Skin condition distress

harry01
harry01 Online Community Member Posts: 304 Contributor
in Rare, invisible, and undiagnosed conditions
I didn't know what to put this down in. Had a very stressful appointment with dermatologist. 

I wish to speak to someone who similarly gas had a very bad experience with doctors, with something where errors were obviously made and know the psychological distress that can cause. I am looking for people who can understand this and support me.

Thank you 

Comments

  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hi @harry01

    I've sent you an email if you want to give that a read and get back to me.  How are you feeling now?
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    A bit better. But didn't understand point of dermatologist appointment if they weren't going to take skin samples. It's some species of bacteria/fungus living on the skin. I can see yellow because I have good eyesight. They haven't treated this thing for years.  
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    I also have nerve endings on my skin. They have been appalling and since I got this from a dodgy cosmetic product on Amazon in 2014 they have done absolutely nothing to help or reassure me. 
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    Got no feedback. Nothing. All I can say is to never buy anything of Amazon marketplace. Though I didn't realise it took me there. Do that and at least that part of your life wouldn't be dependent on incompetent doctors solving. 
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    I'm fed up. 
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    It's something that can affect anyone. So if they're hopeless with me then they're hopeless with many more people. 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hi @harry01

    how long have you been with your dermatologist?  Have you requested a new specialist for your condition?
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    It was one appointment. I had a separate skin sample from my surgery. But I thought that they would actually try and diagnose and treat something. To be honest it's odd that it hasn't been dealt with in primary care. I'm waiting for the skin culture results. 
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    Has this happened to anyone else?
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Do you know when you might get those results @harry01?
  • harry01
    harry01 Online Community Member Posts: 304 Contributor
    They said it takes 1 month for the results of a skin culture so it should be ready about now. I contacted my practice to ask them and they rejected my referral but said they'd 'discuss it in their meeting'. I'm hoping the results will force an apology but I imagine as usual they will take no accountability because they couldn't possibly making an error. 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Well hopefully you find out the results soon @harry01, fingers crossed they tell you as soon as possible.

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