second  time  of haveing corona virus that would put me at risk aswel  long covid symptoms  can last for up to four years 

My white blood cells aren't good st the moment but I think if I could get a job I would be able to start getting better my lupus also gets eorze when I am doing nothing I have always worked I have never used my disability to stop me working it was my choice and I have always been supported yo fo that 

I know what my boundaries are now so I know how much I can do I will only fo part time work thank you  for your help  I have been looking g for a list of  food and drink that can affect lupus and how corona virus  affects lupus 


Thank you for your  kindness 

chiarieds

Hi @lisathomas50 - About Lupus & diet from Lupus UK: https://www.lupusuk.org.uk/diet-and-healthy-eating

Lisatho11987777

@chiarieds thsnk you so much that's realy kind of you I was waiting for my diet sheet to come but this is good  I have had a quick look there are a couple of foods added and a couple not there now the diet thing changes every year  I found I cant eat fruit or salad as I am doubled up in pain  if I eat it I will have a good read of that ? again thank you so much its hard to manage sometimes when your haveing a bad time not many people understand lupus I am so grateful to you it means alot

chiarieds

You're very welcome @lisathomas50 - I found the info a few days ago, but had just saved it as a draft instead of posting it! Just thought about it today. I hope it's helpful.

Lisatho11987777

@chiarieds I am going to have a good look at it thank you for being so kind and thinking about me x