Undiagnosed and rare conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Waiting for ENT and scared

Welliboots93Welliboots93 Member Posts: 26 Connected

I'm 27 and last year around Sept I was told I have premature hearing loss and Pulsatile tinnitus so I was referred to ENT.

well for the past couple of months I've had a headache every at the front of the head or above an eyebrow, and the tinnitus has become constant and so much louder!
Most sounds seem to make the headache worse, and it's as if pressure is just building up in the head. My mood has changed, I've developed depression and I just seem to be irritated all the time or I can't stay concentrated on things 

Anyways, Ive spoke to a doctor and put on some meds, but he has said I will probably need some scans when I have an ENT appointment (which isn't until Feb) 

This has absolutley petrified me, because I can't shift the thought that I have a brain tumour and whilst waiting for this appointment I'm going to get worse with my anxiety!

Is there anyone who has been in a similar situation who could possibly offer some advice or reassurance on ENT, headaches etc?!

Thank you 


  • woodbinewoodbine Community Co-Production Group Posts: 4,522 Disability Gamechanger
    @Welliboots93 hi you ok tonight? I'm sorry to read about the problems you are having but it's not something I have any experience with, however do check back tomorrow as i'm sure someone will pop up with some advice.
    Wishing you well.
    "Putting a child into care, isn't caring for a child" (T.Rhattigan)
  • wilkowilko Member Posts: 2,357 Disability Gamechanger
    @Welliboots93, I know the pandemic has slowed up the NHS appointments but if your GP thought or thinks you need an MRI scan he or she would have arranged  one, you like all of us needing hospital assistance, intervention are put under a lot of stress and anxiety waiting and wondering what ifs. If you are worried and concerned about increased symptoms then contact your GP for help and advice failing that phone the NHS help line for help and advice you’ll be asked many questions which are routine but have to be asked regardless of your concerns or conditions. 
Sign in or join us to comment.