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International Paget's Awareness Day, how much do you know about the condition?
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Ross_Alumni
Scope alumni Posts: 7,652 Disability Gamechanger
International Paget's Awareness Day 2021 is focusing on the important topic of treatment, its history and the research changing how Paget’s disease may be managed in the future.
Paget’s disease can occur in any bone, often causes no symptoms and may be found by chance. For those with symptoms, these may include pain, deformity and fracture. Either single or multiple bones may be affected with common sites being the spine, skull, pelvis and thigh (femur).
The risk of developing Paget’s disease increases with age and it is most commonly diagnosed in those over 50 years. It is the second most common metabolic bone disease after osteoporosis. Approximately 1% of people in the UK, over the age of 55 years, are thought to be affected.
There is support out there for those with Paget's disease, including from:
What is Paget's disease?
Paget’s disease affects the normal repair and renewal process of bone. Throughout life, bone is renewed and repaired through a process called bone remodelling. Paget’s disease is characterised by abnormalities in this process. The affected bone is renewed and repaired at an increased rate, adversely affecting the bone’s structure. Bone affected by Paget's disease may be enlarged and misshapen.Paget’s disease can occur in any bone, often causes no symptoms and may be found by chance. For those with symptoms, these may include pain, deformity and fracture. Either single or multiple bones may be affected with common sites being the spine, skull, pelvis and thigh (femur).
The risk of developing Paget’s disease increases with age and it is most commonly diagnosed in those over 50 years. It is the second most common metabolic bone disease after osteoporosis. Approximately 1% of people in the UK, over the age of 55 years, are thought to be affected.
Diagnosis and treatment
The condition can be identified in one of the following ways, but in many cases, Paget’s disease is found by chance when tests are carried out for another reason:- Blood tests
- X-rays
- Bone scans
- Treatment with bisphosphonates
- Zoledronate treatment
There is support out there for those with Paget's disease, including from:
- Paget's Awareness
- From the NHS
- Pain UK
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Comments
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Yes, I've treated patients with Paget's as a student, & have seen how painful it can be. Hopefully treatment should also include physio in some cases.As ever, always interesting to learn more. I've just been reading about scientific research on medieval bones from Norton Priory, Cheshire on the Paget's Awareness website.Thank you for the info @Ross_Scope
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