If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Reaching out to parents of Teenagers transitioning

Johan
Member Posts: 8 Connected
Hi There
I am just about to start the process of preparing my son for post 16. Its a minefield and I don't know where to start. He has CP, quadriplegia, epilepsy and severe learning difficulties and he doesn't cope well with change. I am just wanting to hear some of your experience with this process, good or bad and what tips you might have for me.
My boy has grown up so quick and I have had my head in the sand for too long. Denial and a glass of wine seemed to make it all better :-(
I am just about to start the process of preparing my son for post 16. Its a minefield and I don't know where to start. He has CP, quadriplegia, epilepsy and severe learning difficulties and he doesn't cope well with change. I am just wanting to hear some of your experience with this process, good or bad and what tips you might have for me.
My boy has grown up so quick and I have had my head in the sand for too long. Denial and a glass of wine seemed to make it all better :-(
Tagged:
Comments
-
Hi there
I will tag in our CP expert who may be able to give you some help
@Richard_Scope can you help here -
Thanks for tagging me in @janer1967
Hi @Johan
Thanks for posting and a warm welcome to the community. We have some information that might help you begin planning for transition to adult care and getting involved in the transition to adult care services.
As a man with quadriplegic CP myself, I have to say that the transition to services for me was non-existent. However, we now have the Adults with CP care pathway, which your G.P. should be aware of and follow.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
No practical suggestions here, I'm afraid, but sympathy for 'head in the sand'. I also cope with the emotional impact of my daughter's problems by not really thinking about them in the round, just dealing with things when they can't be ignored. Don't feel stupid that you did that, we parents have feelings and mental health to protect too. And after all, you can't help your son if you're crippled by anxiety or depression.
Besides, the system changes so much in a few years that any work you did earlier, getting information and so on, would likely have been wasted.
Brightness
Categories
- 55.2K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 837 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 302 Dating, sex, and relationships
- 268 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 704 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 772 Autism and neurodiversity
- 951 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.